Blog
March 10, 2025
The Sibling Experience in PANS/PANDAS: Understanding the Challenges & Needs
Living with a sibling affected by PANS profoundly impacts well-being—fear of outbursts, limited social opportunities, and the isolation of not having the words or knowledge to explain the...
March 8, 2025
Managing Needle Fear: Practical Tips for Blood Draws & Infusions
Needle fear is real, and you’re not alone. Whether it’s a quick blood draw or a longer infusion, anxiety can make the experience stressful. For those with PANS/PANDAS, it may...
March 8, 2025
Mastering the Art of Swallowing Pills: A Step-by-Step Guide
Swallowing pills can be intimidating for many, especially for those with PANS PANDAS due to OCD, sensory issues, anxiety, or difficulty swallowing. The good news is that with some practice...
March 6, 2025
Georgia PANS PANDAS Action Updates
Call To Action for 2025 Legislation Urgent Action Needed! Families battling #PANS/#PANDAS deserve insurance coverage for life-changing treatments. #SB205, the companion bill to #HB124, is in the...
March 6, 2025
How a Georgia House bill could create options in treating a devastating pediatric diagnosis
The bill is going to be a huge step forward, but Emily‘s mom April says it’s not a cure the bill does not mandate insurance coverage for the most common and effective...
March 1, 2025
West Virginia PANS PANDAS Updates
WV needs your help asking legislators to support HB 2252: Requiring insurance coverage for treatment of pediatric autoimmune neuropsychiatric...
March 1, 2025
School In-Service Lectures at ASPIRE
Students with PANS/PANDAS have complex cognitive, behavioral, physical & neurological symptoms that affect their school performance. The school's multidisciplinary team benefits from an awareness of...