ASPIRE Blog

Got questions about PANS/PANDAS? Join us for a supportive parent-to-parent chat! Whether you need answers or just want to share, we’re here for you.

Monday, March 4, 2024 – 6:00 PM Central. GracePointe Church, 1565 Ray Thorington Road, Montgomery, AL 36117

ASPIRE’S Professional Advisory Board publishes PANS/PANDAS Guidelines for Children with Autism PANS PANDAS & Autism Autism PANS Guidelines Children who have autism spectrum disorder (ASD or autism) are at risk […]

Residents of Tennesee, we need your help! This is the first year Tennessee has undertaken legislative efforts to pass a legislative mandate to secure insurance coverage for PANS PANDAS. SB2401/HB2484 and SB2402/HB2463 are insurance bills, one for state insurance and one for private insurance, that have been introduced in 2024.

California Legislative Action Please follow this page and ASPIRE’s social media for updates – Facebook and Instagram. Please contact CALPANS with questions regarding California legislative efforts and ways you can get involved today. […]

NASHVILLE, Tenn. (WSMV) – After three denials of insurance coverage of a misunderstood disease, a Mt. Juliet family just learned the good news: BlueCross BlueShield has agreed to three months of coverage of an expensive transfusion, one that the family had already paid $16,000 out-of-pocket to receive.

Thursday, March 14 – 10:00 AM EST at PANERA – 5A Sugar Hollow Road, Danbury, CT 06810

Poster: Enuresis as a presentation of Paediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcus (PANDAS) Author: Ying Xin Wong, Ubhi Tim Presented: The Royal College of Paediatrics and Child Health Annual […]

Family enters final fight for son’s ‘life-saving’ treatment WSMV4 by Amanda Hara. Published: Mar. 21, 2024 at 5:35 PM EDT Another story about the cruel bureaucracy of insurance. A child […]

GRAND ROUNDS – Register Today Children’s Minnesota will host a one-hour pediatric grand rounds presentation featuring Eyal Muscal, MD, MS. – Neuroinflammation in Children: Breaking Down Silos of Care? Date: […]

Today, on Women’s Day, as I take notes from my morning meeting with Dr. Susan Swedo about upcoming and ongoing projects, I am taking a moment to reflect on her […]

Presentation Details   PANS/PANDAS Symptoms and Solutions in the School Setting Date: April 2nd, 2024 Time: 3:00-5:00 Join Via Zoom Link:  https://us06web.zoom.us/j/85003252706?pwd=abiFFHc769nNHc9heesP6uG24ZjV9w.1 Presenter: Gabriella True, ASPIRE President Please Note: Attendance […]