We Are Brave - A PANS PANDAS Patient Story
I guess my advice for a PANDAS family would to always be there for your sick child. To always tell them that they are brave. Because we are. There may only be 1 in 200 of us, but we are the bravest...
A child's perspective on her journey with PANDAS
My name is Ella and I was diagnosed with PANDAS at age 13, now 15. Before PANDAS I was a four-sport athlete (basketball being my favorite), I loved hanging out with friends and family, I was doing...
"What happened to Ruth Anne?" her kindergarten teacher asked 26 years ago. She had experienced numerous infections and had tubes put in her ears. She struggled with attention and the once sweet, kind...
Romy runs an Instagram and Facebook account Tourettics Unite to spread awareness on Tourettes, OCD, and PANS/PANDAS. She and I have been touch a little bit over the past few months, and I have been...
So here we are, graduating by the skin of our teeth. Today with 13 months of sobriety. Just out of another flare in March, as allergies also trigger his immune system, he is holding a job down in a...
A Talk with Nathan Who is Recovering from PANS/PANDAS, Lyme & CIRS Gabriella: I had a chat with Dr. Nancy O’Hara, Nathan, and his mom a few years ago and...
My message to parents is to listen to your child and trust yourself. We all have strong parental instincts for a reason. I know there will be days when all you want to do is hide under the covers and...
For my son, symptom onset was not overnight. He had so many health issues starting the first few weeks of life, which continued throughout his early childhood. His body was in a near-constant state...
April 12th, 2019, is a day I will never forget. It was exactly one week after my daughter's 4th birthday, a Friday. Springtime, my favorite time of the year, the buds of my favorite wisteria, were...
Children suffering this disorder can indeed heal but early identification and correct interventions are crucial to having a successful...
My child was diagnosed at the age of 6 with severe autism. No eye contact, social skills, empathy, poor academic...
PANS Rocks! Come Join the Fun! Paint Rocks and Spread Awareness! ASPIRE spoke with Michelle Dowd, who has started a fun project for kids with PANS/PANDAS that also helps spread...