Sleep Disturbances in PANS PANDAS

Sleep Disturbances in PANS PANDAS

Published: Mar 20, 2021   |   Author: Gabriella True   |   Category: Blog, Families, Parents, & Caregivers, Featured on Homepage   |   Tags: ,   |   No Comments

Sleep disturbances are common in children with PANS and are part of the diagnostic criteria.  See more about the PANS PANDAS Diagnostic Criteria and Symptoms Some have trouble falling asleep at night, while others have difficulty staying asleep. One cohort from a study from the Stamford PANS Clinic “demonstrated increased onset of REM sleep (median […]

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Sensory and Motor Abnormalities including Tics in PANS PANDAS

Sensory and Motor Abnormalities including Tics in PANS PANDAS

Published: Mar 20, 2021   |   Author: Gabriella True   |   Category: Blog, Families, Parents, & Caregivers, Featured on Homepage   |   Tags: , ,   |   No Comments

Sensory and Motor Abnormalities is one of the main categories of symptoms PANS PANDAS patients can experience. See more about PANS PANDAS Symptoms. Motor Abnormalities Like all PANS PANDAS symptoms, motor abnormalities can look different from patient to patient. Some signs of Motor Abnormalities: Tics Choreiform movements, i.e., piano fingers. Not large chorea movements as […]

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Recruiting – naproxen sodium treat obsessive-compulsive symptoms in patients with Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal infections PANDAS

Recruiting – naproxen sodium treat obsessive-compulsive symptoms in patients with Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal infections PANDAS

Published: Mar 5, 2021   |   Author: Gabriella True   |   Category: Blog, Current Studies   |   Tags:   |   No Comments

This study evaluates the efficacy of naproxen sodium treat OCD symptoms in patients with suspected or diagnosed Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal infections (PANDAS).  

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ASPIRE signs on to letter to FDA regarding Complex Generics

ASPIRE signs on to letter to FDA regarding Complex Generics

Published: Feb 23, 2021   |   Author: Gabriella True   |   Category: Blog, Legislative Resources   |   Tags:   |   No Comments

ASPIRE cosigned the Association for Accessible Medicines’ letter to the FDA urging them to prioritize patient access to more safe, effective, and affordable complex generic medicines in Generic Drug User Fee Amendment (GDUFA III). Please see the list of other organizations that signed on.å

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New IVIG Study

New IVIG Study

Published: Feb 23, 2021   |   Author: Gabriella True   |   Category: Blog, Clinicians, Families, Parents, & Caregivers, Featured on Homepage   |   Tags: , ,   |   No Comments

In PANS patients, all pyschometric endpoints studied exhibited statistically significant decreases following 6 cycles (infusions) of IVIG as well as durability of response for up to 46 weeks in a subset of subjects.

Patients with PANS can benefit from a 6-cycle course of IVIG. Provisional data demonstrate durability of the positive impact of IVG treatment. PANS is an autoimmune disease; innate immunity and the complement system may play a role in the pathogenesis of PANS.

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