Romy runs an Instagram and Facebook account Tourettics Unite to spread awareness on Tourettes, OCD, and PANS/PANDAS. She and I have been touch a little bit over the past few months, and I have been...
So here we are, graduating by the skin of our teeth. Today with 13 months of sobriety. Just out of another flare in March, as allergies also trigger his immune system, he is holding a job down in a...
A Talk with Nathan Who is Recovering from PANS/PANDAS, Lyme & CIRS Gabriella: I had a chat with Dr. Nancy O’Hara, Nathan, and his mom a few years ago and...
My message to parents is to listen to your child and trust yourself. We all have strong parental instincts for a reason. I know there will be days when all you want to do is hide under the covers and...
For my son, symptom onset was not overnight. He had so many health issues starting the first few weeks of life, which continued throughout his early childhood. His body was in a near-constant state...
April 12th, 2019, is a day I will never forget. It was exactly one week after my daughter's 4th birthday, a Friday. Springtime, my favorite time of the year, the buds of my favorite wisteria, were...
Children suffering this disorder can indeed heal but early identification and correct interventions are crucial to having a successful...
My child was diagnosed at the age of 6 with severe autism. No eye contact, social skills, empathy, poor academic...
PANS Rocks! Come Join the Fun! Paint Rocks and Spread Awareness! ASPIRE spoke with Michelle Dowd, who has started a fun project for kids with PANS/PANDAS that also helps spread...
It is clear that not enough parents and professionals are educated about PANDAS. My pediatrician apologized to me for not diagnosing my son properly. She said that the children in her practice that...
Up until recently our PANS family story really only focused around T, but now X has own PANS story and so do I. We got lucky. We got lucky that...
The Happiest Place on Earth
They say that when your child has PANS/PANDAS that you often remember the exact moment something changed. For our oldest son, Neely, that “moment of change” happened in front of...