Your support helps
to shorten the time between the onset of PANS/PANDAS symptoms and treatment. By funding education & advocacy, you’re driving needed change.
Your year-end donation creates a lasting impact—one patient, one family, one future at a time.
2024 Year in Review
Empower. Support. Donate.
With your help, ASPIRE continues to educate medical professionals, legislators, educators, and families about PANS/PANDAS while advocating for affordable, proven treatments.
PANS is a devastating disorder, but recovery is possible. Early diagnosis and treatment lead to better outcomes and less suffering. Sadly, many PANS/PANDAS patients face delays in diagnosis and treatment due to a lack of awareness. These delays can cause symptoms to worsen and become chronic.
Your donation helps to shorten the time between the onset of symptoms and the start of treatment. Together, we can change lives and create a lasting impact on the PANS/PANDAS community.
You are an integral part of making progress.
ASPIRE Programs
ASPIRE in Action – We empower and connect our community with tools and resources for advocacy, education, support, and awareness.
For full screen, click the symbol on the lower right hand of the video.
ASPIRE’s 5 Core Audiences
Your donation directly funds ASPIRE’s programs that reach five core audiences to increase education and understanding of PANS PANDAS nationally while providing critical support to all community members. Please help ensure that ASPIRE can educate the medical, legislative, school, and family communities about PANS/PANDAS.
We can’t do it without you.
- National General Public
- Families & Patients
- Schools & Educators
- Legislators
- Providers & Researchers
Expanding Audience
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16,000+ Followers on Social Media
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9,0000+ Newsletter Subscribers
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4,100+ ASPIRE Facebook Group Members
Our social media following is growing daily; for many, it’s their first introduction to PANS/PANDAS. By sharing our posts—not just on Awareness Day but every week—you help us expand our reach and spread awareness. Together, we can grow our community beyond the 250,000+ we already reach across Facebook, Instagram, Twitter, LinkedIn, and YouTube.
Since launching the ASPIRE Facebook Group, we’ve built a thriving community of over 4,100 parents, caregivers, and adult patients. The FB Group is a hive of support and information for those navigating PANS/PANDAS. If you’re eligible, join us today!
And don’t forget to subscribe to our newsletter—you’ll stay in the loop on upcoming events and important updates.
You Can Make the Difference
Your donation directly supports families and patients, helping us continue to provide vital resources and one-on-one guidance
Supporting Community
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2,000+ Support Emails Answered
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30 ChitChat Support Meetings Held
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10 ChitChat Locations/Topics Provided
One-on-One Support
We provided one-on-one support to an unprecedented number of families and individuals. Over 2,000 parents, caregivers, and adult patients reached out to us for guidance—doubling the support we’ve provided in a single year before. We’re committed to being there for our community, one person at a time.
Introducing ChitChat Support Meetings
In response to our community’s growing need for connection and support, we launched the ASPIRE ChitChat Support Program! These meetings, held online or in person, provide a vital space for parents of children with PANS and adults with PANS to connect and share.
This year, we hosted over 30 ChitChat meetings across 10 locations and topics. Next year, we will double that, expanding to 20 locations and topics, with even more on the horizon!
Locations – Connecticut – Ohio – Midwest Regional- South & North Carolina – New York – Nebraska – Maryland – Mountain Regional – Alabama – Lousiana – Southeast Regional – Illinois – Missouri. More coming soon.
Special Topics – Adult Community – Restricted Eating – Homeschooling – Parents of Adults. More coming soon.
Thank You to Our Volunteers
We’re deeply grateful for our incredible volunteers who dedicate their time to leading ChitChat meetings and supporting our community.
Increasing Outreach
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23 Professional Developmental Lectures
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14 #LightUp4 PANS Locations
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33 Outreach Events
Your Support in Action
Your donations help us expand awareness and education on PANS/PANDAS, reaching beyond our immediate community. We cannot move the needle forward without your support.
School In-Service & Professional Development Lectures
Thanks to your donations, this year, we provided 23 professional development lectures to schools, nurses, and healthcare professionals nationwide, with audiences of 5 to 200 attendees. Our School In-Service program continues to receive phenomenal feedback and is one of our proudest achievements.
Lighting Up the World for Awareness
For Awareness Day on October 9th, ASPIRE joined forces with 15 advocacy organizations to light up over 195 structures globally. ASPIRE had 14 locations lit up nationwide, and many held awareness events. A highlight was seeing Paycor Stadium lit up green in honor of our community! We hope you find the video and photographs as awesome as we do!!
Donors like you keep these critical programs thriving.
Your support ensures families and patients have the resources they need for hope and healing.
Increasing Education
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32,0000+ Views of ASPIRE Webinars
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10 New Handouts & Articles Written
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9,000+ Education Materials Downloaded
Empowering Through Knowledge
One of ASPIRE’s primary goals is to transform complex information about PANS/PANDAS into clear, actionable resources that empower our community.
Sharing Materials That Make a Difference
We’ve created over 50 toolkits, handouts, worksheets, and posters to support families, patients, and professionals. These resources have been downloaded more than 9,000 times—and that’s just for the materials we track! Many organizations also print hundreds of our toolkits to distribute at conferences and meetings. Some of our most popular brochures and toolkits include:
- Consider PANS/PANDAS Flyer
- Provider Information Toolkit
- Comprehensive Education Toolkit
- PANS Guidelines for Children with Autism Toolkit
- PANS & Eating Disorders Toolkit
Webinars
Our webinar library continues to be a valuable resource for our community. Covering five key learning categories, our webinars are available on demand for convenient viewing: Treatment & Scientific Updates, Behavioral Health, Integrative Medicine, School Support, and Family & Patient Support. We’re also editing several new webinars to expand this growing resource. Visit our webinar section to explore the full library!
Our 8-minute About PANS/PANDAS video has been viewed over 16,000 times and is the perfect introduction to these conditions. It’s a staple at our conference booths. Additionally, two essential companion videos from Dr. Susan Swedo highlight critical insights: The Importance of Prompt Recognition and Appropriate Treatment of PANS/PANDAS and The Cost of Inaction.
Expanding Knowledge
We’re constantly updating our website to build a comprehensive library of research, news articles, books, podcasts, lectures, and more. Explore our resources and stay informed!
Supporting Legislation
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13 States Supported
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Attended NAPPA Legislative Day in DC
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1 ASPIRE Legislative Working Group Formed
Advocacy and Legislative Action
Thanks to your support, we formed the ASPIRE Legislative Working Group (ALWG) this year. The ALWG brings together teams from The Look Foundation, Northwest PANS PANDAS Network, The Alex Manfull Fund, VA4PA, and the CalCoalition. Together, we’re strengthening local advocacy efforts and expanding ASPIRE’s legislative advocacy resources for state leads, enabling them to drive critical change.
Your donations made it possible for us to participate in NAPPA’s federal legislative day in Washington D.C. We hope to see even more of you join us in 2025 as we continue to push for change at the federal and state levels!
Donors like you are the driving force behind this important work.
Achieving the ASPIRE Mission
We Aspire to Improve
We launched a new national organization called ASPIRE, Alliance To Solve PANS and Immune-Related Encephalopathies in July 2019. We are experienced local, regional, and national nonprofit leaders building on lessons learned in our organizations. Our professional experiences in allied health professions, project management, and entrepreneurship guide our work.
We Aspire to Empower
We are actively working to bring together the patient, parent, provider, and research communities acting as a conduit to connect the stakeholders who affect outcomes of those affected by PANS/PANDAS. ASPIRE is focused on providing practical tools to increase local, state, regional, and national advocacy efforts to accelerate improvements in access to diagnosis, treatment, and quality of life for affected individuals and families. We are collaborating with experts in their field to create national programs that will empower and connect our community with tools and resources for advocacy, education, support, and awareness.
Your Year-End donation will help to close the gap between the onset of symptoms and the start of appropriate treatment. We simply can’t do it without you.
Your support will make a real, lasting impact on the lives of those who are still in need.