British father Neil Gilson swam across Switzerland’s 10 largest lakes, earning a Guinness World Record while raising international awareness of PANS/PANDAS. His motivation was personal. After...
A new Newsweek story, “My 6-Year-Old Couldn’t Bear Clothes on Her Skin. Then Her Eyes Went Dark,” shares a family’s experience with the frightening changes that can accompany...
KDKA Pittsburgh September 21, 2026 An outgoing and vibrant 10-year-old girl is now fighting to feel like herself again. Her parents say their normal life changed dramatically six months ago...
Volunteers Needed: We need volunteers to reach out to their municipalities to request that they light up monuments, like the state house, bridges, monuments, etc., be lit up on October 9th,...
PANS/PANDAS and Eating Disorders Restricted eating is one of the two primary diagnostic criteria for Pediatric Acute-onset Neuropsychiatric Syndrome (PANS), yet its presentation can vary considerably...
Parents urge NJ to mandate health insurance coverage for rare pediatric condition PANS and PANDAS prompt sudden OCD and outbursts in kids, but parents face skepticism By Lilo H. Stainton...
My Head is Not My Own written by Libby, age 13 my head is not my own and i feel so alone i think that i am losing it i’m...
Resources for Kids, Teens & Young Adults with PANS/PANDAS Living with PANS/PANDAS can impact school, friendships, activities, and family life. Managing appointments, treatments, symptoms, and...
