Cognitive, Graphomotor, and Psychosocial Challenges in Pediatric Autoimmune Neuropsychiatric Disorders Associated With Streptococcal Infections (PANDAS)

Published: Dec 2, 2020   |   Author: Gabriella True   |   Category: Blog, Research   |   No Comments

Conclusions: These findings indicated relative difficulties with aspects of executive and motor functions. Although evaluations were performed following the resolution of acute symptoms, ongoing and significant academic difficulties and emotional, behavioral, and social concerns were targets for clinical intervention and support.

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Anti-inflammatory Augmentation Therapy in Obsessive-compulsive Disorder: A Review

Published: Oct 24, 2020   |   Author: Gabriella True   |   Category: Blog, Research   |   Tags:   |   No Comments

Hanie Ghasemi, Homa Nomani, Amirhossein Sahebkar* and Amir Hooshang Mohammadpour*, “Anti-inflammatory Augmentation Therapy in Obsessive-compulsive Disorder: A Review”, Letters in Drug Design & Discovery (2020) 17: 1198. DOI: 10.2174/1570180817999200520122910 Anti-inflammatory Augmentation Therapy in Obsessive-compulsive Disorder: A Review “Results: Recent studies display that inflammation processes and the dysfunction of the immune system are likely to play […]

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A Long Slow Road to PANS PANDAS Recovery

A Long Slow Road to PANS PANDAS Recovery

Published: Oct 22, 2020   |   Author: Gabriella True   |   Category: Blog, Featured on Homepage, Personal Stories   |   2 Comments

Around 4th grade, Sylvie was at a friend’s house, and I received a call that she wanted to come home. She was scared as she had seen something upsetting on TV; turns out it was a cat that had fallen from a roof and broken its leg. It was a little strange that she had such a strong reaction, and afterward, she was withdrawn. Soon after, Sylvie came home from school and said she could no longer eat because she was afraid of choking and dying. She loved food and, prior to this, ate with gusto. We struggled and cajoled her into eating; the whole family got involved, and after about two weeks of extremely slow eating and chewing, she got back to somewhat normal.

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Borrelia miyamotoi Serology in a Clinical Population With Persistent Symptoms and Suspected Tick-Borne Illness

Published: Oct 20, 2020   |   Author: Gabriella True   |   Category: Blog, Research   |   Tags:   |   No Comments

Borrelia miyamotoi Serology in a Clinical Population With Persistent Symptoms and Suspected Tick-Borne Illness Delaney Shannon L., Murray Lilly A., Aasen Claire E., Bennett Clair E., Brown Ellen, Fallon Brian A. Borrelia miyamotoi Serology in a Clinical Population With Persistent Symptoms and Suspected Tick-Borne Illness. Front. Med., 27 October 2020 . DOI=10.3389/fmed.2020.567350 ABSTRACT=Eighty-two patients seeking […]

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PANS Patient Story – PANS PANDAS Can Start as an Eating Disorder

PANS Patient Story – PANS PANDAS Can Start as an Eating Disorder

Published: Oct 8, 2020   |   Author: Gabriella True   |   Category: Blog, Family Quotes, Featured on Homepage, Personal Stories   |   Tags: , , ,   |   5 Comments

PANS PANDAS Can Start as an Eating Disorder Note from ASPIRE: This is a must-read PANS PANDAS Patient Story. A typical happy young girl develops a severe eating disorder and other PANS PANDAS symptoms; then, she suffers through years of hospitalizations before her mother finally reads about PANS PANDAS. Even after diagnosis, it was an […]

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The Wall Was Hard to See

The Wall Was Hard to See

Published: Oct 3, 2020   |   Author: Gabriella True   |   Category: Blog, Featured on Homepage, Personal Stories   |   No Comments

This story exemplifies how it is sometimes hard to see the sudden onset or sudden worsening of PANS PANDAS symptoms as you are living (struggling) through it. Remember, someone with PANS PANDAS does not need to be 100% free of all symptoms, behaviors, delays, etc. before onset; symptoms can pile up. The boy featured in this story had several challenges prior to diagnosis. Hence, as his parents, providers, and educators kept trying new therapies, seeing gains then seeing the loss of those gains, it was hard to see the big picture and identify those periods of sudden onset and sudden worsening of symptoms. It was not until medical issues in his sibling were identified, including Bartonella, strep, and mycoplasma, was PANS PANDAS considered. Then the pieces fell into place, and it was easier to see when he had hit walls – i.e., when he had periods of regression and sudden worsening of behaviors.

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IOCDF Virtual Voices for Mental Health: An Online Day of Action

IOCDF Virtual Voices for Mental Health: An Online Day of Action

Published: Sep 17, 2020   |   Author: Gabriella True   |   Category: Blog, Families, Parents, & Caregivers, Featured on Homepage, Legislative Resources   |   No Comments

ASPIRE is so happy to announce that we are participating in this year’s Virtual Voices for Mental Health: An Online Day of Action, and you’re invited!   Watch the IOCDF Virtual Voices 2020 Rally   Hosted by the International OCD Foundation as part of OCD Awareness Week, Virtual Voices for Mental Health: An Online Day […]

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