A Survey of Demographics, Symptom Course, Family History, and Barriers to Treatment in Children with Pediatric Acute-Onset Neuropsychiatric Disorders and Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal Infections

Published: Nov 15, 2022   |   Author: Gabriella True   |   Category: Blog, Research   |   No Comments

SL O’Dor, S Homayoun, OM.Downer, MA Hamel, JS Zagaroli, KA Williams.A Survey of Demographics, Symptom Course, Family History, and Barriers to Treatment in Children with Pediatric Acute-Onset Neuropsychiatric Disorders and […]

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Long COVID Syndrome Presenting as Neuropsychiatric Exacerbations in Autism Spectrum Disorder: Insights for Treatment

Published: Nov 3, 2022   |   Author: Gabriella True   |   Category: Blog, Research   |   Tags: ,   |   No Comments

Jyonouchi, H.; Geng, L.; Rossignol, D.A.; Frye, R.E. Long.COVID Syndrome Presenting as Neuropsychiatric Exacerbations in Autism Spectrum Disorder: Insights for Treatment. J. Pers. Med. 2022, 12,1815. https://doi.org/10.3390/jpm12111815 Neurological and neuropsychiatric […]

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New IVIG Study

New IVIG Study

Published: Oct 23, 2022   |   Author: Gabriella True   |   Category: Blog, Clinicians, Family Resources   |   Tags: , ,   |   No Comments

In PANS patients, all pyschometric endpoints studied exhibited statistically significant decreases following 6 cycles (infusions) of IVIG as well as durability of response for up to 46 weeks in a subset of subjects.

Patients with PANS can benefit from a 6-cycle course of IVIG. Provisional data demonstrate durability of the positive impact of IVG treatment. PANS is an autoimmune disease; innate immunity and the complement system may play a role in the pathogenesis of PANS.

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A Light in the Dark for PANDAS & PANS

A Light in the Dark for PANDAS & PANS

Published: Oct 15, 2022   |   Author: Gabriella True   |   Category: Blog, Books   |   No Comments

If you picked up this book, you may feel like your child has been stolen from you, possibly overnight. Watching your child suffer from PANDAS or PANS can be a heart-wrenching experience, but the good news is, there is hope for your child. As a mother of children affected by PANS and seasoned clinician, Dr. Jill Crista created this playbook to support your family’s journey.

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