I want to thank our entire community for participating in PANS PANDAS Awareness Day yesterday. Your posts, lights, and conversations made a powerful impact. Today is World Mental Health Day,...
By Gabriella True, President, Alliance to Solve PANS & Immune-Related Encephalopathies (ASPIRE) Each year, countless children and adults with PANS PANDAS lose critical time, time when early...
Learn more about PANS PANDAS PANS PANDAS are misdirected immune responses that result in acute onset of OCD, tics, and/or restricted food intake, along with two neuropsychiatric symptoms in seven...
Joint Rebuttal to the American Academy of Pediatrics Clinical Report on PANS (12/16/24)...
PANS PANDAS & Eating Disorders/Food Restrictions – Full Packet of Recent studies and Flyer. Please note that the Flyer is also available in two poster sizes...
Living with a sibling affected by PANS profoundly impacts well-being—fear of outbursts, limited social opportunities, and the isolation of not having the words or knowledge to explain the...
Needle fear is real, and you’re not alone. Whether it’s a quick blood draw or a longer infusion, anxiety can make the experience stressful. For those with PANS/PANDAS, it may...
Staying well-hydrated before, during, and after IVIG can help minimize side effects like headaches, dizziness, fatigue, and muscle cramps. Here’s how to make hydration work for you: Download...
Homeschooling and PANS/PANDAS: Resources for Families Traditional school environments can be challenging for many families navigating PANS/PANDAS. Symptoms such as anxiety, OCD, cognitive...
Looking for ASPIRE ChitChats? ASPIRE ChitChats are supportive, peer-to-peer meetings for parents of children with PANS and adults living with PANS. These gatherings—both online and in...
We’re Exhibiting at the Patient 360 Virtual Conference! ASPIRE is excited to join the IgNS Patient 360 Virtual Conference on March 8–9, 2025! This FREE, two-day event connects patients,...
Share Your Triumphs: Celebrating Wins in the PANS/PANDAS Journey We all know that living with PANS/PANDAS is an uphill battle—sometimes a mountain climb. But as we approach the...
Learn about other families whose lives have been affected by PANS/PANDAS — and be inspired to share your own.
A letter to my 14 year old self
Our friend gave ASPIRE permission to share this letter to her 14-year-old self. Many of us know how it feels to be too affected by PANS/PANDAS/BGE to go to school. […]
“What happened to Ruth Anne?” her kindergarten teacher asked 26 years ago. She had experienced numerous infections and had tubes put in her ears. She struggled with attention and the once sweet, kind child became anxious and irritable. By 3rd grade, she couldn’t write, pay attention, read, and was diagnosed with ADD. Chronic infections ensued and restricting food intake began. She was diagnosed with an eating disorder. We made it through those years with the support of several wonderful teachers.
Alphabet Soup – Multiple Diagnoses and Nothing Fits Except PANS PANDAS
I was so relieved to have a diagnosis that made sense finally, which gave us the hope of treating and recovering our son.
Case Study – Recovering from PANS, Lyme, CIRS
A Talk with Nathan Who is Recovering from PANS/PANDAS, Lyme & CIRS Gabriella: I had a chat with Dr. Nancy O’Hara, Nathan, and his mom a few years ago and […]