April 1, 2021
New York Call to Action – Insurance Bill A00877
Are you in New York State? Help secure legislation mandating insurance coverage for PANS PANDAS in New York. No experience...
Legislative Resources
March 27, 2021
ASPIRE Participates in Rare Across America
Rare Across America Congressional Meetings Make an impact on federal policy from close to your home. Share your rare disease story. Meet other rare disease advocates. ASPIRE joined several...
March 27, 2021
Legislative Thank You Letter Template
After you meet with your legislator or one of their staff, please write a brief thank-you note. Make sure to concisely recap your discussion along with what you wish their next steps will be to...
March 20, 2021
Ohio Call to Action – Insurance Bill
WE HAVE A CALL TO ACTION for House Bill #488 that requires insurance coverage for PANDAS/PANS kids in...
March 14, 2021
Illinois PANS PANDAS Legislation
Please sign a Proponent Witness Slip (links below) HB2472- requires the Director of Insurance to solicit information and data from health insurance carriers regarding insurance coverage for pediatric...
March 4, 2021
Texas Pediatric Acute-Onset Neuropsychiatric Syndrome (PANS) Advisory Council
On November 13, 2020, The Texas Pediatric Acute-Onset Neuropsychiatric Syndrome Advisory Council met for the first...
March 4, 2021
West Virginia Call to Action – Insurance Bill -Update
WV needs your help asking legislators to support HB 2252: Requiring insurance coverage for treatment of pediatric autoimmune neuropsychiatric...
February 26, 2021
Iowa Call to Action – Insurance Bill SF165
The deadline to make the first funnel is March 4th. Calls/emails really need to be made by Monday, March 1st as this committee generally only meets on...
February 23, 2021
ASPIRE signs on to letter to FDA regarding Complex Generics
ASPIRE cosigned the Association for Accessible Medicines’ letter to the FDA urging them to prioritize patient access to more safe, effective, and affordable complex generic medicines in Generic...
February 10, 2021
Oregon Call to Action – Insurance Bill
Please support NWPPN’s lead to mandate insurance coverage for PANS...
September 17, 2020
IOCDF Virtual Voices for Mental Health: An Online Day of Action
ASPIRE is so happy to announce that we are participating in this year’s Virtual Voices for Mental Health: An Online Day of Action, and you’re invited! Watch the IOCDF Virtual Voices 2020...