Fifteen Years Misdiagnosed: My PANS Journey
⚠️ Trigger Warning: This story contains references to self-harm, suicidal thoughts, and substance use. Mature audiences only. ⚠️ A young adult endured years of psychiatric hospitalizations,...
Personal Stories
Haylie’s Healing Journey: A Story of Strength and Resilience
The key to treatment was aggressive intervention. But finding the right doctors was a battle. Most practitioners were unaware of PANS or didn’t believe in its severity. We were lucky to get a...
IVIG Stopped Ella’s Self-Harm
Trigger Warning: Self-Harm & Suicide The following story discusses experiences with self-harm, suicidal thoughts, and psychiatric hospitalization. If you are sensitive to these topics, please...
Share Your Triumphs From the Past Year!
Share Your Triumphs: Celebrating Wins in the PANS/PANDAS Journey We all know that living with PANS/PANDAS is an uphill battle—sometimes a mountain climb. But as we approach the...
Sammi’s Remarkable Comeback: From Struggle to Strength!
In late November of 2023, we noticed that our daughter, Sammi, had a limp. She had fallen and said her knee hurt. The next week, she began acting very tired...
Bennett’s PANS PANDAS Story
Bennett was a typically developing 7-year-old boy when he started second grade, the first year back to school full time after COVID-19, without masks. That December, he came down...
Don’t Give Up – Skylar’s PANS/PANDAS Story
Hi! My name is Skylar, and I was diagnosed with PANS in October 2023 after struggling with it for around 10 years. I was 7 or 8 years old...
The Story of Emily The Great
This is the journey of Emily, who is now 16. She began experiencing PANS symptoms in 2020 during the height of COVID-19; before that, Emily was a typical kid and did all the things that girls her age...
Never Ever Give Up: Jacqueline Lembesis’ PANDAS Story
The battle with PANDAS is no joke, but there is hope. Throughout my journey, my mantra has been Never Ever Give Up. I am a fighter, a warrior, like all those with PANS/PANDAS. I have found fun ways...
Elise’s Story: PANS/PANDAS treatment after a 15+ year diagnostic delay
Elise shared the story below on her PANS/PANDAS journey at the IOCDF Conference in 2024 as part of the panel “PANS & PANDAS: What is it, What to Look For,...
Understanding PANS PANDAS: Insights from Those Who Live It
Straight from the Heart: Students and Young Adults Share About PANS PANDAS Download PDF version: What I Want My Friends to Know About PANS PANDAS ASPIRE surveyed students and...
PANS PANDAS Triumphs!
Recent PANS/PANDAS Triumphs Thank you to everyone who took a moment to celebrate your recent success. Your stories provide hope to other families and patients! Would you like to share...