Love Conquers All – A PANS PANDAS Poem
As a mom with a child who had been battling PANDAS/PANDA, I know how devastating living thru it is and how hopeless at times you can feel. I felt inspired to write this poem from my experiences and...
May 7, 2021
Mother of 10-year-old battling tick-borne disease: ‘his brain is on fire’
“In Finn’s case, Lyme Bartonella Mycoplasma have been identified as triggers. The disease leads to rage, exhaustion, panic attacks, among other symptoms,” Dean said. “It’s been just...
May 7, 2021
CEU Podcast on PANS PANDAS
“My Child Just Went Crazy One Day”: What You Need to Know about PANS & PANDAS, Ep. 125 CEU podcasts for social workers, psychologists, therapists, clinical counselors, and addiction...
May 7, 2021
Autoimmune Encephalopathy/ PANS Flares and the Link to Seasonal Allergies
April 8, 2019. Somer Delsignore “Many children with PANS/ Autoimmune Encephalopathy who seem to flare despite having a good treatment plan perhaps forget the inflammation of a seasonal allergy....
Paediatric Acute onset Neuropsychiatric Syndrome: Exploratory study finds no evidence of HLA class II association but high rate of autoimmunity in first‐degree relatives
Elisabeth Fernell, Mikael Sundin, Anders Fasth, Lisa Dinkler, Martyna Galazka, Christopher Gillberg, Mats Johnson Acta Paediatr. DOI: 10.1111/apa.15805
Conclusion
No HLA allele association such as seen in children with narcolepsy after H1N1 immunisation could be confirmed in this group of children with PANS. However, more than half the group had a first‐degree relative with a diagnosed autoimmune disease.
SARS-CoV-2 related Paediatric Acute-onset Neuropsychiatric Syndrome
Piero Pavone, Manuela Ceccarelli, Silvia Marino, Daniela Caruso, Raffaele Falsaperla, Massimiliano Berretta, et al. Lancet Child Adolesc Health. 2021 . May 04, 2021DOI:10.1016/S2352-4642(21)00135-8
“Post-infectious, autoimmune, and neuro-inflammatory events are the main mechanisms of Paediatric Acute-onset Neuropsychiatric Syndrome (PANS).4 PANS presents with a sudden onset of obsessive-compulsive disorder (OCD) or a severely restricted food intake, and concurrent neuropsychiatric symptoms and motor dysfunction.4 The estimated prevalence of OCD in childhood and adolescence is 0·25–4·00%, with those aged between 16–18 years (1%) having the highest prevalence.5, 6, 7 Here, we report on two unrelated children with PANS that started 2 weeks after a positive COVID-19 nasopharyngeal swab.”
May 4, 2021
‘PANS’ – The little-known syndrome going undiagnosed in Australian children
9 News Australia. By Emily McPherson. May 4, 2021 Read Article “It’s a really common and there is a very big story that if you have the wrong kind of brain genes and immune genes you can...
May 3, 2021
One Hope Wine Fundraiser for ASPIRE
Please support Gianfranco’s Online Wine Fundraiser Gianfranco’s daughter was diagnosed with PANS PANDAS three years ago. ASPIRE is so thankful that he has chosen to do a fundraiser for us...
May 2, 2021
School Evaluations for PANS PANDAS
There are several areas to consider evaluating students with PANS PANDAS in order to determine areas for support and accommodations. It is important to note that due to the relapsing-remitting...
May 1, 2021
Poster Session at NATCON 2021 on PANS PANDAS
Children brought to behavioral health clinics with a sudden onset of changes in behavior and/or mood are often misdiagnosed and mistreated because clinicians don’t know the signs and symptoms of...
April 28, 2021
PANS/PANDAS Guidelines for Children with Autism
ASPIRE’S Professional Advisory Board publishes PANS/PANDAS Guidelines for Children with Autism Download and Share Today! No one should be denied a proper evaluation of PANS PANDAS. Members...
April 28, 2021
Rhode Island Call to Action – Bill Amendment to Include Insurance Coverage for PANS PANDAS
Submit Written Testimony & Sign up to Provide Verbal Testimony in support of insurance coverage Written Testimony Due: 2:00 PM on Thursday, April 29, 2021 The State House continues to be closed...