ASPIRE Blog

Chances are if you have PANS PANDAS, you have experienced issues with sleeping. Learn about reasons why this symptom is part of the Diagnostic Criteria.  Come learn about why Sleep Problems are part of the PANS PANDAS Diagnostic Criteria.   Sleep Disturbances in PANS PANDAS

Sleep disturbances are common in children with PANS and are part of the diagnostic criteria.  See more about the PANS PANDAS Diagnostic Criteria and Symptoms Some have trouble falling asleep at night, while others have difficulty staying asleep. One cohort from a study from the Stamford PANS Clinic “demonstrated increased onset of REM sleep (median […]

Sensory and Motor Abnormalities is one of the main categories of symptoms PANS PANDAS patients can experience. See more about PANS PANDAS Symptoms. Motor Abnormalities Like all PANS PANDAS symptoms, motor abnormalities can look different from patient to patient. Some signs of Motor Abnormalities: Tics Choreiform movements, i.e., piano fingers. Not large chorea movements as […]

A new onset of ADHD-like behaviors along with other PANS symptoms is one of the possible signs someone may have PANS PANDAS.

You are being invited to participate in a research study affiliated with the Massachusetts General Hospital, called Investigating the Impact of the Coronavirus Pandemic on Children with PANS/PANDAS,

This study evaluates the efficacy of naproxen sodium treat OCD symptoms in patients with suspected or diagnosed Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal infections (PANDAS).  

On November 13, 2020, The Texas Pediatric Acute-Onset Neuropsychiatric Syndrome Advisory Council met for the first time.

WV needs your help asking legislators to support HB 2252: Requiring insurance coverage for treatment of pediatric autoimmune neuropsychiatric disorders. 

Groundbreaking, Emmy Nominated documentary on PANDAS by Tim Sorel, My My Kid Is Not Crazy: A Search for Hope in the Face of Misdiagnosis is now available for free on Youtube.

The deadline to make the first funnel is March 4th. Calls/emails really need to be made by Monday, March 1st as this committee generally only meets on Tuesday.

ASPIRE cosigned the Association for Accessible Medicines’ letter to the FDA urging them to prioritize patient access to more safe, effective, and affordable complex generic medicines in Generic Drug User Fee Amendment (GDUFA III). Please see the list of other organizations that signed on.å

In PANS patients, all pyschometric endpoints studied exhibited statistically significant decreases following 6 cycles (infusions) of IVIG as well as durability of response for up to 46 weeks in a subset of subjects.

Patients with PANS can benefit from a 6-cycle course of IVIG. Provisional data demonstrate durability of the positive impact of IVG treatment. PANS is an autoimmune disease; innate immunity and the complement system may play a role in the pathogenesis of PANS.