April 7, 2023
Oregon PANS PANDAS Updates
Please support NWPPN’s lead to mandate insurance coverage for PANS...
Posts found in:
Legislation
March 12, 2023
Iowa PANS PANDAS Updates
The deadline to make the first funnel is March 4th. Calls/emails really need to be made by Monday, March 1st as this committee generally only meets on...
January 31, 2023
New York PANS PANDAS Updates
Are you in New York State? Help secure legislation mandating insurance coverage for PANS PANDAS in New York. No experience...
January 30, 2023
West Virginia PANS PANDAS Updates
WV needs your help asking legislators to support HB 2252: Requiring insurance coverage for treatment of pediatric autoimmune neuropsychiatric...
September 21, 2022
Texas PANS PANDAS Updates
On November 13, 2020, The Texas Pediatric Acute-Onset Neuropsychiatric Syndrome Advisory Council met for the first...
July 2, 2022
Rhode Island PANS PANDAS Updates
Senate Bill No. 2203 SUB B Passes Senate Bill No. 2203 SUB B as amended and House Bill No. 7503 SUB B as amended have passed!! We are now waiting for...
April 16, 2021
Ohio PANS PANDAS Updates
WE HAVE A CALL TO ACTION for House Bill #488 that requires insurance coverage for PANDAS/PANS kids in...
March 27, 2021
ASPIRE Participates in Rare Across America
Rare Across America Congressional Meetings Make an impact on federal policy from close to your home. Share your rare disease story. Meet other rare disease advocates. ASPIRE joined several...
March 14, 2021
Illinois PANS PANDAS Updates
Three laws have been passed to help PANS/PANDAS families with insurance coverage. Named after two of the children of the advocates that drove the legislation, Charlie’s Law of 2017, was...
March 3, 2021
Parents Push for Legislation That Would Help Children Living With PANDAS or PANS
DES MOINES, Iowa – This week brings one of the first significant deadlines at the Iowa statehouse. However, for some Iowa families dealing with a rare disease, one bill could bring hope. Parents...
February 23, 2021
ASPIRE signs on to letter to FDA regarding Complex Generics
ASPIRE cosigned the Association for Accessible Medicines’ letter to the FDA urging them to prioritize patient access to more safe, effective, and affordable complex generic medicines in Generic...