A Chat About Legislative Advocacy Gabriella: Before we start, I want to make it clear who this is for. This isn’t meant for professional advocates or trained lobbyists. It’s for...
Why State-Mandated Coverage for PANS/PANDAS Is Now Urgent and Justified Aetna has updated its medical policy to recognize PANS/PANDAS and to cover IVIG when medically necessary for patients who meet...
Legislative Takeaway The OHIC report was required to answer a narrow statutory question about short-term insurer savings, not whether PANS/PANDAS coverage is medically necessary or beneficial to...
Federal Update: Advancing Research and Recognition for PANS/PANDAS ASPIRE does not lead federal legislative efforts, but we actively support federal initiatives that advance research, federal...
2026 Pennsylvania PANS PANDAS Legislation For more information, please reach out to Pennsylvania State Leads Bonnie Markowitz and Kathy Rubel. See below for the Current Call to Action...
Are you in New York State? Help secure legislation mandating insurance coverage for PANS PANDAS in New York. No experience...
Vermont Legislative Action is lead by Devin Gaskell. Please contact Devin directly to become involved in legislative advocacy in Vermont. You can also follow the Vermont PANS PANDAS Network on...
For up-to-date information on Oregon’s legislative action: Make sure to follow NWPPN’s Facebook page for updates and questions. To contact NWWP directly, please email them – NWPPN’s...
The deadline to make the first funnel is March 4th. Calls/emails really need to be made by Monday, March 1st as this committee generally only meets on...
New Jersey Legislative Action is lead by Alissa Johnson. Please contact her directly to become involved in legislative advocacy in New Jersey. Alissa is Co-Founder and Advisor The Louisa...
WE HAVE A CALL TO ACTION for House Bill #488 that requires insurance coverage for PANDAS/PANS kids in...
SB5 Passes! Bill SB 5 – Status Update Bill Language: Read PDF Note: Key details begin in Part II, Section 2-1 Passed: 04/04/2025 A BILL to be entitled an Act...