Massachusetts PANS PANDAS Updates For all updates and more information: Please follow the Massachusetts PANS/PANDAS Legislation Facebook page. How to talk to your state representative...
Presentation Details PANS/PANDAS Symptoms and Solutions in the School Setting: An Overview for the School Nurse Presenter: Gabriella True, ASPIRE President Addendum Topic: Massachusetts...
We know about PANS/PANDAS. We need the rest of the world to catch up. Let’s talk about sharing our story and advocacy on PANS PANDAS Awareness Day I am not...
If the embedded video link does not play on this page, please watch directly on YouTube. Symposiums ASPIRE was invited by the Associazione Genitori Pans Pandas Bge Organizzazione...
After being at a play date where a mother informed me that her brother was a neurologist and we should look into PANDAS, I had no idea where to...
Just like Holden, parents often hear about PANS/PANDAS through word of mouth or knowing a family with a kiddo already diagnosed. So, keep talking about PANS/PANDAS wherever you go....
My son’s PANDAS journey began the way that most others have. B was in first grade, and one day he was our silly, mischievous, bright child; the next he...
“Oh, but he has always been like that”. Often, that is what parents hear from dismissive providers or family members when they start discussing whether their child’s...
After you read this story, imagine what it is like for all those children who are not diagnosed correctly. You can paint a pretty bleak picture in your mind...
An evidence-based guide for doctors diagnosing, testing, and treating children with PANDAS (Pediatric Autoimmune Neuropsychiatric Disorder Associated with Strep...
Finding the right doctor matters. We know there are families where the stars align and they get seen by the right doctor at the right time and get the...
It was a sunny day in September 2007 when Garrett Pohlman, then seven years old, came home from school. Crying, he warned his mother that radiation was coming out of the house’s electrical sockets....