March 25, 2022
Georgia PANS PANDAS Updates
Call to Action: Call and email the Georgia Senate Health and Human Services Committee to vote yes for HB1484 now through the weekend. The meeting and vote are Monday at 7:00 a.m. CTA...
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March 22, 2022
Pill Swallowing Techniques
Bonnie Kaplan at the University of Calgary in the Behavioural Research Unit / Dept of Paediatrics has worked with hundreds of children and adults to develop a way to learn how to swallow pills. This...
March 15, 2022
Rhode Island Call to Action – Insurance Coverage for PANS PANDAS
Rhode Island Update & New Call To Action Senate Bill No. 2203 Bill Update: 03/03/2022 Committee recommended measure be held for further study Bill Information: Senate Bill No. 2203 – AN ACT...
March 13, 2022
IVIG Trial Recruitment is Now Open
Octapharma/PACE Foundation IVIG Trial In cooperation with Octapharma, the PACE Foundation is pleased to announce that they are now actively recruiting candidates for the National PANS IVIG Trial....
From IVIG to PEX to Rituximab to Helminths to treat PANS
Before We have four kids; two have PANS. Charlie’s came on like a freight train in the summer of 2010 at age 5. Maddie’s PANDAS was a slower unfolding until she was nine when suddenly her...
February 21, 2022
PANDAS is Autoimmune Encephalitis
"Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal infection or PANDAS can also be called post-streptococcal autoimmune basal ganglia...
February 19, 2022
Conference: Autoimmune Encephalopathy Secondary to Infectious Disease
Register to Watch Virtually Conference videos are available until May. Please note, if you are having problems accessing the conference, please first check your spam folder for an email with your...
February 18, 2022
About PANS PANDAS from ASPIRE Video
Learn more about PANS PANDAS PANS PANDAS are misdirected immune responses that result in acute onset of OCD, tics, and/or restricted food intake, along with two neuropsychiatric symptoms in seven...
February 17, 2022
Protecting Your Child from the Child Protection System
What would you do if you thought the government was coming to take your child? Protecting Your Child explains the child protection system—what it is, the way it works, and how to navigate your way...
February 17, 2022
NEDAwareness Week Organizational Partner
One of the primary symptoms of PANS is Severe Eating Restriction. Over 50% of PANS patients will have non-life threatening eating restrictions but more severe than picky eating. While 17% will...
February 15, 2022
Sibling Support
We know there is no parenting playbook; there certainly isn’t one when you add PANS/PANDAS to the mix. As parents, we are often second-guessing our decisions. So, as you read this section on...
February 8, 2022
Enroll Today – Experience of Caregivers of Children with PANS/PANDAS
Attention Parents and Guardians of children with PANS/PANDAS! The University at Buffalo occupational therapy program is conducting a study of caregiver experiences and stress among parents/guardians...