ASPIRE Blog

Residents of Tennesee, we need your help! This is the first year Tennessee has undertaken legislative efforts to pass a legislative mandate to secure insurance coverage for PANS PANDAS. SB2401/HB2484 and SB2402/HB2463 are insurance bills, one for state insurance and one for private insurance, that have been introduced in 2024.

NASHVILLE, Tenn. (WSMV) – After three denials of insurance coverage of a misunderstood disease, a Mt. Juliet family just learned the good news: BlueCross BlueShield has agreed to three months of coverage of an expensive transfusion, one that the family had already paid $16,000 out-of-pocket to receive.

Kinderlehrer DA. Inflammation as the Common Pathophysiology Linking Stress, Mental Illness, Autoimmunity and Chronic Disease: Implications for Public Health Policy. J Biomed Res Environ Sci. 2024 Mar 28; 5(3): 242-255. […]

Poster: Enuresis as a presentation of Paediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcus (PANDAS) Author: Ying Xin Wong, Ubhi Tim Presented: The Royal College of Paediatrics and Child Health Annual […]

Family enters final fight for son’s ‘life-saving’ treatment WSMV4 by Amanda Hara. Published: Mar. 21, 2024 at 5:35 PM EDT Another story about the cruel bureaucracy of insurance. A child […]

GRAND ROUNDS – Register Today Children’s Minnesota will host a one-hour pediatric grand rounds presentation featuring Eyal Muscal, MD, MS. – Neuroinflammation in Children: Breaking Down Silos of Care? Date: […]

Aubry A, Corvilain E, Ghelfenstein-Ferreira T, Camelena F, Meignin V, Berçot B, Le Goff J, Salmona M. Unmasking Bartonella henselae infection in the shadows of long COVID thanks to clinical […]

Aftab Ahmed, Fatima Bint Sajid, Zaib Un Nisa Mughal, Wajeeha Binte Sajid, Abdul Haseeb, PANDAS coexisting with gastrointestinal and cerebellar manifestation, Journal of Medicine, Surgery, and Public Health, Volume 2, […]

Today, on Women’s Day, as I take notes from my morning meeting with Dr. Susan Swedo about upcoming and ongoing projects, I am taking a moment to reflect on her […]

Presentation Details   PANS/PANDAS Symptoms and Solutions in the School Setting Date: April 2nd, 2024 Time: 3:00-5:00 Join Via Zoom Link:  https://us06web.zoom.us/j/85003252706?pwd=abiFFHc769nNHc9heesP6uG24ZjV9w.1 Presenter: Gabriella True, ASPIRE President Please Note: Attendance […]

Today, March 2nd, is World Teen Mental Wellness Day, a day dedicated to raising awareness about the mental health challenges faced by teenagers around the globe. ASPIRE celebrates the resilience […]

What does Rare Disease Day mean for PANS/PANDAS?  In the PANS world, we say that PANS/PANDAS is not rare; it is just rarely diagnosed.  One of the problems of perpetuating […]