ASPIRE Blog

  Register to Watch Virtually Conference videos are available until May. Please note, if you are having problems accessing the conference, please first check your spam folder for an email […]

The Seattle Times By Leah Penney, Mental Health Perspectives guest columnist “A few weeks after my 6th birthday, I went to bed one night a happy, healthy child, and I […]

What would you do if you thought the government was coming to take your child? Protecting Your Child explains the child protection system—what it is, the way it works, and how to navigate your way through it. For those who find themselves unjustly accused, this book will help.

One of the primary symptoms of PANS is Severe Eating Restriction. Over 50% of PANS patients will have non-life threatening eating restrictions but more severe than picky eating. While 17% will experience such severe eating restrictions that it has become life-threatening due to extreme and rapid weight loss of at least 10%-15% of their body weight. 

We know there is no parenting playbook; there certainly isn’t one when you add PANS/PANDAS to the mix. As parents, we are often second-guessing our decisions. So, as you read […]

Attention Parents and Guardians of children with PANS/PANDAS! The University at Buffalo occupational therapy program is conducting a study of caregiver experiences and stress among parents/guardians of children with PANS/ […]

Examining possible root causes of Obsessive-Compulsive Disorder. Psychology Times by Odelya Gertel Kraybill Ph.D. Key points OCD can be rooted in immune response. OCD can be triggered by infections that […]

M. Della Corte, C. Delehaye, E. Savastano, M.F. De Leva, P. Bernardo, A. Varone, Neuropsychiatric syndrome with myoclonus after SARS-CoV-2 infection in a paediatric patient, Clinical Neurology and Neurosurgery, Volume […]

Thank you to everyone who took a moment to celebrate the successes of the past year so our community can carry hope into 2022!            

Endres, D., Pollak, T.A., Bechter, K. et al. Immunological causes of obsessive-compulsive disorder: is it time for the concept of an “autoimmune OCD” subtype?. Transl Psychiatry 12, 5 (2022). https://doi.org/10.1038/s41398-021-01700-4 […]

UCSON, Ariz. (KOLD News 13) – A first-of-its-kind children’s research center in Tucson, UA Steele Children’s Research Center, is raising the profile of a largely undiagnosed illness in kids.

It is a New Year and a new decade. Everyone is making resolutions.  But you are still dealing with PANS/PANDAS.
So how do we make resolutions that empower us and don’t set us up to fail or forget to follow through mid-year? How do we do this when we want to pull our hair out and shout – help! I can’t handle any more! Throw me a lifeline!