Your support reaches five core audiences (General Public, Patients/Families, Schools, Legislators, Providers) which increases awareness and understanding of PANS PANDAS nationally while providing critical support to all community members. You are the key to supporting and educating the community. Will you donate today to support critical programs?
The Alliance to Solve PANS and Immune-Related Encephalopathies (ASPIRE) serves children, adults, families, doctors, and educators affected by PANS, PANDAS and other immune-related encephalopathies.
Every day the community comes to ASPIRE to ask for help. Unfortunately, the reality is that many families see several doctors before receiving the correct diagnosis of PANS PANDAS. Meanwhile, symptoms worsen, and patients and families are struggling financially, scholastically, and emotionally.
In a nutshell, everyone needs a better understanding of PANS PANDAS (the why’s, what’s, and how’s) plus ways to help improve outcomes while alleviating the suffering that comes with this devastating but treatable illness. Patients and families want faster access to appropriate care and strategies to navigate their new day-to-day life that PANS PANDAS has brought upon them. Schools seek further education on how to support their students appropriately. Legislative advocates want tools to help advocate for legislation that will improve the lives of those with PANS PANDAS. Finally, providers want to understand this disorder better and want accessible support for their patients outside of their office.
ASPIRE in Action – We empower and connect our community with tools and resources for advocacy, education, support, and awareness.
ASPIRE programs reach five core audiences to increase awareness and understanding of PANS PANDAS on a national level while providing critical support to all members of our community.
- National General Public
- Families & Patients
- Schools & Educators
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This summer, we have expanded and improved our collection of ASPIRE toolkits, providing information at your fingertips, making it easy to share information on PANS PANDAS. In addition, our board, volunteers, and Professional Advisory Board are updating a couple of existing toolkits and writing a few new ones we know our community needs. We can’t wait to share them with you.
We will continue our school in-service education program that we launched this spring; we spoke at schools from Massachusetts to Illinois, down to Tennessee, across to Colorado, and everywhere in between. Just like we did in the spring, we will be sponsoring and speaking at more conferences. We are providing new literature to doctors to help them better support families. Stayed tuned for a few more programs we are developing.
ASPIRE looks forward to sharing the projects and initiatives we are working hard on behind the scene with you soon. So, make sure you have signed up for our newsletter and follow us on social media. Facebook. Instagram. Twitter.
Every gift helps us continue our work to empower all affected by PANS, PANDAS and immune-related encephalopathies. Please donate to ASPIRE.
Please help close the gap between the onset of symptoms and the start of treatment while providing support through their journey. We can’t do it without your help.
You Can Provide Hope & Create Change!
We know you support and understand ASPIRE’s mission to improve the lives of those affected by PANS, PANDAS, and related encephalopathies. Please help continue and expand needed programs that provide critical education, which will help close the gap between the onset of symptoms and treatment. Families, providers, patients, educators, and legislators depend on donors like you.