ASPIRE Participates in Rare Across America

ASPIRE Participates in Rare Across America

Published: Mar 27, 2021   |   Author: Gabriella True   |   Category: Blog, Featured on Homepage, Legislative Resources   |   Tags:   |   No Comments

Rare Across America Congressional Meetings Make an impact on federal policy from close to your home. Share your rare disease story. Meet other rare disease advocates. ASPIRE joined several Congressional meetings organized by Rare Disease Legislative Advocates (RDLA) on March 3rd and 4th, 2021 to talk about PANS PANDAS as well as issues that affect […]

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A Boy, His Brain, and a Decades-Long Medical Controversy

A Boy, His Brain, and a Decades-Long Medical Controversy

Published: Mar 25, 2021   |   Author: Gabriella True   |   Category: Blog, News   |   No Comments

Timothy was 10 years old when his personality changed overnight. A concussion during a family ski trip in December 2016 left him unsteady on his feet, but that was just the first sign something was wrong. The strawberry-blond boy who played on the chess team and looked forward to Mandarin lessons became withdrawn, obsessive, and suicidal. Back home in Marin County, California, he said “bad men” had surrounded his family’s house and were trying to get him.

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Inflammatory Brain Disorders Conference

Inflammatory Brain Disorders Conference

Published: Mar 25, 2021   |   Author: Gabriella True   |   Category: Blog, Clinicians, Families, Parents, & Caregivers, Featured on Homepage   |   No Comments

The Inflammatory Brain Disorders Conference features nationally and internationally renowned experts skilled in diagnostic and therapeutic approaches who will present a diverse range of emerging clinical and research challenges, insights, and advances in the field of inflammatory brain disorders. The conference will be held live virtually. All registrants will receive a recording of the entire conference.

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PANS Australia Conference

PANS Australia Conference

Published: Mar 21, 2021   |   Author: Gabriella True   |   Category: Blog   |   No Comments

The conference is for parents and professionals and is completely online so available world-wide.  It will be recorded and available for viewing for ticket holders for a period of time after the conference.

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Finding the Right Fit at School for PANS PANDAS

Finding the Right Fit at School for PANS PANDAS

Published: Mar 20, 2021   |   Author: Gabriella True   |   Category: Blog, Personal Stories   |   Tags:   |   No Comments

I think the biggest thing you can do for your PANDAS kid is never to give up on them!! Find what works for them and always advocate for their health and education. When someone tells you they cant accommodate your child, make them listen or find someone else who will!! Evan has come such a long way and is a happy, funny 10-year-old. We still have occasional flares, and he still needs support emotionally at times, but he knows we are there to help him!

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Poster Session at NATCON 2021 on PANS PANDAS

Poster Session at NATCON 2021 on PANS PANDAS

Published: Mar 20, 2021   |   Author: Gabriella True   |   Category: Additional Therapies, Blog, Clinicians, Featured on Homepage   |   Tags:   |   No Comments

Children brought to behavioral health clinics with a sudden onset of changes in behavior and/or mood are often misdiagnosed and mistreated because clinicians don’t know the signs and symptoms of pediatric acute-onset neuropsychiatric disorders (PANS) or the related condition,

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