March 23, 2023
New Autism Rates Published – 1 in 36
CDC’s Autism Numbers – 1 in 36 The newly published estimated Autism Prevalence rates by the Center for Disease Control and Prevention (CDC) report that 1 in 36 children...
December 14, 2022
Webinar – Beth Alison Maloney – Protecting Your Child: How Best to Advocate for Sick Children Without Increasing the Risk of Medical Child Abuse Accusations
Speaker: Beth Alison Maloney, Esq. Webinar: Protecting Your Child: How Best to Advocate for Sick Children Without Increasing the Risk of Medical Child Abuse Accusations View webinar: Recorded webinar...
November 18, 2022
Webinar – Julie Cox – Helping PANS Families Move From Grief to Empowerment
Speaker: Julie Cox, MSW, LCSW, PLLC Webinar: Helping PANS Families Move From Grief to Empowerment Register to View Recorded Webinar: Watch on Demand Please register even if you will not attend...
November 13, 2022
Toolkit – Testing & Antibiotic Usage for GAS in PANS & PANDAS
ASPIRE’S Professional Advisory Board publishes Testing & Antibiotic Usage for GAS in PANS & PANDAS The section below provides only a brief overview of the Professional Advisory Board...
October 23, 2022
New IVIG Study
In PANS patients, all pyschometric endpoints studied exhibited statistically significant decreases following 6 cycles (infusions) of IVIG as well as durability of response for up to 46 weeks in a...
October 5, 2022
About PANS PANDAS from ASPIRE Video
Learn more about PANS PANDAS PANS PANDAS are misdirected immune responses that result in acute onset of OCD, tics, and/or restricted food intake, along with two neuropsychiatric symptoms in seven...
September 28, 2022
What do you want people to know about PANS PANDAS?
Please help ASPIRE with a PANS Awareness Day project. Please submit one or two sentences on “What do you want people to know about PANS/PANDAS?” via the form below. We...
September 19, 2022
The Invisible Cost Of Caring For A Child With A Health Condition
“So many people say, ‘What are you doing for yourself?’ which is a nice sentiment, but it just further divides me and those people,” Taylor said. “What they don’t understand is that I...
August 18, 2022
Toolkit – PANS PANDAS Comprehensive Educator Toolkit for School Staff, Teachers, and School Nurses
PANS PANDAS Comprehensive Educator Toolkit for School Staff, Teachers, and School Nurse PANS PANDAS in the School Setting – Impacts and Supports This PANS PANDAS Comprehensive Educator...
February 21, 2022
PANDAS is Autoimmune Encephalitis
"Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal infection or PANDAS can also be called post-streptococcal autoimmune basal ganglia...
February 15, 2022
Sibling Support
We know there is no parenting playbook; there certainly isn’t one when you add PANS/PANDAS to the mix. As parents, we are often second-guessing our decisions. So, as you read...
July 29, 2021
PANS & Eating Disorder/Food Restrictions & Toolkits/Handouts
PANS PANDAS & Eating Disorders/Food Restrictions – Full Packet of Recent studies and Flyer. Please note that the Flyer is also available in two poster sizes...
We aspire to solve.
Learn about other families whose lives have been affected by PANS/PANDAS — and be inspired to share your own.
A letter to my 14 year old self
Our friend gave ASPIRE permission to share this letter to her 14-year-old self. Many of us know how it feels to be too affected by PANS/PANDAS/BGE to go to school. […]
“What happened to Ruth Anne?” her kindergarten teacher asked 26 years ago. She had experienced numerous infections and had tubes put in her ears. She struggled with attention and the once sweet, kind child became anxious and irritable. By 3rd grade, she couldn’t write, pay attention, read, and was diagnosed with ADD. Chronic infections ensued and restricting food intake began. She was diagnosed with an eating disorder. We made it through those years with the support of several wonderful teachers.
Alphabet Soup – Multiple Diagnoses and Nothing Fits Except PANS PANDAS
I was so relieved to have a diagnosis that made sense finally, which gave us the hope of treating and recovering our son.
Case Study – Recovering from PANS, Lyme, CIRS
A Talk with Nathan Who is Recovering from PANS/PANDAS, Lyme & CIRS Gabriella: I had a chat with Dr. Nancy O’Hara, Nathan, and his mom a few years ago and […]