Needle fear is real, and you’re not alone. Whether it’s a quick blood draw or a longer infusion, anxiety can make the experience stressful. For those with PANS/PANDAS, it may...
Swallowing pills can be intimidating for many, especially for those with PANS PANDAS due to OCD, sensory issues, anxiety, or difficulty swallowing. The good news is that with some practice...
Staying well-hydrated before, during, and after IVIG can help minimize side effects like headaches, dizziness, fatigue, and muscle cramps. Here’s how to make hydration work for you: Download...
Five Tips from Kathy Rubel – ASPIRE Key Volunteer Be patient with yourself, your child, and your family. It helps to remember that OCD can be terrifying. Your child’s behaviors are...
From Gabriella True, Board President Do not give up hope. Even on the darkest days, don’t give up. I don’t need to describe them to you because we all have been...
Greg Panagos – Board Member Meet with school officials to explore education options. Remember that if the child is unable or unwilling to attend school, homeschool programs may be the...
Lisa Hardy – Board Member Educate yourself. You are your child’s greatest health advocate, and the more you know, the better. (What is PANS PANDAS) Find the most knowledgeable and...
Lucy Fry – Founding Board Member Take care of yourself. “Should the cabin lose pressure, oxygen masks will drop from the overhead area. Please place the mask over your own mouth...
Kelly Wooldridge – Board Member Be intentional with the time you spend with your non-PANS kiddos, especially if they are independent and seem to be doing “ok.” They likely need...
Christine Amabile, MSW, LCSW, C-SSWS – Key Volunteer Create a concise timeline. It should be a few typed pages to give to all providers including symptoms, treatment interventions, medications,...
Lisa Williams, a certified Divorce Coach, shares 5 tips for PANS PANDAS when the parents are divorced or separated. When divorced, have medications/supplements at both homes. Have your child’s...
Lisa Kilion – PANS Life, ASPIRE Key Volunteer Find your circle of support. As a parent of kids with PANS, find your circle, whether online or in person. You need other parents...