Marblehead mom urges lawmakers to support PANDAS/PANS bill

One might think, because PANDAS/PANS strikes children, passing the bill would be a slam dunk, but Uttam said it’s failed twice in Massachusetts already. It has, however, passed in five other states, including New Hampshire, where Gov. Chris Sununu signed it into law just last week. Uttam said she fears lawmakers are hesitant to pass the bill because they believe it will add $5 million to healthcare costs over five years, but that isn’t true. That number is based on the idea that every child suffering from PANDAS/PANS needs IVIG, when in fact it’s a very small percentage, she said.

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