PANS/PANDAS and Eating Disorders Restricted eating is one of the two primary diagnostic criteria for Pediatric Acute-onset Neuropsychiatric Syndrome (PANS), yet its presentation can vary considerably...
My Head is Not My Own written by Libby, age 13 my head is not my own and i feel so alone i think that i am losing it i’m...
Resources for Kids, Teens & Young Adults with PANS/PANDAS Living with PANS/PANDAS can impact school, friendships, activities, and family life. Managing appointments, treatments, symptoms, and...
Who Shows Up—and Who Vanishes—When Your Kid Is in Trouble? By Jessica Slice September 9, 2026 This piece hit very close to home. I’ve been part of the autism community,...
As a PANS/PANDAS organization, our involvement is important. PANS/PANDAS can occur in autistic individuals, and the Plan’s increased attention to co-occurring medical conditions and...
Earlier Recognition Can Reduce Avoidable Harm and Expense PANS and PANDAS are immune-mediated conditions characterized by sudden or newly worsening neuropsychiatric symptoms, including...
Volunteers Needed: We need volunteers to reach out to their municipalities to request that they light up monuments, like the state house, bridges, monuments, etc., be lit up on October 9th,...
National Grief Awareness Day is a good time to recognize a kind of grief that is often hard to describe. For those who have PANS and PANDAS and for the...
