New York State Updates

Senate Bill S5332 and Assembly Bill A877- Relates to insurance coverage for pediatric acute-onset neuropsychiatric syndrome

 

Call to Action: Currently, both bills are sitting in committee and are not being brought to the floor for a vote. If you have not done so already, please click on both the Senate and Assembly Bill Status links below. On the left side of each page, there is a small box that says “do you support this bill?” click “AYE or NAY”. Please click AYE and fill in your personal information.

Bills Summary: Requires health insurance policies to cover costs for pediatric acute-onset neuropsychiatric syndrome rehabilitation treatment.

 
Senate Bill S5332 Information:

Bill Status: Link

Bill Language: Link

Bill Status: In Senate Insurance Committee

Co-Sponsors:

 
Assembly Bill A877 Information:

Bill Status: Link

Bill Language: Link

Bill Status: In Assembly Insurance Committee

Co-Sponsors:

  • Sandy Galef
  • Jo Anne Simon
  • Donna Lupardo
  • Steven Englebright

 


Previous Updates and Call to Actions

NY PAT NY PANS PANDAS Advocacy TeamAre you in New York State? Help secure legislation mandating insurance coverage for PANS PANDAS in New York. e have TWO bills for PANS insurance legislation. Now is the time to support them. Please help and get your friends and family and schoolteachers to act on it. WE NEED EVERYONE’S HELP! You can do this! Save our kids! We’re in this together and together, we will make the change! No experience is necessary. Simply make a phone call to your Assemblymember and Senators and tell your story and ask them to support the appropriate bill – Senate Bill #S5332 and Assembly Bill #A877?

From NYPAT
New Yorkers! We have TWO bills for PANS insurance legislation. Now is the time to support them. Please help and get your friends and family and schoolteachers to act on it. WE NEED EVERYONE’S HELP! You can do this! Save our kids! We’re in this together and together, we will make the change!  Follow NYPAT for more updates and to ask questions about the bill and other ways to get involved.

What Can You Do to Support Senate Bill #S5332 and Assembly Bill #A877?
Contact your State Senators and the Senate Insurance Committee members and Assembly Insurance Committee Members. Remember, there is a bill for the Senate and the Assembly.
What should you say?
  1. Ask Senators to support #S5332 – see below how to contact
    1. See the full S5332 Bill Relates to insurance coverage for pediatric acute-onset neuropsychiatric syndrome
  2. Ask Assemblymen to support #A877 – see below how to contact
    1. See the full A877 – Requires health insurance policies to cover costs for pediatric acute-onset neuropsychiatric syndrome rehabilitation treatment
  3. Explain it’s for insurance for PANS/PANDAS coverage (medication, IVIG if needed)
  4. Other states have laws in place: AR, DE, IL, MA, MD, MN and NH. NY is a little behind.
  5. Benefits: Saving lives, saving state and insurance companies money if we treat early and effectively
  6. Briefly share your story/your need
  7. Ask again to support the bill.
Sample Letter to Help Write Legislators

Attached is a sample letter and talking points that you, family members, friends, etc can use to write a letter to be emailed to legislators.

  • Edit the letter to personalize it.
  • Include a brief personal story about PANS PANDAS and why insurance is critical
  • Make sure you are asking legislators to support the appropriate bill
    • Senators to support #S5332 
    • Assemblymen to support #A877
  • Make sure you address the letters to the correct legislator
  • Make sure you erase/replace all words in red

Link to NYPAT Sample Letter to also be used for talking points PANS PANDAS Insurance Legislation.

Contact Your Senator and Senate Insurance Committee members

Use the Senate Insurance Committee Form to support S5332 – Click Link to fill out the Form

  • Click the link
  • Click Aye
  • Fill out your story

To find your Senator – Click Link.

To contact members of the NY Senate Insurance Committee directly without using the form above:

Contact the Assembly Insurance Committee Members

To find Assembly Insurance Committee Members – Click Link

ASPIRE Board and Professional Advisory Board Testimony Letters

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