Why it’s So Hard to Get a Diagnosis of PANS and/or PANDAS

by Madeline Dyer

I’ve been talking a lot recently about my experience of having Paediatric Acute-Onset Neuropsychiatric Syndrome (an illness which, despite its name, affects adults too), and how I was undiagnosed for six months, plunging me deeper into the nightmare that tried to consume me. I think sharing this information, and my story, is so important. I can’t stress it enough: this was the most terrifying thing I have experienced, and awareness needs to be raised (just as is the case with all mental health conditions).