ASPIRE Blog

WV needs your help asking legislators to support HB 2252: Requiring insurance coverage for treatment of pediatric autoimmune neuropsychiatric disorders. 

Trigger Warning: Self-Harm & Suicide The following story discusses experiences with self-harm, suicidal thoughts, and psychiatric hospitalization. If you are sensitive to these topics, please proceed with care. If you […]

Wu, X., Hao, J., Jiang, K. et al. Neuroinflammation and pathways that contribute to tourette syndrome. Ital J Pediatr 51, 63 (2025). https://doi.org/10.1186/s13052-025-01874-3 Read a deeper dive: Neuroinflammation and Immune […]

Zoom – Restricted Eating ChitChat – Tuesday, April 1 – 6:30 PM CT

  Homeschooling and PANS/PANDAS: Resources for Families   Traditional school environments can be challenging for many families navigating PANS/PANDAS. Symptoms such as anxiety, OCD, cognitive difficulties, and fatigue may make […]

Gallant RM, Sanchez KK, Joulia E, Snyder JM, Metallo CM, Ayres JS. Fluoxetine promotes IL-10-dependent metabolic defenses to protect from sepsis-induced lethality. Sci Adv. 2025 Feb 14;11(7):eadu4034. doi: 10.1126/sciadv.adu4034. Epub […]

Restricted eating, including Avoidant/Restrictive Food Intake Disorder (ARFID), is a common yet complex challenge for individuals with PANS/PANDAS. Families and patients often struggle to find appropriate support and treatment tailored […]

The Becks paid $20,000 out-of-pocket in 2023 for Emily’s medical care, including occupational therapy, psychiatric appointments, tests, supplements and medications that insurance wouldn’t pay for after meeting a large deductible. They accumulated $6,000 in medical debt. They started a GoFundMe campaign in 2024 to pay for the infusions.

Tang AW, Swedo SE, Pasternack M, Murphy T, et al. Eight cases of pediatric acute-onset neuropsychiatric syndrome: clinical characteristics. Developmental Neuroscience. 2025;47(4):287–302. doi:10.1159/000543969 Please read more in depth blog – […]

Looking for ASPIRE ChitChats? ASPIRE ChitChats are supportive, peer-to-peer meetings for parents of children with PANS and adults living with PANS. These gatherings—both online and in person—offer a place to […]

Zoom – Louisiana ChitChat – Thursday, February 27 – 3:00 PM CT

    ASPIRE to Speak at NJSSNA Spring 2025 Conference – Pearls of Wisdom for School Nurses Conference Details Friday, March 28, 2025 at 6:00pm ET – Saturday, March 29, […]