Sammi’s Remarkable Comeback: From Struggle to Strength!
In late November of 2023, we noticed that our daughter, Sammi, had a limp. She had fallen and said her knee hurt. The next week, she began acting very tired...
Personal Stories
Bennett’s PANS PANDAS Story
Bennett was a typically developing 7-year-old boy when he started second grade, the first year back to school full time after COVID-19, without masks. That December, he came down...
Don’t Give Up – Skylar’s PANS/PANDAS Story
Hi! My name is Skylar, and I was diagnosed with PANS in October 2023 after struggling with it for around 10 years. I was 7 or 8 years old...
The Story of Emily The Great
This is the journey of Emily, who is now 16. She began experiencing PANS symptoms in 2020 during the height of COVID-19; before that, Emily was a typical kid and did all the things that girls her age...
Never Ever Give Up: Jacqueline Lembesis’ PANDAS Story
The battle with PANDAS is no joke, but there is hope. Throughout my journey, my mantra has been Never Ever Give Up. I am a fighter, a warrior, like all those with PANS/PANDAS. I have found fun ways...
Elise’s Story: PANS/PANDAS treatment after a 15+ year diagnostic delay
Elise shared the story below on her PANS/PANDAS journey at the IOCDF Conference in 2024 as part of the panel “PANS & PANDAS: What is it, What to Look For,...
Understanding PANS PANDAS: Insights from Those Who Live It
Straight from the Heart: Students and Young Adults Share About PANS PANDAS Download PDF version: What I Want My Friends to Know About PANS PANDAS ASPIRE surveyed students and...
PANS PANDAS Triumphs!
Recent PANS/PANDAS Triumphs Thank you to everyone who took a moment to celebrate your recent success. Your stories provide hope to other families and patients! Would you like to share...
There is HOPE for Healing
My name is Kyra Dugan. I’m 23 now, and five years ago, I would never have been able to guess what was about to happen. Life as I knew...
PANS/PANDAS Treatment brought our daughter back
My daughter has always been anxious & a worrier, and we had attributed that to her learning struggles & severe food allergies. However, no matter these struggles, she always,...
Share Your Triumphs From the Past Year!
Please share your success stories for ASPIRE’s Triumphs Highlights! We all know PANS PANDAS is rough (understatement) but let’s take a moment to celebrate the successes from the...
We know about PANS/PANDAS. We need the rest of the world to catch up.
We know about PANS/PANDAS. We need the rest of the world to catch up. Let’s talk about sharing our story and advocacy on PANS PANDAS Awareness Day I am not...