Parents urge NJ to mandate health insurance coverage for rare pediatric condition
Parents urge NJ to mandate health insurance coverage for rare pediatric condition
PANS and PANDAS prompt sudden OCD and outbursts in kids, but parents face skepticism
Families in New Jersey dealing with PANS and PANDAS are working hard to get the care their children need. A recent article in the New Jersey Monitor highlights the stories of patients and parents who have had trouble finding doctors who understand these conditions, getting the right treatment, and making sure insurance will cover it.
One of the people featured is our friend Alissa Johnson. We are grateful to work with Alissa and the Louisa Adelynn Johnson Fund for Complex Disease. Alissa and her husband, Curt, have bravely shared their daughter Lulu’s story. By speaking out, they help other families in our community.
Alissa and the other families in the article are working to move forward Senate Bill 598 and Assembly Bill 3246. These bills would make insurance companies cover the diagnosis and treatment of PANS and PANDAS in New Jersey. We are proud to support their efforts and thankful to every patient and parent who shared their stories to help others understand the challenges families face when care is delayed or denied.
Thank you to reporter Lilo Stainton for giving these families the space to tell their stories.
If you live in New Jersey, you can find your state legislators
#panspandas #NewJersey