Share and Learn from Each Other
PANS Patient & Family Stories
Submit Your Story Today!

We all have a story to tell. It is important for those who are living with PANS/PANDAS to share their experiences with others. It lets others know that they aren’t alone. They can read what you’ve gone through and think, “this is what I needed to read today.”

Our stories are powerful. They inform, educate, and reassure. Learning what PANS is really like from families and patients provides an invaluable window into the reality of living with a PANS diagnosis. Every story is unique in its own way but all have a universal connection that ties our experiences together. We are not alone in this diagnosis. We can support and learn from each other. Please read through the stories. We highly encourage you to submit your Personal Story today!

Bowl of Light – A Lyme PANS Story
Bowl of Light – A Lyme PANS Story

I have always been fascinated by the mystery, beauty and power of the mind. That is why I became a psychotherapist. Healing is not just an aspect of my career; it is a belief in the ability of the...

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Supporting Someone with PANS PANDAS
Supporting Someone with PANS PANDAS

These sage words of advice come from a girl with PANS/Autoimmune Encephalitis. She often allows people to ask her questions in her stories. One day a mom asked, how can I best support my daughter...

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Sharing Hope!
Sharing Hope!

I share our story so you know you are not alone and full healing as possible! My dear daughter 13 is fully healed! I actually came home to this tonight.  We went through a lot believe me I have been...

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Our PANDAS/PANS Story
Our PANDAS/PANS Story

Trigger Warning: Self-Harm behavior is discussed in this story. If your child has PANS PANDAS symptoms and subsequently gets diagnosed by a PANS specialist, we suggest initiating treatment right away...

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