Medication Log Sheet
PANS PANDAS is medically complex. In order to have an informed discussion with your providers, it can be helpful to track symptoms, exposures to triggers, and medications. This Medication Log...
PANS PANDAS is medically complex. In order to have an informed discussion with your providers, it can be helpful to track symptoms, exposures to triggers, and medications. This Medication Log...
Tips for Taking Medicine It can be challenging to get kids to take their medicine. Below is a Pill Swallowing Protocol for learning how to swallow pills. But in the...
Print and take to your next appointment! You do not want to leave an appointment with more questions than you had going in. You need to clarify the lab results,...
Track and Rate PANS PANDAS Symptoms Tracking symptoms is a critical part of making a clinical diagnosis and forming treatment plans. ASPIRE has assembled the most used symptom tracking and...
PANS/PANDAS is not the same as traditional OCD or a tic disorder; the onset and concurrent symptoms and, in some cases, the severity of the OCD set these disorders apart....
What is the relationship between PANS & PANDAS and Tourette’s syndrome? Susan Swedo, MD and Gabriella True sit down to discuss the relationship between PANS & PANDAS and...
Sensory & Motor Abnormalities are one of the main PANS PANDAS symptom categories In PANS, sensory and motor abnormalities both fall into one of the seven categories of the PANS...
It is never too early to become a PANS PANDAS advocate! Public awareness of PANS PANDAS happens one person at a time, and we need your help! Increasing awareness improves...
Our students are PANS PANDAS strong! As we begin to wrap up the school year, we see many kids receiving praise for scholastic achievement. Let us take the time...
PANS/PANDAS patients are commonly misdiagnosed with Autism, Tourette’s Syndrome, OCD, bipolar disorder, ADHD, Oppositional Defiance, or with an eating disorder. However, PANS/PANDAS patients can...
At first glance, someone PANS and someone with OCD may appear pretty similar. They both have obsessions, compulsions, anxiety, and these symptoms cause significant distress, interfere with daily...
These sage words of advice come from a girl with PANS/Autoimmune Encephalitis. She often allows people to ask her questions in her stories. One day a mom asked, how can...
Learn about other families whose lives have been affected by PANS/PANDAS — and be inspired to share your own.
A letter to my 14 year old self
Our friend gave ASPIRE permission to share this letter to her 14-year-old self. Many of us know how it feels to be too affected by PANS/PANDAS/BGE to go to school. […]
“What happened to Ruth Anne?” her kindergarten teacher asked 26 years ago. She had experienced numerous infections and had tubes put in her ears. She struggled with attention and the once sweet, kind child became anxious and irritable. By 3rd grade, she couldn’t write, pay attention, read, and was diagnosed with ADD. Chronic infections ensued and restricting food intake began. She was diagnosed with an eating disorder. We made it through those years with the support of several wonderful teachers.
Alphabet Soup – Multiple Diagnoses and Nothing Fits Except PANS PANDAS
I was so relieved to have a diagnosis that made sense finally, which gave us the hope of treating and recovering our son.
Case Study – Recovering from PANS, Lyme, CIRS
A Talk with Nathan Who is Recovering from PANS/PANDAS, Lyme & CIRS Gabriella: I had a chat with Dr. Nancy O’Hara, Nathan, and his mom a few years ago and […]