ASPIRE Blog

In-Person – June 7 – 3:00 pm Central

In-Person – Danbury, CT – Thursday, June 12 – 10:00am-12:00pm Eastern

The key to treatment was aggressive intervention. But finding the right doctors was a battle. Most practitioners were unaware of PANS or didn’t believe in its severity. We were lucky to get a diagnosis within months—many families go years without answers.

  General Legislative Information How to talk to your state representative How to Get Started Find your State Representative and State Senator in your district Look Up Your Legislator! ASPIRE […]

  Download Toolkit Legislative Action: Information for Legislators Toolkit Download ASPIRE’s PANS/PANDAS Legislative Action: Information for Legislators Toolkit. 

This Legislative Toolkit covers topics including: What are PANS/PANDAS Overview of Diagnosis […]

Start the Legislative Process Are you interested in starting the legislative process in your state? Meet with the ASPIRE Legislative Working Group (ALWG) to help you get started. Your voice […]

ASPIRE is working to support national efforts to pass legislation requiring insurance coverage for the treatment of PANS and PANDAS. By sharing your story and keeping the conversation clear, positive, and focused, you can help drive change.

Louisiana PANS PANDAS Action The Louisiana PANS PANDAS Action Committee (LPPA) is a newly formed group that is leading the charge for legislative change in the state to support those […]

PANS PANDAS & Eating Disorders/Food Restrictions – Full Packet of Recent studies and Flyer. Please note that the Flyer is also available in two poster sizes also.

Nutrition is vital for kids with PANS/PANDAS, conditions tied to OCD and infections like strep that disrupt eating habits, causing nutrient deficiencies and gut issues. Registered Dietitians (RDs) can help by:

PANS or PANDAS refers to what some doctors call Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections. It’s an often misunderstood and misdiagnosed disease that can cause erratic and sometimes dangerous behavior that often mimics symptoms of schizophrenia.

Imagine a child suffering from seizures, only to discover years later that the cause might be tied to a cat scratch and an insect bite. A groundbreaking case study from North Carolina State University (NCSU) has revealed a connection between Bartonella and Babesia infections and complex neurological disorders, challenging how we approach diagnosis and treatment of such conditions.