ASPIRE Blog

Zoom – Wed, January 21, 7:00 pm

The Patient 360 Conference is a free, virtual event created just for patients, families, and caregivers. You’ll get expert-led sessions, real-world tools, and a supportive community to help you feel more informed, empowered, and in control of your care.

Children and adolescents typically experience mild or asymptomatic acute COVID-19. However, a significant subset develop persistent symptoms, commonly termed long COVID or post-COVID condition. Definitions in pediatrics are inconsistent. Some frameworks differentiate ongoing symptoms lasting 4 to 12 weeks from post-COVID syndrome beyond 12 weeks, while others use long COVID as a general term. This variability matters because symptoms are diverse, may fluctuate, and are often misattributed to stress, disrupted schooling, or normal adolescent development. The research base is also highly heterogeneous in study design, follow-up duration, and case definitions.

Fidan T, Ceyhan S, Fidan V. Streptococcal Serology in Children With Stuttering. Ear, Nose & Throat Journal. 2024;104(8):513-515. April 19, 2024. doi:10.1177/01455613241244946 Stuttering and Post-Streptococcal Neuroimmune Conditions: An Emerging and […]

Association of PANS With Microstructural Brain Differences on Diffusion MRI Study: Zheng J, Frankovich J, McKenna ES, et al. Association of Pediatric Acute-Onset Neuropsychiatric Syndrome With Microstructural Differences in Brain […]

Nebraska PANS PANDAS Coalition  is lead by one of ASPIRE’s Nebraska Lead, Grace Troupe. Please contact her directly to become involved in legislative advocacy in Nebraska. Please visit the NE […]

Vermont Legislative Action is lead by Devin Gaskell. Please contact Devin  directly to become involved in legislative advocacy in Vermont.  You can also follow the  Vermont PANS PANDAS Network on […]

  For up-to-date information on Oregon’s legislative action: Make sure to follow NWPPN’s Facebook page for updates and questions.  To contact NWWP directly, please email them – NWPPN’s Email. House […]

The deadline to make the first funnel is March 4th. Calls/emails really need to be made by Monday, March 1st as this committee generally only meets on Tuesday.

Bullying & PANS/PANDAS Bullying is a frequent concern within the PANS/PANDAS community. Bullying is never the child’s fault. When symptoms are misunderstood, children may be labeled as “different,” “disruptive,” or […]

Supportive Oligonucleotide Therapy (SOT): Emerging Approaches in Lyme Disease Treatment An increasing number of patients in the community are exploring Supportive Oligonucleotide Therapy (SOT), with varied experiences and outcomes. This […]

Zoom – Wed, January 8, 7:00 PM Central