Five Tips from Kathy Rubel – ASPIRE Key Volunteer Be patient with yourself, your child, and your family. It helps to remember that OCD can be terrifying. Your child’s behaviors are...
From Gabriella True, Board President Do not give up hope. Even on the darkest days, don’t give up. I don’t need to describe them to you because we all have been...
Greg Panagos – Board Member Meet with school officials to explore education options. Remember that if the child is unable or unwilling to attend school, homeschool programs may be the...
Lisa Hardy – Board Member Educate yourself. You are your child’s greatest health advocate, and the more you know, the better. (What is PANS PANDAS) Find the most knowledgeable and...
Lucy Fry – Founding Board Member Take care of yourself. “Should the cabin lose pressure, oxygen masks will drop from the overhead area. Please place the mask over your own mouth...
Kelly Wooldridge – Board Member Be intentional with the time you spend with your non-PANS kiddos, especially if they are independent and seem to be doing “ok.” They likely need...
Christine Amabile, MSW, LCSW, C-SSWS – Key Volunteer Create a concise timeline. It should be a few typed pages to give to all providers including symptoms, treatment interventions, medications,...
Lisa Williams, a certified Divorce Coach, shares 5 tips for PANS PANDAS when the parents are divorced or separated. When divorced, have medications/supplements at both homes. Have your child’s...
Lisa Kilion – PANS Life, ASPIRE Key Volunteer Find your circle of support. As a parent of kids with PANS, find your circle, whether online or in person. You need other parents...
Wendy Nawara – Founding Board Member Get a pet. Pets can provide a family with a concentration other than your sickness. Assign duties and expectations of caring for the pet,...
Christine Kapetanakis – Board Member Lead with love. Do not yell or make your loved one with PANS more anxious than they are. Throw everything you know about reprimanding out...