March 25, 2022
Kansas PANS PANDAS Updates
HB2110 Passes! HB2110 is a pilot program that will provide coverage for PANS PANDAS under the state health care benefits program and collect data on the impact, utilization, and cost...
Legislative Resources
March 15, 2022
Idaho PANS PANDAS Updates
Idaho’s HCR 30 for a PANDAS/PANS Awareness Day Passed Unanimously Bill Information: ID HCR030 States findings of the Legislature and recognizes October 9, 2022, as PANDAS/PANS Awareness Day. ...
February 23, 2022
Washington State PANS PANDAS Updates
Washington House Resolution 4653 Passed Bill Information: HR 4653 – 2021-22- Honoring patients and families affected by PANDAS/PANS. Bill Status Link: Washington.Gov Link Bill Language:...
July 30, 2021
IOCDF Virtual Voices for Mental Health: An Online Day of Action
Virtual Voices for Mental Health program 2021 ASPIRE is again partnering with IOCDF on Virtual Voices for Mental Health program in which we call on our community to contact their...
July 15, 2021
ASPIRE Supports BIOSIM Act
ASPIRE has signed a letter to Congressman Schrader and Congressman Kinzinger to support the BIOSIM Act. This act would accelerate patient access to new biosimilar treatments by providing a temporary...
April 16, 2021
Ohio PANS PANDAS Updates
WE HAVE A CALL TO ACTION for House Bill #488 that requires insurance coverage for PANDAS/PANS kids in...
March 27, 2021
ASPIRE Participates in Rare Across America
Rare Across America Congressional Meetings Make an impact on federal policy from close to your home. Share your rare disease story. Meet other rare disease advocates. ASPIRE joined several...
March 27, 2021
Legislative Thank You Letter Template
After you meet with your legislator or one of their staff, please write a brief thank-you note. Make sure to concisely recap your discussion along with what you wish their...
March 14, 2021
Illinois PANS PANDAS Updates
Please sign a Proponent Witness Slip HB2472- requires the Director of Insurance to solicit information and data from health insurance carriers regarding insurance coverage for pediatric...
February 23, 2021
ASPIRE signs on to letter to FDA regarding Complex Generics
ASPIRE cosigned the Association for Accessible Medicines’ letter to the FDA urging them to prioritize patient access to more safe, effective, and affordable complex generic medicines in Generic...