Sample Letter – Request to an Evaluation for an IEP & 504 Plan

Sample Letter – Request to an Evaluation for an IEP & 504 Plan

Published: Jun 1, 2021   |   Author: Gabriella True   |   Category: Blog, Schools & Educators   |   Tags: ,   |   No Comments

Keep a copy for yourself. Hand deliver and ask for a date stamp or send with Return Receipt to establish timeline or email as an attachment. (Parent/Guardian Name) (Home Address) (City, State, Zip Code) (Daytime Telephone Number / Email)   (Date) (Administrator Name) (Title – i.e. Director of Student Services / District 504 Coordinator) (School […]

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Sample Letter – Request for Prior Written Notice – PWN

Sample Letter – Request for Prior Written Notice – PWN

Published: Jun 1, 2021   |   Author: Gabriella True   |   Category: Blog, Schools & Educators   |   Tags: ,   |   No Comments

Keep a copy for yourself. Hand deliver and ask for a date stamp or send with Return Receipt to establish timeline or email as an attachment. (Parent/Guardian Name) (Home Address) (City, State, Zip Code) (Daytime Telephone Number / Email)   (Date) (Administrator Name) (Title – i.e. Director of Student Services / District 504 Coordinator) (School […]

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PANDAS and PANS in School Settings

PANDAS and PANS in School Settings

Published: May 30, 2021   |   Author: Gabriella True   |   Category: Blog, Books   |   No Comments

This practical handbook explains how educators can distinguish between these symptoms and pre-existing conditions, and offers strategies for supporting students with PANDAS and PANS in school settings. Contributions from experts provide educators with the understanding needed to be able to collaboratively identify PANDAS and PANS, and carry out effective interventions. As the rate of incidence of PANDAS and PANS increases, this book will be an essential resource for school staff in getting to grips with these complex disorders and overcoming the challenges they present.

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Advocate Early and Often! No Experience Needed!

Advocate Early and Often! No Experience Needed!

Published: May 27, 2021   |   Author: Gabriella True   |   Category: Blog, Families, Parents, & Caregivers, Featured on Homepage   |   No Comments

It is never too early to become a PANS PANDAS advocate! Public awareness of PANS PANDAS happens one person at a time, and we need your help! Increasing awareness improves outcomes of those suffering from these devastating disorders that should be treatable. When more people are aware of the signs and symptoms, doctors can diagnose […]

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PANDAS Clinical Care & Research at MGH: Updates & Discussion Drs Geller, Pasternack, & Williams

PANDAS Clinical Care & Research at MGH: Updates & Discussion Drs Geller, Pasternack, & Williams

Published: May 24, 2021   |   Author: Gabriella True   |   Category: Blog, Featured on Homepage, Videos   |   No Comments

PANDAS Clinical Care & Research at MGH: Updates & Discussion w/ Drs. Geller, Pasternack, & Williams Doctors from the MGH PANDAS clinic present updates on various aspects of clinical care in PANS/PANDAS. New research on how to treat and diagnose these conditions will also be discussed. May 21, 2021

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PANS PANDAS Student Excellence Award

PANS PANDAS Student Excellence Award

Published: May 20, 2021   |   Author: Gabriella True   |   Category: Blog, Families, Parents, & Caregivers, Featured on Homepage   |   3 Comments

Our students are PANS PANDAS strong!     As we begin to wrap up the school year, we see many kids receiving praise for scholastic achievement. Let us take the time to honor all of the PANS PANDAS students that toughed it out through their numerous hard times due to PANS PANDAS. People say it was […]

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CME: The Role of the Adaptive Immunity and Genetic Risk Factors in Vascular and Neuronal Dysfunction in Post-Infectious Autoimmune Encephalitis

CME: The Role of the Adaptive Immunity and Genetic Risk Factors in Vascular and Neuronal Dysfunction in Post-Infectious Autoimmune Encephalitis

Published: May 10, 2021   |   Author: Gabriella True   |   Category: Blog, Clinicians, Featured on Homepage   |   No Comments

The Role of the Adaptive Immunity and Genetic Risk Factors in Vascular and Neuronal Dysfunction in Post-Infectious Autoimmune Encephalitis Available on Demand Presented by Dritan Agalliu, Ph.D. Associate Professor, Departments of Neurology, Pathology and Cell Biology, Columbia University Irving Medical Center REQUEST WEBINAR ACCESS AT PANDAS PPN Learning Objectives Participants will be able to: Evaluate […]

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Love Conquers All – A PANS PANDAS Poem

Love Conquers All – A PANS PANDAS Poem

Published: May 10, 2021   |   Author: Gabriella True   |   Category: Blog, Personal Stories   |   No Comments

As a mom with a child who had been battling PANDAS/PANDA, I know how devastating living thru it is and how hopeless at times you can feel. I felt inspired to write this poem from my experiences and what I’ve learned. I hope to give encouragement to those parents that are feeling lost & hopeless […]

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CEU Podcast on PANS PANDAS

CEU Podcast on PANS PANDAS

Published: May 7, 2021   |   Author: Gabriella True   |   Category: Blog, Clinicians, Podcasts   |   No Comments

“My Child Just Went Crazy One Day”: What You Need to Know about PANS & PANDAS, Ep. 125 CEU podcasts for social workers, psychologists, therapists, clinical counselors, and addiction counselors nationwide Dr. Roseann Capanna-Hodge, LPC, breaks down what therapists need to know as they evaluate and treat OCD and tic disorders, as many children and […]

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Autoimmune Encephalopathy/ PANS Flares and the Link to Seasonal Allergies

Autoimmune Encephalopathy/ PANS Flares and the Link to Seasonal Allergies

Published: May 7, 2021   |   Author: Gabriella True   |   Category: Blog, News   |   No Comments

April 8, 2019. Somer Delsignore “Many children with PANS/ Autoimmune Encephalopathy who seem to flare despite having a good treatment plan perhaps forget the inflammation of a seasonal allergy. Many patients have seasonal flares. Usually in early Spring, when tree pollen and grass allergens are revving up.  I think at times we forget just how […]

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