PANS & Lyme Disease – Dr. Delaney

PANS & Lyme Disease – Dr. Delaney

Published: May 18, 2020   |   Author: Gabriella True   |   Category: Blog, Tick-Borne Illness   |   Tags: , ,   |   No Comments

Lyme disease, PANS, and the Columbia University Lyme & Tick-borne Research Center. Shannon L. Delaney, MD, Director, Child and Adolescent Evaluation, Lyme & Tick-borne Research Center, is a neuropsychiatrist at Columbia University Irving Medical Center who is co-investigator with Brian Fallon, MD on studies of adults and children with Lyme disease. Her clinical research has […]

Read more
COVID 19 Antibody Testing

COVID 19 Antibody Testing

Published: May 18, 2020   |   Author: Gabriella True   |   Category: Blog, Featured on Homepage   |   Tags: ,   |   No Comments

ASPIRE thanks the NECH team for continuing to host talks and having ASPIRE write notes to share with the community. Patients of Dr. O’Hara and Dr. Wells can ask additional questions in the patient portal. Please check back for the upcoming schedule as well as Q&As and transcripts of previous meetings. NECH Educational Sessions. Patients […]

Read more
COVID 19 Dysregulation of Immune Response

COVID 19 Dysregulation of Immune Response

Published: May 14, 2020   |   Author: Gabriella True   |   Category: Blog   |   Tags: ,   |   No Comments

This was a retrospective study from Wuhan China to examine the dysregulation of the immune response in severe COVID 19 patients using flow cytometry. Of the 452 consecutive patients, 63% were diagnosed with severe COVID 19 and the median age was 58 years. Fifty-one percent of the severe cases had a clinical history of chronic disease and underlying health issues, including chronic obstructive pulmonary disease (COPD), diabetes and hypertension.

Read more
Our Rainbow in this Storm

Our Rainbow in this Storm

Published: May 14, 2020   |   Author: Gabriella True   |   Category: Blog, Personal Stories   |   Tags: , ,   |   4 Comments

My message to parents is to listen to your child and trust yourself. We all have strong parental instincts for a reason. I know there will be days when all you want to do is hide under the covers and shut the world out. But, perhaps there will be days when your child is healthy enough that you start to forget how bad it was.

Read more
Nurses & PANS PANDAS

Nurses & PANS PANDAS

Published: May 4, 2020   |   Author: Gabriella True   |   Category: Blog, Clinicians   |   Tags:   |   No Comments

Nurses’ Role in PANS/PANDAS What role do nurses play in helping families with PANS/PANDAS? Nurses are an integral part of the team. Nurses are often the first point of contact during an office visit. It is crucial for nurses not only to recognize PANS/PANDAS symptoms but also to understand how assessments are done and the […]

Read more
Lyme – Tick Testing

Lyme – Tick Testing

Published: May 3, 2020   |   Author: Gabriella True   |   Category: Blog, Tick-Borne Illness   |   Tags: , , ,   |   No Comments

Tick Testing and Disease Transmission Statistics Gabriella: Thank you to Dr. Rich for talking with ASPIRE today about Tick Report and his lab at U Mass.  Dr. Rich and I spoke in 2019 at the Central Mass Lyme Conference. Please tell our ASPIRE community about your work. Stephen: TickReport is a service offered by my […]

Read more
Lyme Disease – Neurocognitive & Neuropsychiatric Symptoms – Dr. Capanna-Hodge

Lyme Disease – Neurocognitive & Neuropsychiatric Symptoms – Dr. Capanna-Hodge

Published: May 3, 2020   |   Author: Gabriella True   |   Category: Blog, Featured on Homepage, Tick-Borne Illness   |   Tags: , , ,   |   No Comments

Neurocognitive and neuropsychiatric symptoms associated with tick-borne disease. Gabriella: Dr. Roseann, thank you for joining ASPIRE to talk about neurocognitive and neuropsychiatric symptoms associated with tick-borne disease. Many of our families are dealing with PANS, Lyme, and other tick-borne infections whether or not a tick-borne infection triggered the first PANS symptoms. Some patients’ initial PANS […]

Read more
CDC Lyme Disease Zoom Series

CDC Lyme Disease Zoom Series

Published: May 1, 2020   |   Author: Gabriella True   |   Category: Blog   |   Tags: ,   |   No Comments

Every Friday during Lyme Disease Awareness Month, the Vector-Borne Disease Regional Centers of Excellence will give interactive presentations on their work for tickborne diseases such as; tick surveillance, how to collect ticks, tick bite prevention, tickborne disease research, and other activities.  Every Week at 1:00pm.

Read more
Tick-Borne Infection Additional Resources

Tick-Borne Infection Additional Resources

Published: May 1, 2020   |   Author: Gabriella True   |   Category: Blog, Tick-Borne Illness   |   Tags: , , ,   |   No Comments

Tick Resources Tick Types, Tick Stages, Tick Diseases Tick Type & Stage Identification Chart List of Tick Borne Diseases Tick Table Tick Life Cycle CDC AKC Lyme Disease Rash Examples CDC Lyme Disease Testing Lyme Disese Testing Challenges Treatment ILADS Treatment Guidelines Lyme Disease Basics Lyme Disease Association Tick-Borne Infection Home

Read more
Children’s Mental Health Awareness Day

Children’s Mental Health Awareness Day

Published: Apr 29, 2020   |   Author: Gabriella True   |   Category: Blog, Events, Fundraisers, Special Projects, Families, Parents, & Caregivers, Featured on Homepage   |   Tags:   |   2 Comments

National Children’s Mental Health Awareness Day is May 7th National Children’s Mental Health Awareness Day raises awareness about the importance of caring for every child’s mental health and reinforces that positive mental health is essential to a child’s healthy development. Does your child have OCD or an Eating Disorder along with other cognitive, behavioral, neurological, […]

Read more
Antibodies for OCD

Antibodies for OCD

Published: Apr 28, 2020   |   Author: Gabriella True   |   Category: Blog, Featured on Homepage   |   Tags: ,   |   15 Comments

Patients with obsessive compulsive disorder (OCD) have increased levels of Immuno-moodulin (Imood), a protein in their lymphocytes, a type of immune cell.

Anxious mice returned to normal in a couple of days after being given an antibody that blocked Imood. Twenty-three people with OCD and twenty healthy people without OCD were tested; Imood expression was about six times higher in those with OCD. Additional research indicates the same protein, Immod, is elevated in ADHD.

Read more