PANS/PANDAS and Eating Disorders
PANS/PANDAS and Eating Disorders Restricted eating is one of the two primary diagnostic criteria for Pediatric Acute-onset Neuropsychiatric Syndrome (PANS), yet its presentation can vary considerably...
PANS/PANDAS and Eating Disorders Restricted eating is one of the two primary diagnostic criteria for Pediatric Acute-onset Neuropsychiatric Syndrome (PANS), yet its presentation can vary considerably...
Resources for Kids, Teens & Young Adults with PANS/PANDAS Living with PANS/PANDAS can impact school, friendships, activities, and family life. Managing appointments, treatments, symptoms, and...
Who Shows Up—and Who Vanishes—When Your Kid Is in Trouble? By Jessica Slice September 9, 2026 This piece hit very close to home. I’ve been part of the autism community,...
National Grief Awareness Day is a good time to recognize a kind of grief that is often hard to describe. For those who have PANS and PANDAS and for the...
When wildfire smoke affects air quality, this ASPIRE video with Lindsey Wells, ND, offers timely information on how smoke exposure can affect the body, as well as practical ways to...
Treatment Fatigue in PANS Children, Teens, and Young Adults When we see pushback and disengagement from PANS kids, teens, and young adults around participating in treatment plans, it can be...
Swallowing pills can be intimidating for many, especially for those with PANS PANDAS due to OCD, sensory issues, anxiety, or difficulty swallowing. The good news is that with some practice...
Self Care With PANS/PANDAS Living with PANS/PANDAS or similar neuroimmune conditions can touch almost every part of your life. Symptoms might affect your mental health, school, work, relationships,...
Restricted eating, including Avoidant/Restrictive Food Intake Disorder (ARFID), is a common and complex symptom in individuals with PANS/PANDAS. Families often face challenges finding support and...
A Conversation about the unhide® Platform I’m excited to share a recent conversation with Breanne Failor, Director of Strategic Partnerships at the Brain Inflammation Collaborative (BIC)....
ASPIRE President and Founding Board Member Gabriella True was invited by the Ohio Suicide Prevention Foundation (OSPF) to present a webinar on PANS, PANDAS, and suicide risk. More than 200...
If you’re reading this, you probably care about our family and our child. We understand that what we’re going through may seem confusing, unfamiliar, or even hard to believe. Sudden and extreme...
Learn about other families whose lives have been affected by PANS/PANDAS — and be inspired to share your own.
A letter to my 14 year old self
Our friend gave ASPIRE permission to share this letter to her 14-year-old self. Many of us know how it feels to be too affected by PANS/PANDAS/BGE to go to school. […]
“What happened to Ruth Anne?” her kindergarten teacher asked 26 years ago. She had experienced numerous infections and had tubes put in her ears. She struggled with attention and the once sweet, kind child became anxious and irritable. By 3rd grade, she couldn’t write, pay attention, read, and was diagnosed with ADD. Chronic infections ensued and restricting food intake began. She was diagnosed with an eating disorder. We made it through those years with the support of several wonderful teachers.
Alphabet Soup – Multiple Diagnoses and Nothing Fits Except PANS PANDAS
I was so relieved to have a diagnosis that made sense finally, which gave us the hope of treating and recovering our son.
Case Study – Recovering from PANS, Lyme, CIRS
A Talk with Nathan Who is Recovering from PANS/PANDAS, Lyme & CIRS Gabriella: I had a chat with Dr. Nancy O’Hara, Nathan, and his mom a few years ago and […]