Kansas PANS PANDAS Updates
HB2110 Passes! HB2110 is a pilot program that will provide coverage for PANS PANDAS under the state health care benefits program and collect data on the impact, utilization, and cost of...
Getting involved in advocacy is easier than you may think but it is a critical advocacy effort. We need your help!
Start here: How to Assist with PANS/PANDAS Legislation for lots of fantastic information on getting started including how to talk to your Legislators and ask for their support. See below for State Pages and additional PANS PANDAS Legislative Resources from ASPIRE. Email the Public Policy Committee today for more information on advocacy efforts in your state!
We know that you, the State Leads, are hooked in with most everyone from your state but often new families find ASPIRE before finding state groups. But, ASPIRE is here to assist you. We can create State Pages (see below). We will help you share updates and Call to Action.
For all states working towards passing a bill, ASPIRE has two testimony letters that we can update for your state. One is from the Board of Directors and the other is from the Professional Advisory Board.
What we need from you:
If your state has both a House Bill and a Senate Bill running at the same time, please let us know how you would like ASPIRE to address the letters with that in mind. Some states want totally separate letters while other states allow you to include both bill numbers and address both House and Senate members in the same letter.
We are in the process of updating the legislative packets. If you would like to use the current version please email us.
We know that you, the State Leads, are hooked in with most everyone from your state but often new families find ASPIRE before finding state groups. So, ASPIRE is here to assist you. We can create State Pages (see below). We will help you share updates and Call to Action announcements.
HB2110 Passes! HB2110 is a pilot program that will provide coverage for PANS PANDAS under the state health care benefits program and collect data on the impact, utilization, and cost of...
Call to Action: Call and email the Georgia Senate Health and Human Services Committee to vote yes for HB1484 now through the weekend. The meeting and vote are Monday at 7:00 a.m. CTA...
Please support NWPPN’s lead to mandate insurance coverage for PANS...
Idaho’s HCR 30 for a PANDAS/PANS Awareness Day Passed Unanimously Bill Information: ID HCR030 States findings of the Legislature and recognizes October 9, 2022, as PANDAS/PANS Awareness Day. ...
Rhode Island Update & New Call To Action Senate Bill No. 2203 Bill Update: 03/03/2022 Committee recommended measure be held for further study Bill Information: Senate Bill No. 2203 – AN ACT...
Are you in New York State? Help secure legislation mandating insurance coverage for PANS PANDAS in New York. No experience...
Washington House Resolution 4653 Passed Bill Information: HR 4653 – 2021-22- Honoring patients and families affected by PANDAS/PANS. Bill Status Link: Washington.Gov Link Bill Language:...
On November 13, 2020, The Texas Pediatric Acute-Onset Neuropsychiatric Syndrome Advisory Council met for the first...
Virtual Voices for Mental Health program 2021 ASPIRE is again partnering with IOCDF on Virtual Voices for Mental Health program in which we call on our community to contact their legislators to ask...
ASPIRE has signed a letter to Congressman Schrader and Congressman Kinzinger to support the BIOSIM Act. This act would accelerate patient access to new biosimilar treatments by providing a temporary...
WE HAVE A CALL TO ACTION for House Bill #488 that requires insurance coverage for PANDAS/PANS kids in...