Inflammatory Brain Disorders in Psychological Practice: A Focus on Pediatric Acute-Onset Neuropsychiatric Syndrome Sunday, May 7th, 10:00 AM – 12:30 PM Pacific Time Presented by Zoe...
Please support NWPPN’s lead to mandate insurance coverage for PANS...
Speaker: Daniel A. Kinderlehrer, MD Webinar: Microbes and Mental Illness: Tick-Borne Infections and PANS Date/Time: Sunday, June 11th at 12:00 pm Eastern Time Register for this webinar: Via Zoom...
Speaker: Marla W. Deibler, PsyD, ABPP Webinar: Maximizing Family Support in PANS / PANDAS Date/Time: Thursday, May 18th, at 12:00pm EST Register for this webinar: Via Zoom About this Webinar...
Missouri PANS PANDAS Updates Currently, there is a proposed PANS PANDAS bill in the House – Proposed HB 1365 Requires health insurance coverage of certain pediatric disorders that would...
Thank you to everyone who took a moment to celebrate the successes of the past year so our community can carry hope into 2023! ...
Dedication to PANS/PANDAS Awareness and Advocacy with Advocate Gabriella True “It’s not always about overcoming, it’s about living.” Gabriella True Link to Podcast Episode on...
TACA’s Take Action Conference Series is an entirely new offering for TACA families. This virtual month-long opportunity will include live lectures from experts, take-action workshops,...
CDC’s Autism Numbers – 1 in 36 The newly published estimated Autism Prevalence rates by the Center for Disease Control and Prevention (CDC) report that 1 in 36 children...
Dr. Daines and the team at the CPAE Center of Excellence (University of Arizona) recently conducted a poster presentation at the AAAAI. The study demonstrates the beneficial effects of IVIG treatments for PANS patients. 11 out of 12 PANS patients showed “significant” improvement following IVIG treatment.
The significant presence of baseline hypogammaglobulinemia in children with PANS emphasizes the presumed role of immune dysfunction in disease pathogenesis, especially given the known connection between immunodeficiency and autoimmunity (8,9). Thus, immunomodulatory interventions are presumed to have a crucial therapeutic role.
It did not assess the benefit of IVIG for OCD or Restricted Eating as the other psychiatric, and neuropsychological manifestations can sometimes overshadow OCD (1-3). Since objective post-treatment evaluations are scarce and challenging given disease complexity (5-7), the study used standardized neuropsychiatric testing to assess how (IVIG) treatment impacts cognitive function in children with PANS.
The research, as presented in the poster session, will be submitted as a journal article.
Are you in New York State? Help secure legislation mandating insurance coverage for PANS PANDAS in New York. No experience...
Georgia PANS PANDAS Action Updates The current bill HB140 has strong sponsors from the House Health Committee, but we must have support from key Republican leaders to make it...