Podcast/Videocast – Toxic Mold Sucks Podcast with Gabriella True

Podcast/Videocast – Toxic Mold Sucks Podcast with Gabriella True

Published: Nov 28, 2022   |   Author: Gabriella True   |   Category: Blog, Featured on Homepage, Podcasts, Videos   |   No Comments

Gabriella True is the President of ASPIRE, Alliance to Solve PANS & Immune-Related Encephalopathies. She and her two children have PANS PANDAS. She has been a leader in the PANS and autism communities since 2008. She focuses on educating about PANS PANDAS while providing crucial support to patients and families living with this disorder.

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Webinar – Julie Cox – Helping PANS Families Move From Grief to Empowerment

Webinar – Julie Cox – Helping PANS Families Move From Grief to Empowerment

Published: Nov 18, 2022   |   Author: Gabriella True   |   Category: Additional Therapies, ASPIRE Webinars, Behavioral Health, Blog, Families, Parents, & Caregivers, Featured on Homepage, Videos   |   No Comments

Speaker: Julie Cox, MSW, LCSW, PLLC Webinar: Helping PANS Families Move From Grief to Empowerment Register to View Recorded Webinar: Watch on Demand Please register even if you will not attend […]

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A Survey of Demographics, Symptom Course, Family History, and Barriers to Treatment in Children with Pediatric Acute-Onset Neuropsychiatric Disorders and Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal Infections

Published: Nov 15, 2022   |   Author: Gabriella True   |   Category: Blog, Research   |   No Comments

SL O’Dor, S Homayoun, OM.Downer, MA Hamel, JS Zagaroli, KA Williams.A Survey of Demographics, Symptom Course, Family History, and Barriers to Treatment in Children with Pediatric Acute-Onset Neuropsychiatric Disorders and […]

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New IVIG Study

New IVIG Study

Published: Oct 23, 2022   |   Author: Gabriella True   |   Category: Blog, Clinicians, Families, Parents, & Caregivers   |   Tags: , ,   |   No Comments

In PANS patients, all pyschometric endpoints studied exhibited statistically significant decreases following 6 cycles (infusions) of IVIG as well as durability of response for up to 46 weeks in a subset of subjects.

Patients with PANS can benefit from a 6-cycle course of IVIG. Provisional data demonstrate durability of the positive impact of IVG treatment. PANS is an autoimmune disease; innate immunity and the complement system may play a role in the pathogenesis of PANS.

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