In response to the COVID-19, a global pandemic, that has affected all of our lives, ASPIRE is putting together a series of Q&As from a variety of professionals. We will be updating this resource...
Governor Abbott Appoints Fourteen To Pediatric Acute-Onset Neuropsychiatric Syndrome Advisory Council Governor Greg Abbott has appointed Lisa Hardy, ASPIRE Board member along...
New “Buy American” requirements on medicines would limit patient access to affordable medicines and increase the risk of drug shortages during the COVID-19...
ASPIRE has joined nearly 200 organizations by co-signing a letter from Everylife Foundation to leadership in all 50 states aimed at highlighting the unique access barriers created by the coronavirus...
One might think, because PANDAS/PANS strikes children, passing the bill would be a slam dunk, but Uttam said it’s failed twice in Massachusetts already. It has, however, passed in five other...
BOSTON -- Tiffany Uttam was facing every parent’s nightmare. Her nine-year-old son became abruptly ill, and no one could seem to help. He was suddenly anxious and paranoid, hallucinating and...
Parents push for coverage, awareness of rare syndrome. Local families grappling with a rare and elusive syndrome will make the case for greater acknowledgement and support at the State House...
In 2017, then-Gov. Bruce Rauner signed into law what was known as Charlie’s Law that required insurance companies to cover treatment costs for certain auto immune diseases in children. One...
CHICAGO (Reuters) - Illinois became the first state in the country on Tuesday to enact a law requiring insurers to cover medical treatment for two pediatric autoimmune disorders. Illinois Governor...