ASPIRE Blog

CDC’s Autism Numbers The CDC has released the new estimated Autism Prevalence rates. They report that 1 in 44 or 2.27% of American 8-year-olds have an autism spectrum disorder (ASD) as surveyed in 2018. This was a 23% increase over two years ago when the CDC said the estimated numbers were 1 in 54 in […]

Please support NWPPN’s lead to mandate insurance coverage for PANS PANDAS.

Our family and B have gone through so much since December 2018. It has been completely devastating emotionally, mentally, physically, and financially. At the time, there didn’t seem to be an end in sight, there didn’t seem to be any light at the end of this very dark tunnel but I never and will give […]

You are being invited to participate in a research study of the University of Connecticut, called Experiences of Families Affected by PANS/PANDAS Around the World. Patients and parents of patients are invited to participate. The purpose of this study is to examine the experiences of families accessing adequate care, following the recommendations by clinicians, and […]

Share this one-page handout on PANS PANDAS. Click the button below to download the 1-page handout on PANS PANDAS including symptoms and information about the disorder Register with ASPIRE to download this information packet. Consider PANS PANDAS     Return to Awareness & Education Materials

Learning to Slay the Beasts Podcast Gabriella True, ASPIRE President, sits down with Sara German of Learning to Slay the Beasts Podcast, to talk all things PANS PANDAS and Autism. They discuss everything from what are the biggest challenges families face to key challenges to increasing awareness. The Learning to Slay the Beasts podcast focuses […]

Highlights of Key PANS PANDAS Research Download ASPIRE’s 4-page quick research reference handout.   Return to Research section PANS Research Return to Section: Handouts & Brochures

Rea I, Guido CA, Spalice A. Clinical Features in Patients With PANDAS/PANS and Therapeutic Approaches: A Retrospective Study. Frontiers in Neurology. Vol. 12, 2021. DOI=10.3389/fneur.2021.741176   62 patients with a clinical diagnosis of PANDAS/PANS. 15 with PANS. 47 with PANDAS Mean age at onset of PANDAS/PANS symptoms was 6.2 ± 1.2 years 6.2 for PANDAS. 6.0 […]

Manuel F. López-Aranda, Ishanu Chattopadhya, Gayle M. Boxx, Elizabeth R. Fraley, Tawnie K. Silva, Miou Zhou, Miranda Phan, Isaiah Herrera, Sunrae Talomam Rochelle Mandanas, Karen Bach and Michael Gandal and Daniel H. Geschwind, Genhong Cheng, Andrey Rzhetsky and Stephanie A. White, Alcino J. Silva. Postnatal immune activation causes social deficits in a mouse model of […]

Carrie knows firsthand how much PANS PANDAS can take a toll on parents and the family. She shares her story to let other parents know there is light at the end of the tunnel, and during the healing journey, they are seen and heard, even on days filled with doom and gloom. Healing from PANDAS […]

This handout on School Nurse Information is the perfect accompaniment to the PANS PANDAS in the School Setting 2-page handout. We also have a 20-page toolkit PANS PANDAS School Impact & Supports and the 8-page School Nurse toolkit.     Learn more about PANS PANDAS in the school setting. PANS PANDAS is a medical condition in […]

This two-page handout on PANS PANDAS in the school setting is a perfect introduction to school staff and families. We also have a twenty-page toolkit PANS PANDAS School Impact & Supports.   Learn more about PANS PANDAS in the school setting. PANS PANDAS is a medical condition in which symptoms affect a student’s ability to […]