ASPIRE Blog

Chances are if you have PANS PANDAS, you have experienced issues with sleeping. Learn about reasons why this symptom is part of the Diagnostic Criteria.  Come learn about why Sleep […]

Sleep disturbances are common in children with PANS and are part of the diagnostic criteria.  See more about the PANS PANDAS Diagnostic Criteria and Symptoms Some have trouble falling asleep […]

A new onset of ADHD-like behaviors along with other PANS symptoms is one of the possible signs someone may have PANS PANDAS.

You are being invited to participate in a research study affiliated with the Massachusetts General Hospital, called Investigating the Impact of the Coronavirus Pandemic on Children with PANS/PANDAS,

This study evaluates the efficacy of naproxen sodium treat OCD symptoms in patients with suspected or diagnosed Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal infections (PANDAS).  

Groundbreaking, Emmy Nominated documentary on PANDAS by Tim Sorel, My My Kid Is Not Crazy: A Search for Hope in the Face of Misdiagnosis is now available for free on Youtube.

ASPIRE cosigned the Association for Accessible Medicines’ letter to the FDA urging them to prioritize patient access to more safe, effective, and affordable complex generic medicines in Generic Drug User Fee Amendment (GDUFA III). Please see the list of other organizations that signed on.å

The PANDAS Physicians Network (PPN) flowcharts for diagnosis and treatment will help clinicians evaluate their patients and determine the best course of treatment. Guidelines and workflows were approved by practitioners […]

As evidenced by her recovery and resolution of symptoms, treating both the Lyme infection and streptococcal infection, as well as treating the underlying autoimmune etiology of her neuropsychiatric symptoms resulted in a successful outcome.

Irina A. Vanzhula, Shruti S. Kinkel-Ram, Cheri A. Levinson. Perfectionism and Difficulty Controlling Thoughts Bridge Eating Disorder and Obsessive-Compulsive Disorder Symptoms: A Network Analysis. Journal of Affective Disorders. Volume 283, […]

Margo Thienemann, Michelle Park, Avis Chan, Jennifer Frankovich. Patients with abrupt early-onset OCD due to PANS tolerate lower doses of antidepressants and antipsychotics. Journal of Psychiatric Research, Vol 135, 2021, […]

These plushy brains are an excellent tool for my son to externalise his worries and concerns. We can take an indirect approach and talk about feelings and concerns without focusing so directly on him.