“Our case report highlights the importance of a thorough history, including inquiring about past infections and investigations to look for autoimmune and infectious etiologies, including ASO and positive DNAse B titers, in adult patients with new onset movement disorders and no other identifiable etiology and risk factors. Further research is mandatory to investigate the incidence of movement disorders in the adult population after a streptococcal infection and the diagnostic approach and treatment modalities needed to manage such patients.”
Young adults’ experiences of living with paediatric acute-onset neuropsychiatric syndrome. An interview study
- Young adults living fairly isolated lives, dependent on care from relatives.
- The illness was a tangible presence.
- They perceived a lack of knowledge among healthcare staff on PANS in healthcare, and negative consequences linked to this. Their experience-based knowledge of their own illness is devalued in healthcare encounters.
- A feeling of being pushed around in healthcare, without anyone taking responsibility for the treatment
- Emphasized the need for increased knowledge among staff to identify PANS and be able to offer effective treatment.