School In-Service Lectures at ASPIRE

School In-Service Lectures at ASPIRE

Published: Sep 17, 2021   |   Author: Gabriella True   |   Category: Blog, Featured on Homepage, Printables & Brochures, Schools & Educators   |   Tags: ,   |   4 Comments

Students with PANS/PANDAS have complex cognitive, behavioral, physical & neurological symptoms that affect their school performance. The school’s multidisciplinary team benefits from an awareness of PANS PANDAS, the resulting impact on school performance, and the recommended support.

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Recent progress on Tourette syndrome

Published: Sep 7, 2021   |   Author: Gabriella True   |   Category: Blog, Research   |   Tags: ,   |   No Comments

Ueda K, Black KJ. Recent progress on Tourette syndrome. Fac Rev. 2021;10:70. Published 2021 Sep 7. DOI:10.12703/r/10-70 “Recent years have seen increasing information about the relationship between tics and comorbidities and about new genetic findings. Inflammatory processes have also been a topic of continued interest. “The prevalence and characteristics of tics in patients with encephalitis […]

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GAPS Nutritional Protocol as a Treatment for PANDAS: A Case Study

Published: Sep 6, 2021   |   Author: Gabriella True   |   Category: Blog, Research   |   No Comments

Delaunay-Vagliasindi S, Seneff S, Coro S & Campbell-McBride N (2021) GAPS Nutritional Protocol as a treatment for PANDAS: A case study. J Orthomol Med. 36(3). 6 September 2021  “Growing research is calling attention to the role of poor gut health in autoimmune conditions, psychological conditions, and neurological conditions – all of which are relevant to […]

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Long COVID in Kids: The New Mono?

Long COVID in Kids: The New Mono?

Published: Aug 24, 2021   |   Author: Gabriella True   |   Category: Blog, Featured on Homepage, News   |   Tags:   |   No Comments

While PANDAS is the result of a bacteria, and Long COVID, a virus, these pathogens share the capacity to cross the blood brain barrier, and attack the brain, affecting everything from mood, nerves and brain function. An article published in the British Medical Journal in 2005, points out a number of identifiable mechanisms of the mind-body connection. Most relevant being that infectious physical disease, affecting the brain, can give rise, directly, to psychological manifestations.

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Gabriella True – 10 PANS PANDAS Tips/Advice

Gabriella True – 10 PANS PANDAS Tips/Advice

Published: Aug 18, 2021   |   Author: Gabriella True   |   Category: Blog, Featured on Homepage, Tips For PANS PANDAS   |   No Comments

From Gabriella True, Board President Do not give up hope. Even on the darkest days, don’t give up. I don’t need to describe them to you because we all have been there or are there right now. Remember, there are possible triggers you have not identified. There are related health issues that may need to be […]

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Preparing for a New School Year with PANS PANDAS

Preparing for a New School Year with PANS PANDAS

Published: Aug 5, 2021   |   Author: Gabriella True   |   Category: Blog, Featured on Homepage, Schools & Educators   |   No Comments

A the start of a school year parents of students with PANS PANDAS should schedule a time to meet with their child’s new team including teachers, therapists, guidance counselors, etc. If the student has a 504 Plan or an Individualized Education Plan (IEP), the Case Manager/ Coordinator and other relevant school personnel will attend the meeting. If it is appropriate, the student may attend the meeting.

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PANDAS and Lyme disease in a 7-year-old child

PANDAS and Lyme disease in a 7-year-old child

Published: Jul 30, 2021   |   Author: Gabriella True   |   Category: Blog, Podcasts   |   No Comments

The article by Cross et al. entitled “Case Report: PANDAS and Persistent Lyme disease with Neuropsychiatric Symptoms: Treatment, Resolution and Recovery” was published in Frontiers in Psychiatry. [1]

The 7-year-old girl developed multiple physical and neuropsychiatric symptoms six months after travelling to a tick endemic region of the U.S. During this period, she was treated for 3 separate strep infections and was subsequently diagnosed with Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal infections (PANDAS). PANDAS was considered based on classic symptoms and a history of strep, a positive ASO titer and a slightly elevated DNase B titer.

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IOCDF Virtual Voices for Mental Health: An Online Day of Action

IOCDF Virtual Voices for Mental Health: An Online Day of Action

Published: Jul 30, 2021   |   Author: Gabriella True   |   Category: Blog, Events, Fundraisers, Special Projects, Featured on Homepage, Legislative Resources   |   No Comments

Virtual Voices for Mental Health program 2021 ASPIRE is again partnering with IOCDF on Virtual Voices for Mental Health program in which we call on our community to contact their legislators to ask for their support for specific mental health bills. These are the main issues: Issue #1: Support Telehealth Access Issue #2: Grow the […]

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