Tracking symptoms is a critical part of making a clinical diagnosis and forming treatment plans.
PANS/PANDAS Symptoms Tracking Tools
PANS is a clinical condition identified by an abrupt onset of a specific cluster of symptoms as a result of a variety of etiologies and disease mechanisms. Therefore, tracking symptoms, onset, severity, and duration is a critical part of making a clinical diagnosis and forming treatment plans. There are two useful PANS Symptom Rating Scale tools.
Parents should fill out the PANS Symptom Scale-Parent Version in advance of an appointment. This scale includes the core obsessive-compulsive symptoms and the associated symptoms and provides an Impairment Rating key to aid being consistent. The PANS Rating Scale Tracking Chart is simple to fill out but less detailed in its breakdown of each symptom.
Note: If your child is exhibiting behaviors that do not fit into one of the categories in these PANS/PANDAS Symptoms Tracking Tools, then write them down on a separate sheet of paper with the date they started and the severity. The doctor needs to form a comprehensive clinical picture so you should not leave anything out just because you are not sure how it fits or if it does.
PANS Rating Scale
Developed by Tanya Murphy, MD and Gail Bernstein, MD. Source: PANS/PANDAS: CLINICAL & RESEARCH UPDATE, Gail A. Bernstein, MD, 12/9/16, University of Minnesota
The PANS Rating Scale is available as a pdf and Google Sheet. The Google Sheet is protected. We created separate tabs, one for each month, to easily track each month! You can download it as an Excel spreadsheet onto your hard drive or save a copy to your own Google drive.
PANS Symptom Scale
(Parent Version) Developed by Susan Swedo, M.D., Miroslav Kovacevic, M.D., Beth Latimer, M.D., and James Leckman, M.D. with the help of Diana Pohlman, Keith Moore, and many other parents.
The PANS Symptom Scale – Parent Version, is available to download as a pdf.
Related Disorder Scales/Assessment Questionnaires
Standard symptom assessment questionnaires are available for many of the individual PANS symptoms. They can be used as validated measures for initial diagnosis and to track therapy results. Some PANS doctors and therapists will use these tools in conjunction with either of the two PANS Scales above. Caregivers and patients can also utilize these tools to communicate with their medical team effectively.
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Learn about other families whose lives have been affected by PANS/PANDAS — and be inspired to share your own.
In August of 2014 our daughter, Leah, was 6 years old. We had just returned home from a month-long trip to Illinois to visit family. When we arrived home in Arizona, she suddenly (overnight) developed a fear of vomit.
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They say that when your child has PANS/PANDAS that you often remember the exact moment something changed. For our oldest son, Neely, that “moment of change” happened in front of Dumbo in Fantasyland, he was six (first grade). As I stood there with our two-year-old in the stroller and crying and pregnant with our third […]