ASPIRE Blog

We know about PANS/PANDAS. We need the rest of the world to catch up. Let’s talk about sharing our story and advocacy on PANS PANDAS Awareness Day I am not […]

  We wish nothing but healing wishes for Stori. Stori’s mom shared her story with us on the day of PANS PANDAS Awareness Action Week, when we shared many stories. […]

  Not feeling alone is sometimes one of the most important parts of our PANS/PANDAS journey. I am so glad this brave 11th grader shared her story. Others see she […]

  Often we only think of tick-borne illnesses, like Lyme disease, as having a slow, gradual onset.  We see acute physical symptoms and then months later we see neurologic or […]

  If the embedded video link does not play on this page, please watch directly on YouTube. Symposiums   ASPIRE was invited by the Associazione Genitori Pans Pandas Bge Organizzazione […]

  After being at a play date where a mother informed me that her brother was a neurologist and we should look into PANDAS, I had no idea where to […]

  Just like Holden, parents often hear about PANS/PANDAS through word of mouth or knowing a family with a kiddo already diagnosed. So, keep talking about PANS/PANDAS wherever you go. […]

  My son’s PANDAS journey began the way that most others have. B was in first grade, and one day he was our silly, mischievous, bright child; the next he […]

  “Oh, but he has always been like that”. Often, that is what parents hear from dismissive providers or family members when they start discussing whether their child’s behaviors may […]

  After you read this story, imagine what it is like for all those children who are not diagnosed correctly. You can paint a pretty bleak picture in your mind […]

Eremija J, Patel S, Rice S, Daines M. Intravenous immunoglobulin treatment improves multiple neuropsychiatric outcomes in patients with pediatric acute-onset neuropsychiatric syndrome. Front Pediatr. 2023 Oct 16;11:1229150. doi: 10.3389/fped.2023.1229150. PMID: […]

  Finding the right doctor matters. We know there are families where the stars align and they get seen by the right doctor at the right time and get the […]