PANS/PANDAS Treatment brought our daughter back
My daughter has always been anxious & a worrier, and we had attributed that to her learning struggles & severe food allergies. However, no matter these struggles, she always,...
Personal Stories
We know about PANS/PANDAS. We need the rest of the world to catch up.
We know about PANS/PANDAS. We need the rest of the world to catch up. Let’s talk about sharing our story and advocacy on PANS PANDAS Awareness Day I am not...
Everything changed at 4
We wish nothing but healing wishes for Stori. Stori’s mom shared her story with us on the day of PANS PANDAS Awareness Action Week, when we shared many stories....
I’m determined to educate people about this illness
Not feeling alone is sometimes one of the most important parts of our PANS/PANDAS journey. I am so glad this brave 11th grader shared her story. Others see she...
Sudden onset and Tick-Borne illness does happen
Often we only think of tick-borne illnesses, like Lyme disease, as having a slow, gradual onset. We see acute physical symptoms and then months later we see neurologic or...
The importance of feeling validated and finding community
After being at a play date where a mother informed me that her brother was a neurologist and we should look into PANDAS, I had no idea where to...
Not “just” ADHD
Just like Holden, parents often hear about PANS/PANDAS through word of mouth or knowing a family with a kiddo already diagnosed. So, keep talking about PANS/PANDAS wherever you go....
A Story of Restricted Eating and Binging (and a little cake baking)
My son’s PANDAS journey began the way that most others have. B was in first grade, and one day he was our silly, mischievous, bright child; the next he...
Finally back in school and feeling better!
After you read this story, imagine what it is like for all those children who are not diagnosed correctly. You can paint a pretty bleak picture in your mind...
A Sydenham’s Chorea Story
Sydenhams Chorea is the prototype disorder for PANDAS. If you or your child has chorea movements, it is important to get a correct diagnosis. One may have an easier...
2022 PANS PANDAS Triumphs!
Thank you to everyone who took a moment to celebrate the successes of the past year so our community can carry hope into 2023! ...
March 27, 2023
Live Your Life, Not Your Diagnosis
Dedication to PANS/PANDAS Awareness and Advocacy with Advocate Gabriella True “It’s not always about overcoming, it’s about living.” Gabriella True Link to Podcast Episode on...