ASPIRE Blog

We’re all better people because Mick is in our family. I’ve seen my other son choose his friends based on how they treated his brother. My wife and I have become advocates and helped when we can with a nonprofit. But we’ve all been tested over and over. Everyone is needy, and when you have […]

Identifying PANS and PANDAS: How to Start Your Family’s Healing Journey Brought to you by Center for Fully Functional Health As a parent, it can be a challenge when you don’t feel well. But when your child is struggling, it turns your whole world upside-down. If your child has multiple symptoms that are seemingly unrelated […]

How therapy can help support a sibling of a child with PANS PANDAS Counseling can serve many purposes and each family’s specific needs should drive goals. Children with siblings with special needs often have many challenges and struggles in common. These siblings experience an array of stressors and feelings that can increase their risk for […]

ASPIRE to Move Mountains Together Bracelets   Why Move Mountains Together? PANS PANDAS is a rough road and a significant obstacle to overcome, and we need our community’s help to get over that big mountain. When you feel alone at home while you deal with PANS PANDAS, know that you are not; many of us […]

Development and Retention of Fine Motor and Handwriting Skills By Jennifer Leiman M.S. OTR/L PANS PANDAS can affect many aspects of daily functioning. One of the categories of the PANS diagnostic criteria is Decline in Academic Skills. This category of symptoms includes a wide range of functional skills, including a decline in handwriting abilities and […]

April 23-25 Your roadmap to breaking free from anxiety, ADHD, OCD, mood issues and behavioral problems I think we can all agree that we are living through difficult times… I know how much harder things have been since 2020 – and still now in 2021 – and even more so if you’re a parent whose […]

My goal in the future is to take what I have learned about PANDAS and to help spread awareness about the disorder so that others can better navigate their own experiences with children who have PANDAS. 

My oldest child was diagnosed with PANDAS at 6 and a half years old after sudden onset. At the height of her symptoms, my youngest was turning 2. I noticed immediate changes in the younger child, who was still learning about the world around her and mimicking behaviors. She went from previously being a very […]

Are you in New York State? Help secure legislation mandating insurance coverage for PANS PANDAS in New York. No experience necessary.

“The University of Arkansas for Medical Sciences-Arkansas Children’s Hospital (UAMS-ACH) Childhood Post-Infectious Autoimmune Encephalopathy (CPAE) clinic specializes in diagnosis and treatment of PANS/PANDAS. The CPAE clinic is led by Dr. Veronica Raney, M.D., a pediatric psychiatrist, and Dr. Aravindhan Veerapandiyan, M.D., a pediatric neurologist. The UAMS-ACH CPAE clinic is a part of the PACE Foundation […]

ASPIRE Board Members hosts Comitato Italiano Genitori in a discussion on PANS PANDAS Webinar: Wednesday, April 28th – 10:00am – 12:00pm EST Featuring ASPIRE Board Members: Susan Swedo, MD and Gabriella True They will clarify the most frequent questions that Italian parents from Comitato Italiano Genitori ask about diagnosis and treatment.

Print and take to your next appointment! You do not want to leave an appointment with more questions than you had going in. You need to clarify the lab results, what they mean, and what treatments will address the results. Many doctors are hard to reach between appointments and charge for that consulting time, so […]