ASPIRE Blog

ASPIRE is working to support national efforts to pass legislation requiring insurance coverage for the treatment of PANS and PANDAS. By sharing your story and keeping the conversation clear, positive, and focused, you can help drive change.

If you’re reading this, you probably care about our family and our child. We understand that what we’re going through may seem confusing, unfamiliar, or even hard to believe. Sudden and extreme changes in behavior don’t match how most people think about illness, especially when the symptoms seem psychiatric.

Arthritis in Children with Psychiatric Deterioration: What This Case Series Shows Ma M, Sandberg J, Farhadian B, Silverman M, Xie Y, Thienemann M, Frankovich J. Arthritis in Children with Psychiatric […]

For Legislative State Leads PANS Legislation: What It Is and How ASPIRE Supports States Across the United States, families affected by PANS and PANDAS face a common problem: access to […]

A Chat About Legislative Advocacy Gabriella: Before we start, I want to make it clear who this is for. This isn’t meant for professional advocates or trained lobbyists. It’s for […]

In this study, neurological soft signs (NSS) are defined as subtle neurological examination findings that may reflect dysfunction in motor coordination and movement regulation, particularly related to basal ganglia pathways — the brain circuits critical for motor control, behavior regulation, and habit learning.

Why State-Mandated Coverage for PANS/PANDAS Is Now Urgent and Justified Aetna has updated its medical policy to recognize PANS/PANDAS and to cover IVIG when medically necessary for patients who meet […]

Legislative Takeaway The OHIC report was required to answer a narrow statutory question about short-term insurer savings, not whether PANS/PANDAS coverage is medically necessary or beneficial to families. The report […]

Federal Update: Advancing Research and Recognition for PANS/PANDAS ASPIRE does not lead federal legislative efforts, but we actively support federal initiatives that advance research, federal recognition, and improved coordination of […]

Share your contact information to receive updates specific to PANS/PANDAS in Vermont, including news, events, and advocacy efforts. Rest assured, your information will not be sold or shared, and you will not be added to ASPIRE’s general mailing list—this is strictly for Louisiana-based updates.

    2026 Pennsylvania PANS PANDAS Legislation For more information, please reach out to Pennsylvania State Leads Bonnie Markowitz and Kathy Rubel. See below for the Current Call to Action […]

This article is for kids and teens living with PANS/PANDAS. It explains the conditions, what symptoms might look like, what you need, what’s okay to feel, and reminders that you’re not alone. This page is written just for kids and teens, and explained simply so everyone can understand. It doesn’t have all the answers, but hopefully we can help you get started!