Legislative Action: Information for Legislators Toolkit

pans pandas legislative action legislation toolkit

 

Download Toolkit

Legislative Action: Information for Legislators Toolkit

Download ASPIRE’s PANS/PANDAS Legislative Action: Information for Legislators Toolkit. 

This Legislative Toolkit covers topics including:

  • What are PANS/PANDAS
  • Overview of Diagnosis & Treatment
  • PANS/PANDAS Legislative Action
  • Current Landscape of PANS/PANDAS
  • Impact of of PANS/PANDAS
  • On Treatment & The Use of IVIG
  • Why Passage of Legislation is Critical
  • Passed Insurance Bills

Revised: October 2024

 

 


 

2 comments to Legislative Action: Information for Legislators Toolkit

  1. Karina Gamboa
    October 4, 2024

    Does my child need to wait until January 2025 to get IVIG approved?

    Reply
    • Gabriella True
      October 4, 2024

      If your child is in Colorado or California, then to get IVIG approved for PANS, then yes. Your provider may be able to prove medical necessity under another diagnosis your child may have like AE, an immunodeficiency or CDIP.

      Reply

Leave a comment