ASPIRE has signed a letter to Congressman Schrader and Congressman Kinzinger to support the BIOSIM Act. This act would accelerate patient access to new biosimilar treatments by providing a temporary...
Rhode Island Update & New Call To Action Update! June 9th, 2021 The Senate Amendment Bill 064 passed the Senate! Woohoo!! But now we still need your help right now. It is not hard and does...
WE HAVE A CALL TO ACTION for House Bill #488 that requires insurance coverage for PANDAS/PANS kids in...
Are you in New York State? Help secure legislation mandating insurance coverage for PANS PANDAS in New York. No experience...
Rare Across America Congressional Meetings Make an impact on federal policy from close to your home. Share your rare disease story. Meet other rare disease advocates. ASPIRE joined several...
After you meet with your legislator or one of their staff, please write a brief thank-you note. Make sure to concisely recap your discussion along with what you wish their next steps will be to...
Please sign a Proponent Witness Slip (links below) HB2472- requires the Director of Insurance to solicit information and data from health insurance carriers regarding insurance coverage for pediatric...
On November 13, 2020, The Texas Pediatric Acute-Onset Neuropsychiatric Syndrome Advisory Council met for the first...
WV needs your help asking legislators to support HB 2252: Requiring insurance coverage for treatment of pediatric autoimmune neuropsychiatric...
The deadline to make the first funnel is March 4th. Calls/emails really need to be made by Monday, March 1st as this committee generally only meets on...
ASPIRE cosigned the Association for Accessible Medicines’ letter to the FDA urging them to prioritize patient access to more safe, effective, and affordable complex generic medicines in Generic...
Please support NWPPN’s lead to mandate insurance coverage for PANS...