Share and Learn from Each Other
PANS Patient & Family Stories
Submit Your Story Today!

We all have a story to tell. It is important for those who are living with PANS/PANDAS to share their experiences with others. It lets others know that they aren’t alone. They can read what you’ve gone through and think, “this is what I needed to read today.”

Our stories are powerful. They inform, educate, and reassure. Learning what PANS is really like from families and patients provides an invaluable window into the reality of living with a PANS diagnosis. Every story is unique in its own way but all have a universal connection that ties our experiences together. We are not alone in this diagnosis. We can support and learn from each other. Please read through the stories. We highly encourage you to submit your Personal Story today!

A letter to my 14 year old self
A letter to my 14 year old self

Our friend gave ASPIRE permission to share this letter to her 14-year-old self. Many of us know how it feels to be too affected by PANS/PANDAS/BGE to go to school. We have felt how scary it is to...

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A PANS PANDAS Recovery Poem
A PANS PANDAS Recovery Poem

8 years ago, I was diagnosed with Pandas 7 years ago, I wobbled on my feet 6 years ago, I moved forward with my life 5 years ago, I realized why I was different 4 years ago, I didn’t let it break...

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Hold Onto Hope!
Hold Onto Hope!

At the age of 8, my life, as it was, was taken in a week of sickness because of the flu. I woke up with hallucinations, severe OCD, and ADHD-like symptoms. I didn’t know what was wrong with me. I...

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Healing from PANDAS is possible
Healing from PANDAS is possible

Carrie knows firsthand how much PANS PANDAS can take a toll on parents and the family. She shares her story to let other parents know there is light at the end of the tunnel, and during the healing...

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