ASPIRE Blog

  Download Toolkit Legislative Action: Information for Legislators Toolkit Download ASPIRE’s PANS/PANDAS Legislative Action: Information for Legislators Toolkit. 

This Legislative Toolkit covers topics including: What are PANS/PANDAS Overview of Diagnosis […]

Start the Legislative Process Are you interested in starting the legislative process in your state? Meet with the ASPIRE Legislative Working Group (ALWG) to help you get started. Your voice […]

ASPIRE is working to support national efforts to pass legislation requiring insurance coverage for the treatment of PANS and PANDAS. By sharing your story and keeping the conversation clear, positive, and focused, you can help drive change.

Louisiana PANS PANDAS Action The Louisiana PANS PANDAS Action Committee (LPPA) is a newly formed group that is leading the charge for legislative change in the state to support those […]

PANS PANDAS & Eating Disorders/Food Restrictions – Full Packet of Recent studies and Flyer. Please note that the Flyer is also available in two poster sizes also.

Nutrition is vital for kids with PANS/PANDAS, conditions tied to OCD and infections like strep that disrupt eating habits, causing nutrient deficiencies and gut issues. Registered Dietitians (RDs) can help by:

PANS or PANDAS refers to what some doctors call Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections. It’s an often misunderstood and misdiagnosed disease that can cause erratic and sometimes dangerous behavior that often mimics symptoms of schizophrenia.

Imagine a child suffering from seizures, only to discover years later that the cause might be tied to a cat scratch and an insect bite. A groundbreaking case study from North Carolina State University (NCSU) has revealed a connection between Bartonella and Babesia infections and complex neurological disorders, challenging how we approach diagnosis and treatment of such conditions.

Students with PANS/PANDAS have complex cognitive, behavioral, physical & neurological symptoms that affect their school performance. The school’s multidisciplinary team benefits from an awareness of PANS PANDAS, the resulting impact on school performance, and the recommended support.

Breitschwerdt EB, Maggi RG, Robveille C, Kingston E. Bartonella henselae, Babesia odocoilei and Babesia divergens-like MO-1 infection in the brain of a child with seizures, mycotoxin exposure and suspected Rasmussen’s […]

  Living with a sibling affected by PANS profoundly impacts well-being—fear of outbursts, limited social opportunities, and the isolation of not having the words or knowledge to explain the condition. […]

Frankovich J, Calaprice D, Ma M, Knight O, Miles K, Manko C, Hernandez JD, Sandberg J, Farhadian B, Xie Y, Silverman M, Madan J, Strand V, Chang K, Thienemann M. […]