Elise’s Story: PANS/PANDAS treatment after a 15+ year diagnostic delay
Elise shared the story below on her PANS/PANDAS journey at the IOCDF Conference in 2024 as part of the panel “PANS & PANDAS: What is it, What to Look For,...
Blog
Never Ever Give Up: Jacqueline Lembesis’ PANDAS Story
The battle with PANDAS is no joke, but there is hope. Throughout my journey, my mantra has been Never Ever Give Up. I am a fighter, a warrior, like all those with PANS/PANDAS. I have found fun ways...
September 11, 2024
World PANS PANDAS Awareness Day
Volunteers Needed: We need volunteers to reach out to their municipalities to request that they light up monuments, like the state house, bridges, monuments, etc., be lit up on October 9th,...
September 4, 2024
Michigan PANS PANDAS Updates
Current Legislative Action Please visit the MI PANS/PANDAS Alliance to stay updated on how you can take legislative action in Michigan. If you are a Michigan parent of a...
September 1, 2024
New York/Connecticut ChitChat Meet Up
Danbury, CT - Thursday, September 12, 2024 - 10:00 AM...
August 31, 2024
Lyla and Pickles’ Guide to PANDAS
Lyla is a spunky eight-year-old little girl with a wild imagination. Along with her best friend, Pickles, Lyla loves to go on adventures, play pretend, and enjoy being a kid. When Lyla was six years...
Pediatric Acute-Onset Neuropsychiatric Syndrome (PANS) and Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections (PANDAS): Immunological Features Underpinning Controversial Entities
Leonardi L, Perna C, Bernabei I, Fiore M, Ma M, Frankovich J, Tarani L, Spalice A. Pediatric Acute-Onset Neuropsychiatric Syndrome (PANS) and Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections (PANDAS): Immunological Features Underpinning Controversial Entities. Children. 2024; 11(9):1043. https://doi.org/10.3390/children11091043
August 14, 2024
The inflammation connection: Kids with PANS at high risk for arthritis
The disease is typically as awful as it is sudden: Over a few days, children develop severe anxiety and intense obsessive-compulsive behaviors. They barely sleep and may stop eating. Their schoolwork...
August 9, 2024
Handout – Learn about PANS PANDAS
Share this one-page handout on PANS PANDAS. Click the button below to download the 1-page handout on PANS PANDAS, including symptoms and information about the disorder. Register with ASPIRE to...
Understanding PANS PANDAS: Insights from Those Who Live It
Straight from the Heart: Students and Young Adults Share About PANS PANDAS Download PDF version: What I Want My Friends to Know About PANS PANDAS ASPIRE surveyed students and...
PANS PANDAS Triumphs!
Recent PANS/PANDAS Triumphs Thank you to everyone who took a moment to celebrate your recent success. Your stories provide hope to other families and patients! Would you like to share...