Thoughts on being a parent of a medically complex child after today
The endless advocating is always 100% worth...
Personal Stories
On Having a PANS PANDAS and Tourette Syndrome Diagnosis
So, I noticed Sam posting about Tourette Syndrome (TS), Obsessive Compulsive Disorder (OCD), and PANS PANDAS (PP) on Instagram a few months ago. And my first thought was – oooh...
Love Conquers All – A PANS PANDAS Poem
As a mom with a child who had been battling PANDAS/PANDA, I know how devastating living thru it is and how hopeless at times you can feel. I felt inspired...
Classic Sudden Onset OCD Seen in PANS PANDAS
My gut told me to keep digging because up until that day my daughter did not have this struggle and I knew OCD and ASD are not sudden onset. ...
Bowl of Light – A Lyme PANS Story
I have always been fascinated by the mystery, beauty and power of the mind. That is why I became a psychotherapist. Healing is not just an aspect of my career;...
Supporting Someone with PANS PANDAS
These sage words of advice come from a girl with PANS/Autoimmune Encephalitis. She often allows people to ask her questions in her stories. One day a mom asked, how can...
Sharing Hope!
I share our story so you know you are not alone and full healing as possible! My dear daughter 13 is fully healed! I actually came home to this tonight. ...
We’re all better people because Mick is in our family.
We’re all better people because Mick is in our family.
We’re all better people because Mick is in our family. I’ve seen my other son choose his friends based on how they treated his brother. My wife and I have...
PANS PANDAS Siblings – Advocates of the Future
My goal in the future is to take what I have learned about PANDAS and to help spread awareness about the disorder so that others can better navigate their own experiences with children who have...
Sibling Story – Relationship improves as symptoms improve
My oldest child was diagnosed with PANDAS at 6 and a half years old after sudden onset. At the height of her symptoms, my youngest was turning 2. I noticed...
Our PANDAS/PANS Story
Trigger Warning: Self-Harm behavior is discussed in this story. If your child has PANS PANDAS symptoms and subsequently gets diagnosed by a PANS specialist, we suggest initiating treatment right away...
Finding PANS PANDAS Treatment as an Adult
I am proud of my journey. It made me the person I am today. I still have a while until recovery, but my progress is enough to motivate me to keep...