ASPIRE Blog

The Role of the Adaptive Immunity and Genetic Risk Factors in Vascular and Neuronal Dysfunction in Post-Infectious Autoimmune Encephalitis Available on Demand Presented by Dritan Agalliu, Ph.D. Associate Professor, Departments of Neurology, Pathology and Cell Biology, Columbia University Irving Medical Center REQUEST WEBINAR ACCESS AT PANDAS PPN Learning Objectives Participants will be able to: Evaluate […]

As a mom with a child who had been battling PANDAS/PANDA, I know how devastating living thru it is and how hopeless at times you can feel. I felt inspired to write this poem from my experiences and what I’ve learned. I hope to give encouragement to those parents that are feeling lost & hopeless […]

“In Finn’s case, Lyme Bartonella Mycoplasma have been identified as triggers. The disease leads to rage, exhaustion, panic attacks, among other symptoms,” Dean said. “It’s been just heart-wrenching watching him just change overnight.” Read Article Boston 25 News Channel

“My Child Just Went Crazy One Day”: What You Need to Know about PANS & PANDAS, Ep. 125 CEU podcasts for social workers, psychologists, therapists, clinical counselors, and addiction counselors nationwide Dr. Roseann Capanna-Hodge, LPC, breaks down what therapists need to know as they evaluate and treat OCD and tic disorders, as many children and […]

April 8, 2019. Somer Delsignore “Many children with PANS/ Autoimmune Encephalopathy who seem to flare despite having a good treatment plan perhaps forget the inflammation of a seasonal allergy. Many patients have seasonal flares. Usually in early Spring, when tree pollen and grass allergens are revving up.  I think at times we forget just how […]

Elisabeth Fernell, Mikael Sundin, Anders Fasth, Lisa Dinkler, Martyna Galazka, Christopher Gillberg, Mats Johnson Acta Paediatr. DOI: 10.1111/apa.15805 Conclusion No HLA allele association such as seen in children with narcolepsy after H1N1 immunisation could be confirmed in this group of children with PANS. However, more than half the group had a first‐degree relative with a […]

Piero Pavone, Manuela Ceccarelli, Silvia Marino, Daniela Caruso, Raffaele Falsaperla, Massimiliano Berretta, et al. Lancet Child Adolesc Health. 2021 . May 04, 2021 DOI:10.1016/S2352-4642(21)00135-8 “Post-infectious, autoimmune, and neuro-inflammatory events are the main mechanisms of Paediatric Acute-onset Neuropsychiatric Syndrome (PANS).4 PANS presents with a sudden onset of obsessive-compulsive disorder (OCD) or a severely restricted food intake, […]

Please support Gianfranco’s Online Wine Fundraiser Gianfranco’s daughter was diagnosed with PANS PANDAS three years ago. ASPIRE is so thankful that he has chosen to do a fundraiser for us with ONE HOPE Wine. 10% of all wine sales will be donated to ASPIRE. The fundraiser ends May 17, 2021. Please purchase wine through this […]

There are several areas to consider evaluating students with PANS PANDAS in order to determine areas for support and accommodations.  It is important to note that due to the relapsing-remitting course of PANS PANDAS, some students return to baseline in between flares while some skills stay below their baseline. So the timing of assessments in […]

Children brought to behavioral health clinics with a sudden onset of changes in behavior and/or mood are often misdiagnosed and mistreated because clinicians don’t know the signs and symptoms of pediatric acute-onset neuropsychiatric disorders (PANS) or the related condition,

ASPIRE’S Professional Advisory Board publishes PANS/PANDAS Guidelines for Children with Autism   Download and Share Today! No one should be denied a proper evaluation of PANS PANDAS. Members of the ASPIRE Professional Advisory Board have written PANS/PANDAS Guidelines for Children with Autism because too often, the medical conditions of children with autism are overlooked and […]

ASPIRE to Move Mountains Together Bracelets   Why Move Mountains Together? PANS PANDAS is a rough road and a significant obstacle to overcome, and we need our community’s help to get over that big mountain. When you feel alone at home while you deal with PANS PANDAS, know that you are not; many of us […]