ASPIRE Blog

Lecturer: Nancy O’Hara, MD, MPH, FAAP Webinar: Demystifying PANS/PANDAS: A Functional Medicine Guide on Basal Ganglia Encephalitis Date/Time: Monday, May 2nd – 4:00 PM EST Register for this webinar: Click to Access Webinar Please register even if you will not attend make the live webinar. We will make the video available to those who register after […]

Clara Westwell-Roper, John R. Best, Zainab Naqqash, Kourosh Afshar, Andrew E. MacNeily, and S. Evelyn Stewart.Journal of Child and Adolescent Psychopharmacology. Published Online: 11 Apr 2022 – ahead of printhttp://doi.org/10.1089/cap.2021.0059 “Neuropsychiatric disorders are common in children with bowel and bladder dysfunction (BBD), a syndrome associated with urinary frequency, urgency, holding, incontinence, and constipation. We evaluated […]

Reader Response: Lack of Association of Group A Streptococcal Infections and Onset of Tics “Schrag et al. reported that Group A streptococcal (GAS) exposure is unrelated to tics in children at risk for tic disorders.1 The critical limitations of this study are that only children with genetic risks for tics were studied and information about […]

Speaker: Craig Shimasaki, PHd, MBA Webinar: Coming Soon Date/Time: Wednesday, October 5th at 10:00 am EST Register for this webinar: Coming Soon Please register even if you will not attend make the live webinar. We will make the video available to those who register after the event. Abstract: Coming Soon About Craig Shimasaki, PHd, MBA Dr. […]

Speaker: Jennifer Leiman, MS, OTR/L Webinar: Executive Function Tools: Before, During, & After a PANS PANDAS Flare View this webinar: Executive Functioning Webinar Abstract: Connecting PANS/PANDAS to Executive Function Executive Function – Technical Terms and Strategies Talking to Your Children about Executive Function Implementing These Tools  How to Setup these Tools at Home Drop and […]

Lecturer: Susan Swedo, MD Webinar: PANS and PANDAS Recognition, Diagnosis and Treatment of Acute-onset Neuropsychiatric Symptoms Date/Time: Thursday, March 24 To Watch Webinar: Please fill out the form below or at this link – View Webinar! Biography Read Susan Swedo, MD’s biography Scientist Emerita, NIH -National Institute of Health CSO, PANDAS Physicians Network PAB, ASPIRE […]

TOPEKA — Shannon Wright’s daughter suddenly exhibited bizarre behavior Sept. 13, 2011, that was subsequently found to be a rare autoimmune disorder in which streptococcal or other infectious agent compelled antibodies to mistakenly attack the girl’s brain.

HB2110 Passes! HB2110 is a pilot program that will provide coverage for PANS PANDAS under the state health care benefits program and collect data on the impact, utilization, and cost of coverage. Afterwhich the legislators will decide whether or not to require PANS and PANDAS coverage to be mandated for health insurance plans. The legislator […]

Call to Action: Call and email the Georgia Senate Health and Human Services Committee to vote yes for HB1484 now through the weekend. The meeting and vote are Monday at 7:00 a.m.    CTA Details: It is critical to call and email the HHS members and email their assistants today and over the weekend. Today […]

Bonnie Kaplan at the University of Calgary in the Behavioural Research Unit / Dept of Paediatrics has worked with hundreds of children and adults to develop a way to learn how to swallow pills. This method, based on head posture, is helping people who have difficulty swallowing their medication. Watch the U Calgary video for […]

Pedijatrijsko autoimuno neuropsihijatrijsko oboljenje udruženo sa streptokokom Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal Infection Jasmina Škorić1, Bojan Pavković1. 1 Dom zdravlja Dr Simo Milošević’, Beograd, Srbija http://prevped.preventivnapedijatrija.rs/index.php/casopis/article/download/41/24 Conclusion: The patient showed signs of improvement after the intravenous administration of immunoglobulin which confirmed the underlying immunological aspect of the disease. Additionally, serologic test results that […]

PANDAS in an Adult?: A Case Report. Deshmukh RP, Mane AB, Singh S.Ind J Priv Psychiatry 2022; 16 (1):44-45. DOI: 10.5005/jp-journals-10067-0104 “We report a case in order to suggest that we should be alert while assessing OCD in young patients, as it might be secondary to streptococcal infection. This has therapeutic implications. Trials of immunomodulator […]