ASPIRE Blog

Today, March 2nd, is World Teen Mental Wellness Day, a day dedicated to raising awareness about the mental health challenges faced by teenagers around the globe. ASPIRE celebrates the resilience […]

What does Rare Disease Day mean for PANS/PANDAS?  In the PANS world, we say that PANS/PANDAS is not rare; it is just rarely diagnosed.  One of the problems of perpetuating […]

The Intersection of Mental Health and the Immune System – Exploring new avenues of diagnosis and treatment in mental health care. Psychology Today By: Sheilah M. Gauch   Sheilah hits […]

NWPPN is leading the efforts in Idaho. We will help provide updates and Call to Action items as needed. If you would like to join in the efforts, please contact […]

“Long Beach’s state assembly representative, Josh Lowenthal, earlier this month introduced AB 2105 [Editor Note: Corrected from AB 2015 in the print edition] in Sacramento. It would provide health insurance coverage for an inflammatory brain disorder that can become chronic or life-threatening conditions to children when left untreated – and which is typically misdiagnosed by doctors.”

  Download Toolkit Legislative Action: Information for Legislators Toolkit Download ASPIRE’s PANS/PANDAS Legislative Action: Information for Legislators Toolkit. 

This Legislative Toolkit covers topics including: What are PANS/PANDAS Overview of Diagnosis […]

WSMV 4 By Lauren Lowrey Published: Jan. 24, 2024 at 6:37 PM EST|Updated: Jan. 24, 2024 at 7:44 PM EST   NASHVILLE, Tenn. (WSMV) – A little-understood disease could be […]

  Virginia PANS PANDAS Updates Virginia Alliance for PANS/PANDAS Action (VA4PA) is leading legislative efforts. Please contact them directly for more information. Their website is VA4PA and their email is […]

Loudoun parent is hopeful that new legislation will bring insurance coverage for PANS/PANDAS By KAREN GRAHAM kgraham@loudountimes.com Louden Times, Feb 7, 2024 “Virginia parents of children diagnosed with PANS/PANDAS, a […]

“The legislation from Del. Patrick Hope, D-Arlington, would have applied to both Medicaid and private insurance as a way to lower the treatment costs for PANS/PANDAS, a disease  scientists believe is caused by a child’s immune system attacking their brain. 

WV needs your help asking legislators to support HB 2252: Requiring insurance coverage for treatment of pediatric autoimmune neuropsychiatric disorders. 

Suchitra Rao, MBBS, MSCS; Rachel S. Gross, MD, MS; Sindhu Mohandas, MD; Cheryl R. Stein, PhD; Abigail Case, MD; Benard Dreyer, MD; Nathan M. Pajor, MD; H. Timothy Bunnell, PhD; […]