ASPIRE Blog

  We wish nothing but healing wishes for Stori. Stori’s mom shared her story with us on the day of PANS PANDAS Awareness Action Week, when we shared many stories. […]

  Not feeling alone is sometimes one of the most important parts of our PANS/PANDAS journey. I am so glad this brave 11th grader shared her story. Others see she […]

  Often we only think of tick-borne illnesses, like Lyme disease, as having a slow, gradual onset.  We see acute physical symptoms and then months later we see neurologic or […]

  If the embedded video link does not play on this page, please watch directly on YouTube. Symposiums   ASPIRE was invited by the Associazione Genitori Pans Pandas Bge Organizzazione […]

  After being at a play date where a mother informed me that her brother was a neurologist and we should look into PANDAS, I had no idea where to […]

  Just like Holden, parents often hear about PANS/PANDAS through word of mouth or knowing a family with a kiddo already diagnosed. So, keep talking about PANS/PANDAS wherever you go. […]

  My son’s PANDAS journey began the way that most others have. B was in first grade, and one day he was our silly, mischievous, bright child; the next he […]

  “Oh, but he has always been like that”. Often, that is what parents hear from dismissive providers or family members when they start discussing whether their child’s behaviors may […]

  After you read this story, imagine what it is like for all those children who are not diagnosed correctly. You can paint a pretty bleak picture in your mind […]

Eremija J, Patel S, Rice S, Daines M. Intravenous immunoglobulin treatment improves multiple neuropsychiatric outcomes in patients with pediatric acute-onset neuropsychiatric syndrome. Front Pediatr. 2023 Oct 16;11:1229150. doi: 10.3389/fped.2023.1229150. PMID: […]

  Finding the right doctor matters. We know there are families where the stars align and they get seen by the right doctor at the right time and get the […]

Sivakanthan A, Gedeon J, Sadaf S, et al. Pediatric autoimmune neuropsychiatric disorders associated with streptococcal infections manifestations in a teenager. Prim Care Companion CNS Disord. 2023;25(5):23cr03505. October 5, 2023. https://doi.org/10.4088/PCC.23cr03505 […]