Legislative Action: Information for Legislators Toolkit & Handouts
Download Legislative Toolkit
Legislative Action: Information for Legislators Toolkit
Download ASPIRE’s PANS/PANDAS Legislative Action: Information for Legislators Toolkit. This Legislative Toolkit covers topics including:
- What are PANS/PANDAS
- Overview of Diagnosis & Treatment
- PANS/PANDAS Legislative Action
- Current Landscape of PANS/PANDAS
- Impact of of PANS/PANDAS
- On Treatment & The Use of IVIG
- Why Passage of Legislation is Critical
- Passed Insurance Bills
Revised: October 2025
Download PANS/PANDAS Legislative Information – 1 pager
PANS/PANDAS Legislative Information
Download (PDF) Mandated Insurance Coverage for PANS/PANDAS: A Legislative Overview
Mandated Insurance Coverage for PANS and PANDAS: A Legislative Overview
Download (PDF) The Need for Mandated Insurance Coverage for PANS/PANDAS
The Need for Insurance Coverage for PANS/PANDAS
Download (PDF) ASPIRE’s Statement on Aetna’s Policy
ASPIRE Aetna Policy Legislative Statement
Download (PDF) ASPIRE’s Explainer on RI PANS PANDAS Insurance Report
Mandated RI PANS PANDAS Insurance Report
Download (PDF) ASPIRE Legislative Map
Read Article: A Chat About Legislative Advocacy: Your Story Matters
Return to ASPIRE Legislative Resources
Gabriella True
2 comments to Legislative Action: Information for Legislators Toolkit & Handouts
Karina Gamboa
October 4, 2024Does my child need to wait until January 2025 to get IVIG approved?
Gabriella True
October 4, 2024If your child is in Colorado or California, then to get IVIG approved for PANS, then yes. Your provider may be able to prove medical necessity under another diagnosis your child may have like AE, an immunodeficiency or CDIP.