Delivery of IEP Services During Corona

Delivery of IEP Services During Corona

Published: Mar 13, 2020   |   Author: Gabriella True   |   Category: Blog, Schools & Educators   |   Tags: ,   |   No Comments

Many students with PANS/PANDAS have IEPs. During this period, many schools a being closed for extended periods completely while others are closing temporarily to make plans for remote teaching. The U.S. Department of Education lays out Questions and Answers on the states’ responsibilities for children with disabilities. Below we have pasted in two questions covered in the document. One is, if a school closes due to COVID-19 and provides no education to the general ed students, do they have to provide services to those with IEPs. The answer is No. The second is if the school is closed but providing educational services to the general ed students, do they have to provide those with disabilities educational services too? The answer is yes, to the best of their ability, under FAPE. Please read through the entire document as there are many other related topics covered including information on what happens when the child has COVID-19 and can’t attend.

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PANS PANDAS Support/Meet Up Groups

PANS PANDAS Support/Meet Up Groups

Published: Mar 3, 2020   |   Author: Gabriella True   |   Category: Blog, Families, Parents, & Caregivers, Featured on Homepage   |   Tags:   |   No Comments

** Please note that many, if not all meetings have been cancelled for March and April. Please contact the support group directly with questions. If you would like to be added to this Support Group round up, please email us at Family Support Committee. Updated Support Group information is due by the last Monday of […]

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ASPIRE & Vitalant Plasma Drive – Nationwide!

ASPIRE & Vitalant Plasma Drive – Nationwide!

Published: Mar 3, 2020   |   Author: Gabriella True   |   Category: Blog, Featured on Homepage   |   Tags:   |   No Comments

Vitalant & ASPIRE Community Plasma Drive March 15 – May 15 – locations throughout the country What to know more about Plasma Donation? ASPIRE has created an easy to understand guide to Plasma Donation.  Interested in hosting a drive near you? It is really easy, we provide you with all the materials. All you have […]

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Rare Disease and Equity

Rare Disease and Equity

Published: Feb 29, 2020   |   Author: Gabriella True   |   Category: Blog   |   No Comments

Whether you think PANS/PANDAS is a Rare Disease or actually just rarely diagnosed, it is a day to educate people about PANS/PANDAS. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.

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Honor Your Doctor on Doctors’ Day – March 30!

Honor Your Doctor on Doctors’ Day – March 30!

Published: Feb 28, 2020   |   Author: Gabriella True   |   Category: Blog, Featured on Homepage   |   No Comments

Join ASPIRE in recognizing a doctor who inspires you, who has helped your family heal, who has gone that extra mile, who has listened to you.

We are working on a special “thank you” for all of our physicians who dedicate themselves each & every day to the health of our patients, families & community. If YOU have a PANS/PANDAS doctor you’d like to give a special shout out to, let us know so we can create a special thank you! Your expression of gratitude will be sincerely appreciated.

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Big Thank You to Blue Gallery!

Big Thank You to Blue Gallery!

Published: Feb 22, 2020   |   Author: Gabriella True   |   Category: Blog   |   No Comments

A million thank you’s to Steve Dupler who owns the fabulous Blue Gallery! He opened the doors to ASPIRE so we could begin work on an advocacy project. Blue Gallery is a gem of a NYC venue and exhibition space just a few blocks from Grand Central!

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