Classic Sudden Onset OCD Seen in PANS PANDAS
My gut told me to keep digging because up until that day my daughter did not have this struggle and I knew OCD and ASD are not sudden onset. I will never forget the first three days of our...
Personal Stories
Bowl of Light – A Lyme PANS Story
I have always been fascinated by the mystery, beauty and power of the mind. That is why I became a psychotherapist. Healing is not just an aspect of my career; it is a belief in the ability of the...
Supporting Someone with PANS PANDAS
These sage words of advice come from a girl with PANS/Autoimmune Encephalitis. She often allows people to ask her questions in her stories. One day a mom asked, how can I best support my daughter...
Sharing Hope!
I share our story so you know you are not alone and full healing as possible! My dear daughter 13 is fully healed! I actually came home to this tonight. We went through a lot believe me I have been...
We’re all better people because Mick is in our family.
We’re all better people because Mick is in our family.
We’re all better people because Mick is in our family. I’ve seen my other son choose his friends based on how they treated his brother. My wife and I have become advocates and helped when we can...
PANS PANDAS Siblings – Advocates of the Future
My goal in the future is to take what I have learned about PANDAS and to help spread awareness about the disorder so that others can better navigate their own experiences with children who have...
Sibling Story – Relationship improves as symptoms improve
My oldest child was diagnosed with PANDAS at 6 and a half years old after sudden onset. At the height of her symptoms, my youngest was turning 2. I noticed immediate changes in the younger child, who...
Our PANDAS/PANS Story
Trigger Warning: Self-Harm behavior is discussed in this story. If your child has PANS PANDAS symptoms and subsequently gets diagnosed by a PANS specialist, we suggest initiating treatment right away...
Finding PANS PANDAS Treatment as an Adult
I am proud of my journey. It made me the person I am today. I still have a while until recovery, but my progress is enough to motivate me to keep...
Finding the Right Fit at School for PANS PANDAS
I think the biggest thing you can do for your PANDAS kid is never to give up on them!! Find what works for them and always advocate for their health and education. When someone tells you they cant...
Weaving together a partial in-school and homebound instruction
Read about one family's journey of how they handled their daughter's inability to attend in-person school full time and ultimately weaving together a partial in-school and homebound instruction...
Worry and Healthy Brain Help with Anxiety
These plushy brains are an excellent tool for my son to externalise his worries and concerns. We can take an indirect approach and talk about feelings and concerns without focusing so directly on...