NEDAwareness Week Organizational Partner

NEDAwareness Week Organizational Partner

Published: Feb 17, 2022   |   Author: Gabriella True   |   Category: Blog, Events, Fundraisers, Special Projects, Featured on Homepage   |   One Comment

One of the primary symptoms of PANS is Severe Eating Restriction. Over 50% of PANS patients will have non-life threatening eating restrictions but more severe than picky eating. While 17% will experience such severe eating restrictions that it has become life-threatening due to extreme and rapid weight loss of at least 10%-15% of their body weight. 

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Practices and Goals for a PANS/PANDAS

Practices and Goals for a PANS/PANDAS

Published: Jan 5, 2022   |   Author: Gabriella True   |   Category: Blog, Families, Parents, & Caregivers, Featured on Homepage   |   Tags: , ,   |   No Comments

It is a New Year and a new decade. Everyone is making resolutions.  But you are still dealing with PANS/PANDAS.
So how do we make resolutions that empower us and don’t set us up to fail or forget to follow through mid-year? How do we do this when we want to pull our hair out and shout – help! I can’t handle any more! Throw me a lifeline!

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