My Story About PANS/PANDAS

My Story About PANS/PANDAS

Published: Aug 5, 2022   |   Author: Gabriella True   |   Category: Blog, Books, Events, Fundraisers, Special Projects, Featured on Homepage   |   No Comments

by Owen Ross, Kerri Ross, Dr. Rachel Avery 100% of book proceeds through Sep 30 to go to ASPIRE! Through this link: https://checkout.square.site/buy/5MGSCX75D6HSI3HG2F7AQNW7 Looking for a great back-to-school book to help teach your kiddo’s classmates (and even teachers) about PANS/PANDAS?  It is a wonderful book that has been well-loved for a few years. Owen and […]

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NEUSHA Summer Academy

NEUSHA Summer Academy

Published: Aug 4, 2022   |   Author: Gabriella True   |   Category: Blog, Events, Fundraisers, Special Projects, Featured on Homepage   |   No Comments

Northeastern University School of Nursing 2022 Summer Academy August 8th and 9th, 2022, 8:30-4:00 pm ET, Cape Codder Resort Topics: Pediatric Cardiac Emergencies and COVID impact, Trauma and Pediatric Brains and Behavior; Collaborations: working effectively during COVID; Diabetes Numeracy; Safe Environments for LGBTQ Students; Disordered Eating and COVID; Substance Us/Abuse Issues and Assessment Tips; School […]

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Toolkit – PANS PANDAS Comprehensive Educator Toolkit for School Staff, Teachers, and School Nurses

Toolkit – PANS PANDAS Comprehensive Educator Toolkit for School Staff, Teachers, and School Nurses

Published: Aug 3, 2022   |   Author: Gabriella True   |   Category: Blog, Families, Parents, & Caregivers, Featured on Homepage, Printables & Brochures, Schools & Educators   |   Tags: , , ,   |   No Comments

PANS PANDAS Comprehensive Educator Toolkit for School Staff, Teachers, and School Nurse PANS PANDAS in the School Setting   – Impacts and Supports This PANS PANDAS Comprehensive Educator Toolkit for School Staff, Teachers, and School Nurse toolkit combines key elements of several ASPIRE Toolkits. It includes information from the Provider, Overview, School Overview, and Nurse Toolkits. […]

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My name is Lexi and this is my PANS story…

My name is Lexi and this is my PANS story…

Published: Jul 26, 2022   |   Author: Gabriella True   |   Category: Blog, Featured on Homepage, Personal Stories   |   No Comments

Lexi’s story exemplifies the absolute devastation patients and families go through as a result of being misdiagnosed for too long. In our article on Clinical Urgency of Diagnosing and Treating, we touch on how families often see up to eight providers before getting the correct diagnosis of PANS PANDAS. In the meantime, patients are placed […]

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Wyoming PANS PANDAS Updates

Wyoming PANS PANDAS Updates

Published: Jul 26, 2022   |   Author: Gabriella True   |   Category: Blog, Featured on Homepage, Legislative Resources   |   No Comments

Education Seminar All educators are invited to attend a seminar on PANS PANDAS. An overview of symptoms, diagnosis, treatment, and how it affects learning will be provided.  Seminar hosted by The 200th Candle. The lecture will be given by Gabriella True, president of ASPIRE. If you have questions regarding this seminar, please contact Stephanie Tillman, […]

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Webinar – Shara Virlan – Essential Strategies for Navigating Special Education

Webinar – Shara Virlan – Essential Strategies for Navigating Special Education

Published: Jul 15, 2022   |   Author: Gabriella True   |   Category: ASPIRE Webinars, Blog, Featured on Homepage, Schools & Educators, Videos   |   No Comments

Speaker: Shara Virlan Webinar: Essential Strategies for Navigating Special Education Date/Time: August 23rd, 11:00am EST Register for this webinar: Via Zoom! Abstract: School accommodations and/or modifications may be essential for a thorough and appropriate PANS PANDAS treatment protocol. You are not alone in being confused about whether or not your child needs an IEP or […]

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The First Rule of Climate Club

The First Rule of Climate Club

Published: Jul 15, 2022   |   Author: Gabriella True   |   Category: Blog, Books   |   No Comments

In this companion to Dress Coded, an eighth-grader starts a podcast on climate activism and rallies her friends to create lasting change in their local community and beyond. The First Rule of Climate Club, a mid-grade novel, focuses on an eighth grader’s efforts to help diagnose her friend’s “mystery illness,” which eventually is identified as PANS from Lyme disease.

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