Education Series from New England Center for Health

Education Series from New England Center for Health

Published: Jul 6, 2020   |   Author: Gabriella True   |   Category: Blog, Families, Parents, & Caregivers, Featured on Homepage   |   Tags: , , , , , , , , , , , ,   |   2 Comments

ASPIRE is happy to announce that New England Center for Health, lead by Dr. Nancy O’Hara (ASPIRE Professional Advisory Board Member), Dr. Lindsey Wells, and Vicki Kobliner will host zoom calls regarding various topics surrounding COVID-19. 

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Diagnosis Day

Diagnosis Day

Published: Jun 26, 2020   |   Author: Gabriella True   |   Category: Blog, Featured on Homepage, Personal Stories   |   Tags: ,   |   No Comments

Do you remember the day your child officially got a diagnosis of PANS/PANDAS? Was it your first doctor? Was it your fifth? Were you devastated? Were you relieved to have an answer and the start of a treatment plan? Was your child diagnosed incorrectly prior to that? Email us at ASPIRE us your Diagnosis Day Story.  Or submit your full Personal or Family PANS PANDAS Story.

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Susan Swedo, MD on Autoantibody Biomarkers for Basal Ganglia Encephalitis

Susan Swedo, MD on Autoantibody Biomarkers for Basal Ganglia Encephalitis

Published: Jun 26, 2020   |   Author: Gabriella True   |   Category: Blog, Clinicians, Featured on Homepage   |   Tags: , , ,   |   6 Comments

Dr. Swedo briefly explains the importance of this research and its results. 

The Frontiers article is an important replication and extension of previous work by Dr. Madeleine Cunningham and her colleagues. The investigation reports results of assays done on samples obtained from 60 PANDAS patients, 8 children with Sydenham chorea, and 2 “control” groups — children with other psychiatric/neurologic disorders (25 with OCD, 18 with attention deficit hyperactivity disorder (ADHD) and 18 with Tourette disorder), and 28 healthy controls. 

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Lyme Disease & Tick Borne Infections Fundamentals

Lyme Disease & Tick Borne Infections Fundamentals

Published: Jun 25, 2020   |   Author: Gabriella True   |   Category: Blog, Featured on Homepage, Tick-Borne Illness   |   Tags: , , ,   |   No Comments

Lyme ­­is it Affecting My Child? You Bet Your Rash & Other Signs, Symptoms, and Treatments   Nancy O’Hara, MD, MPH, FAAP, a member of the ASPIRE Professional Advisory Board, presented on Lyme Disease, Tick-Borne Illness and Co-infections as part of the NECH Educational Series. This presentation is divided into 5 separate posts. Section 1: […]

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PANS PANDAS Parents & Therapy

PANS PANDAS Parents & Therapy

Published: Jun 19, 2020   |   Author: Gabriella True   |   Category: Blog, Families, Parents, & Caregivers, Featured on Homepage   |   Tags: , , ,   |   2 Comments

ASPIRE sits down with Julie Cox, LCSW, to discuss why therapeutic strategies can be beneficial to PANS PANDAS parents and caregivers, how not to pathologize everything, and ways to accept that the healing journey is often slower than we would like it to be.

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Antibodies From Children With PANDAS Bind Specifically to CINs and Alter Their Activity

Antibodies From Children With PANDAS Bind Specifically to CINs and Alter Their Activity

Published: Jun 17, 2020   |   Author: Gabriella True   |   Category: Blog, Clinicians, Featured on Homepage   |   Tags: , , , ,   |   No Comments

Interview with Christopher Pittenger, MD on the study: Antibodies From Children With PANDAS Bind Specifically to Striatal Cholinergic Interneurons and Alter Their Activity ASPIRE sat down with Christopher Pittenger, MD, PhD, FAPA, FANA. He is an Associate Professor of Psychiatry; Assistant Chair for Translational Research, Psychiatry; Director, Yale OCD Research Clinic; Co-Director, Neuroscience Research Training […]

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The Heartwood Program for PANS PANDAS

The Heartwood Program for PANS PANDAS

Published: Jun 10, 2020   |   Author: Gabriella True   |   Category: Blog, Clinicians, Families, Parents, & Caregivers, Featured on Homepage   |   Tags:   |   4 Comments

Announcing The Heartwood Program – Dr. Susan Swedo’s Consultation Practice! ASPIRE is pleased to share news from Dr. Susan Swedo, ASPIRE ex-officio Board Member regarding the opening of her new consultation practice in Bethesda, MD. Please note, that due to recent changes in telehealth rules, families won’t have to travel to the Heartwood Program’s offices […]

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PANS PANDAS Awareness with Romy of Tourettics Unite

PANS PANDAS Awareness with Romy of Tourettics Unite

Published: Jun 6, 2020   |   Author: Gabriella True   |   Category: Blog, Featured on Homepage, Personal Stories   |   Tags: ,   |   No Comments

Romy runs an Instagram and Facebook account Tourettics Unite to spread awareness on Tourettes, OCD, and PANS/PANDAS. She and I have been touch a little bit over the past few months, and I have been impressed by her work. Recently Romy shared a video of her reciting a poem about OCD and Mental Health that I want to share with you all. So we sat down remotely and talked about her story, her recent efforts to pursue a PANS PANDAS diagnosis and treatment, and why she wants to help spread understanding about these conditions.

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NATCON Behavioral Health Presentation

NATCON Behavioral Health Presentation

Published: Jun 5, 2020   |   Author: Gabriella True   |   Category: Blog, Clinicians, Featured on Homepage   |   No Comments

ASPIRE created an electronic poster for the National Council for Behavioral Health (NATCON) conference. The poster is really a mini-website with a comprehensive overview of PANS/PANDAS including important information on Behavioral Health.  The ASPIRE e-poster for NATCON is available to the public to view. The National Council for Behavioral Health is the unifying voice of […]

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