On Having a PANS PANDAS and Tourette Syndrome Diagnosis

On Having a PANS PANDAS and Tourette Syndrome Diagnosis

Published: Jun 11, 2021   |   Author: Gabriella True   |   Category: Blog, Featured on Homepage, Personal Stories   |   Tags: , ,   |   No Comments

So, I noticed Sam posting about Tourette Syndrome (TS), Obsessive Compulsive Disorder (OCD), and PANS PANDAS (PP) on Instagram a few months ago. And my first thought was – oooh a young man is actually talking publicly about these disorders and how it affects his life while spreading awareness. Let me tell you, that is […]

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Rhode Island Call to Action – Insurance Coverage for PANS PANDAS

Rhode Island Call to Action – Insurance Coverage for PANS PANDAS

Published: Jun 8, 2021   |   Author: Gabriella True   |   Category: Blog, Featured on Homepage, Legislative Resources   |   Tags:   |   No Comments

Rhode Island Update & New Call To Action Update! June 9th, 2021 The Senate Amendment Bill 064 passed the Senate!  Woohoo!!  But now we still need your help right now. It is not hard and does not take long so don’t worry if you have never contacted your state representatives before.  The Rhode Island Senate […]

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PANS PANDAS and Tourette Syndrome – The Overlap

PANS PANDAS and Tourette Syndrome – The Overlap

Published: Jun 3, 2021   |   Author: Gabriella True   |   Category: Blog, Families, Parents, & Caregivers, Featured on Homepage, Symptoms   |   Tags: , , ,   |   No Comments

PANS/PANDAS is not the same as traditional OCD or a tic disorder; the onset and concurrent symptoms and, in some cases, the severity of the OCD set these disorders apart. It is critical to get the diagnosis correct because the treatment plans for PANS/PANDAS and Tourette Syndrome are quite different. Unfortunately, there is a lack […]

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Tips for Accurate Mental Health Diagnosis: Four Unusual Clues to Consider

Tips for Accurate Mental Health Diagnosis: Four Unusual Clues to Consider

Published: Jun 1, 2021   |   Author: Gabriella True   |   Category: Blog, News   |   No Comments

Part 3: Navigating medical conditions masquerading as primary psychopathology Anthony D. Smith LMHC, Posted May 29, 2021 “Perhaps some of the most interesting cases of medical conditions disguised as psychological problems are Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococci (PANDAS), and anti-NMDA encephalitis due to a teratoma. PANDAS occurs in children who have had frequent […]

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Dr. Swedo on Relationship between PANS & PANDAS and Tourette’s syndrome

Dr. Swedo on Relationship between PANS & PANDAS and Tourette’s syndrome

Published: Jun 1, 2021   |   Author: Gabriella True   |   Category: Blog, Clinicians, Families, Parents, & Caregivers, Featured on Homepage, Symptoms   |   Tags: ,   |   No Comments

What is the relationship between PANS & PANDAS and Tourette’s syndrome? Susan Swedo, MD and Gabriella True sit down to discuss the relationship between PANS & PANDAS and Tourette’s Syndrome. You can have a dual diagnosis of PANS/PANDAS and Tourette’s Syndrome. Proper diagnosis is needed for appropriate treatment. If you see a doctor who will […]

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Sensory & Motor Abnormalities & Tics in PANS PANDAS

Sensory & Motor Abnormalities & Tics in PANS PANDAS

Published: Jun 1, 2021   |   Author: Gabriella True   |   Category: Blog, Families, Parents, & Caregivers, Symptoms   |   Tags: , ,   |   No Comments

Sensory & Motor Abnormalities are one of the main PANS PANDAS symptom categories In PANS, sensory and motor abnormalities both fall into one of the seven categories of the PANS diagnostic criteria. In PANDAS, motor and vocal tics are one of the two major symptoms of the diagnostic criteria, along with OCD. Tics are not […]

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PANS & Eating Restrictions at School

PANS & Eating Restrictions at School

Published: May 31, 2021   |   Author: Gabriella True   |   Category: Blog, Families, Parents, & Caregivers, Printables & Brochures, Schools & Educators   |   Tags: , , ,   |   No Comments

PANS & Eating Restrictions This section on Restrictive Eatings at School is part of a larger section on Restrictive Eating seen in PANS PANDAS.  Make sure to read the entire section too. PANS & Eating Restrictions Strategies for School You one include accommodations and goals for restrictive eating in an IEP. Feeding therapy is a […]

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Advocate Early and Often! No Experience Needed!

Advocate Early and Often! No Experience Needed!

Published: May 27, 2021   |   Author: Gabriella True   |   Category: Blog, Families, Parents, & Caregivers, Featured on Homepage   |   No Comments

It is never too early to become a PANS PANDAS advocate! Public awareness of PANS PANDAS happens one person at a time, and we need your help! Increasing awareness improves outcomes of those suffering from these devastating disorders that should be treatable. When more people are aware of the signs and symptoms, doctors can diagnose […]

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PANDAS Clinical Care & Research at MGH: Updates & Discussion Drs Geller, Pasternack, & Williams

PANDAS Clinical Care & Research at MGH: Updates & Discussion Drs Geller, Pasternack, & Williams

Published: May 24, 2021   |   Author: Gabriella True   |   Category: Blog, Featured on Homepage, Videos   |   No Comments

PANDAS Clinical Care & Research at MGH: Updates & Discussion w/ Drs. Geller, Pasternack, & Williams Doctors from the MGH PANDAS clinic present updates on various aspects of clinical care in PANS/PANDAS. New research on how to treat and diagnose these conditions will also be discussed. May 21, 2021

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PANS PANDAS Student Excellence Award

PANS PANDAS Student Excellence Award

Published: May 20, 2021   |   Author: Gabriella True   |   Category: Blog, Families, Parents, & Caregivers, Featured on Homepage   |   3 Comments

Our students are PANS PANDAS strong!     As we begin to wrap up the school year, we see many kids receiving praise for scholastic achievement. Let us take the time to honor all of the PANS PANDAS students that toughed it out through their numerous hard times due to PANS PANDAS. People say it was […]

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