Lyla and Pickles’ Guide to PANDAS
Lyla is a spunky eight-year-old little girl with a wild imagination. Along with her best friend, Pickles, Lyla loves to go on adventures, play pretend, and enjoy being a kid. When Lyla was six years...
Lyla is a spunky eight-year-old little girl with a wild imagination. Along with her best friend, Pickles, Lyla loves to go on adventures, play pretend, and enjoy being a kid. When Lyla was six years...
Leonardi L, Perna C, Bernabei I, Fiore M, Ma M, Frankovich J, Tarani L, Spalice A. Pediatric Acute-Onset Neuropsychiatric Syndrome (PANS) and Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections (PANDAS): Immunological Features Underpinning Controversial Entities. Children. 2024; 11(9):1043. https://doi.org/10.3390/children11091043
Pooni R, Zheng W, Ma M, Silverman M, Xie Y, Farhadian B, Thienemann M, Mellins E, Frankovich J. Cerebrospinal fluid characteristics of patients presenting for evaluation of pediatric acute-neuropsychiatric syndrome. Front Behav Neurosci. 2024 Aug 19;18:1342486. doi: 10.3389/fnbeh.2024.1342486. PMID: 39224487; PMCID: PMC11367679.
This study found that about a quarter of patients meeting strict PANS criteria who underwent lumbar punctures (LP) had cerebrospinal fluid (CSF) abnormalities, with the most common being elevated CSF protein and albumin quotient. These patients also exhibited signs of inflammation and autoimmunity, such as low complement levels, high immune complexes, non-specific autoantibodies, vasculopathy, and arthritis.
Interestingly, the “other psychiatric deterioration” group—those referred for PANS but not meeting strict criteria—had an even higher frequency (45%) of CSF abnormalities. Many of these patients also showed systemic inflammation, with conditions like thyroiditis and arthritis, and had symptoms overlapping with PANS, including obsessive-compulsive behaviors and food restrictions.
Both groups demonstrated a notable prevalence of arthritis, emphasizing systemic inflammation’s potential role, possibly affecting the blood-brain barrier (BBB). While the study was not designed to assess the significance of these differences, it suggests an overlap in psychiatric symptoms and inflammatory features across the groups, which may involve complement activation and vascular inflammation, similar to what’s seen in Long Covid.
The disease is typically as awful as it is sudden: Over a few days, children develop severe anxiety and intense obsessive-compulsive behaviors. They barely sleep and may stop eating. Their schoolwork...
Share this one-page handout on PANS PANDAS. Click the button below to download the 1-page handout on PANS PANDAS, including symptoms and information about the disorder. Register with ASPIRE to...
Straight from the Heart: Students and Young Adults Share About PANS PANDAS Download PDF version: What I Want My Friends to Know About PANS PANDAS ASPIRE surveyed students and...
Recent PANS/PANDAS Triumphs Thank you to everyone who took a moment to celebrate your recent success. Your stories provide hope to other families and patients! Would you like to share...