April 16, 2021
Ohio Call to Action – Insurance Bill
WE HAVE A CALL TO ACTION for House Bill #488 that requires insurance coverage for PANDAS/PANS kids in...
Legislative Resources
March 27, 2021
ASPIRE Participates in Rare Across America
Rare Across America Congressional Meetings Make an impact on federal policy from close to your home. Share your rare disease story. Meet other rare disease advocates. ASPIRE joined several...
March 27, 2021
Legislative Thank You Letter Template
After you meet with your legislator or one of their staff, please write a brief thank-you note. Make sure to concisely recap your discussion along with what you wish their next steps will be to...
March 14, 2021
Illinois PANS PANDAS Legislation
Please sign a Proponent Witness Slip HB2472- requires the Director of Insurance to solicit information and data from health insurance carriers regarding insurance coverage for pediatric...
March 4, 2021
West Virginia Call to Action – Insurance Bill -Update
WV needs your help asking legislators to support HB 2252: Requiring insurance coverage for treatment of pediatric autoimmune neuropsychiatric...
February 26, 2021
Iowa Call to Action – Insurance Bill SF165
The deadline to make the first funnel is March 4th. Calls/emails really need to be made by Monday, March 1st as this committee generally only meets on...
February 23, 2021
ASPIRE signs on to letter to FDA regarding Complex Generics
ASPIRE cosigned the Association for Accessible Medicines’ letter to the FDA urging them to prioritize patient access to more safe, effective, and affordable complex generic medicines in Generic...