September 4, 2024
Michigan PANS PANDAS Updates
Current Legislative Action Please visit the MI PANS/PANDAS Alliance to stay updated on how you can take legislative action in Michigan. If you are a Michigan parent of a...
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August 31, 2024
Lyla and Pickles’ Guide to PANDAS
Lyla is a spunky eight-year-old little girl with a wild imagination. Along with her best friend, Pickles, Lyla loves to go on adventures, play pretend, and enjoy being a kid. When Lyla was six years...
August 26, 2024
World PANS PANDAS Awareness Day
Volunteers Needed: We need volunteers to reach out to their municipalities to request that they light up monuments, like the state house, bridges, monuments, etc., be lit up on October 9th,...
Understanding PANS PANDAS: Insights from Those Who Live It
Straight from the Heart: Students and Young Adults Share About PANS PANDAS Download PDF version: What I Want My Friends to Know About PANS PANDAS ASPIRE surveyed students and...
PANS PANDAS Triumphs!
Recent PANS/PANDAS Triumphs Thank you to everyone who took a moment to celebrate your recent success. Your stories provide hope to other families and patients! Would you like to share...
July 22, 2024
World Brain Day 2024
World Brain Day 2024 (WBD 2024), Monday, July 22, is dedicated to Brain Health and Prevention. World Brain Day must include a discussion on PANS/PANDAS. Help us by empowering individuals,...
There is HOPE for Healing
My name is Kyra Dugan. I’m 23 now, and five years ago, I would never have been able to guess what was about to happen. Life as I knew...
June 26, 2024
IVIG Trial Recruitment is Closed
Octapharma/PACE Foundation IVIG Trial Update: 6-26-24 Read the Announcement from the PACE Foundation. Given the recent changes posted on ClinicalTrials.Gov, we wanted to update...
May 27, 2024
NEDA Walk – Hartford, Connecticut
ASPIRE will have a table at the NEDA Walk in Hartford, Connecticut! If you have registered for the NEDA Hartford Walk on June 1st, make sure to stop by the...
PANS/PANDAS Treatment brought our daughter back
My daughter has always been anxious & a worrier, and we had attributed that to her learning struggles & severe food allergies. However, no matter these struggles, she always,...
May 24, 2024
Urgent call for 2024 AAP Red Book® to update strep testing recommendations.
ASPIRE and other PANS/PANDAS organizations are joining the PANDAS Physician Network in their efforts to call to the Academy of Pediatrics to update the Red Book’s® recently published...
May 17, 2024
Mother desperate after insurance denies son’s treatment for coverage with serious brain disease
KCTV5 By Sharon Chen Published: May. 17, 2024 at 9:51 AM EDT|Updated: May. 22, 2024 at 3:48 PM EDT “IVIG is intravenous immunoglobulins or immune cells that go in and...