New Autism Rates Published – 1 in 44

New Autism Rates Published – 1 in 44

Published: Dec 2, 2021   |   Author: Gabriella True   |   Category: Blog, Clinicians, Families, Parents, & Caregivers, Featured on Homepage   |   Tags:   |   No Comments

CDC’s Autism Numbers The CDC has released the new estimated Autism Prevalence rates. They report that 1 in 44 or 2.27% of American 8-year-olds have an autism spectrum disorder (ASD) as surveyed in 2018. This was a 23% increase over two years ago when the CDC said the estimated numbers were 1 in 54 in […]

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Severe Eating Disorder Due to PANS PANDAS

Severe Eating Disorder Due to PANS PANDAS

Published: Nov 15, 2021   |   Author: Gabriella True   |   Category: Blog, Featured on Homepage, Personal Stories   |   No Comments

Our family and B have gone through so much since December 2018. It has been completely devastating emotionally, mentally, physically, and financially. At the time, there didn’t seem to be an end in sight, there didn’t seem to be any light at the end of this very dark tunnel but I never and will give […]

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Experiences of Families and Patients Affected with PANS PANDAS

Experiences of Families and Patients Affected with PANS PANDAS

Published: Nov 11, 2021   |   Author: Gabriella True   |   Category: Blog, Current Studies, Featured on Homepage   |   No Comments

You are being invited to participate in a research study of the University of Connecticut, called Experiences of Families Affected by PANS/PANDAS Around the World. Patients and parents of patients are invited to participate. The purpose of this study is to examine the experiences of families accessing adequate care, following the recommendations by clinicians, and […]

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”I Am Not Alone” – PANDAS/PANS Awareness Day 2021 with Gabriella True

”I Am Not Alone” – PANDAS/PANS Awareness Day 2021 with Gabriella True

Published: Oct 5, 2021   |   Author: Gabriella True   |   Category: Blog, Events, Fundraisers, Special Projects, Featured on Homepage, Podcasts   |   No Comments

Learning to Slay the Beasts Podcast Gabriella True, ASPIRE President, sits down with Sara German of Learning to Slay the Beasts Podcast, to talk all things PANS PANDAS and Autism. They discuss everything from what are the biggest challenges families face to key challenges to increasing awareness. The Learning to Slay the Beasts podcast focuses […]

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Clinical Features in Patients With PANDAS/PANS and Therapeutic Approaches: A Retrospective Study

Published: Sep 30, 2021   |   Author: Gabriella True   |   Category: Blog, Research   |   No Comments

Rea I, Guido CA, Spalice A. Clinical Features in Patients With PANDAS/PANS and Therapeutic Approaches: A Retrospective Study. Frontiers in Neurology. Vol. 12, 2021. DOI=10.3389/fneur.2021.741176   62 patients with a clinical diagnosis of PANDAS/PANS. 15 with PANS. 47 with PANDAS Mean age at onset of PANDAS/PANS symptoms was 6.2 ± 1.2 years 6.2 for PANDAS. 6.0 […]

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Postnatal immune activation causes social deficits in a mouse model of tuberous sclerosis: Role of microglia and clinical implications

Published: Sep 29, 2021   |   Author: Gabriella True   |   Category: Blog, Research   |   No Comments

Manuel F. López-Aranda, Ishanu Chattopadhya, Gayle M. Boxx, Elizabeth R. Fraley, Tawnie K. Silva, Miou Zhou, Miranda Phan, Isaiah Herrera, Sunrae Talomam Rochelle Mandanas, Karen Bach and Michael Gandal and Daniel H. Geschwind, Genhong Cheng, Andrey Rzhetsky and Stephanie A. White, Alcino J. Silva. Postnatal immune activation causes social deficits in a mouse model of […]

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Rhode Island Family Court Judicial Conference

Rhode Island Family Court Judicial Conference

Published: Sep 28, 2021   |   Author: Gabriella True   |   Category: Blog, Events, Fundraisers, Special Projects, Featured on Homepage   |   No Comments

Is It Mental Health or Medical? PANDAS/PANS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infection/Pediatric Acute-onset Neuropsychiatric Syndrome) The Family Court was created to focus special attention on individual and social problems concerning families and children. Consequently, its goals are to assist, to protect, and if possible, to restore families whose unity or well-being is […]

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Ben’s Cookie Fundraiser for PANS PANDAS!

Ben’s Cookie Fundraiser for PANS PANDAS!

Published: Sep 28, 2021   |   Author: Gabriella True   |   Category: Blog, Events, Fundraisers, Special Projects, Featured on Homepage   |   No Comments

Ben is an awesome kid with PANS PANDAS. He has fought the hard battle and is winning!  Now, he wants to give back to our fantastic community by hosting a fundraiser for ASPIRE. And really, who doesn’t like cookies? These are not just cookies; they are STUFFED cookies from The Cookie Castle Company! 50% of […]

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