ASPIRE Blog

ASPIRE Board Members hosts Comitato Italiano Genitori in a discussion on PANS PANDAS Webinar: Wednesday, April 28th – 10:00am – 12:00pm EST Featuring ASPIRE Board Members: Susan Swedo, MD and […]

Rare Across America Congressional Meetings Make an impact on federal policy from close to your home. Share your rare disease story. Meet other rare disease advocates. ASPIRE joined several Congressional […]

Amongst the speakers will be ASPIRE’s Professional Advisory Board member, Nancy O’Hara, MD, MPH, FAAP, and her practice partner Lindsey Wells, ND.

I am proud of my journey. It made me the person I am today. I still have a while until recovery, but my progress is enough to motivate me to keep pushing.

Timothy was 10 years old when his personality changed overnight. A concussion during a family ski trip in December 2016 left him unsteady on his feet, but that was just the first sign something was wrong. The strawberry-blond boy who played on the chess team and looked forward to Mandarin lessons became withdrawn, obsessive, and suicidal. Back home in Marin County, California, he said “bad men” had surrounded his family’s house and were trying to get him.

I’m sending out gift bags to other kids because I want to help make their experience during IVIg day a little better. If you know of someone getting IVIg, please contact me so that I can send them a little PANDAS love in a package!

I think the biggest thing you can do for your PANDAS kid is never to give up on them!! Find what works for them and always advocate for their health and education. When someone tells you they cant accommodate your child, make them listen or find someone else who will!! Evan has come such a long way and is a happy, funny 10-year-old. We still have occasional flares, and he still needs support emotionally at times, but he knows we are there to help him!

Read about one family’s journey of how they handled their daughter’s inability to attend in-person school full time and ultimately weaving together a partial in-school and homebound instruction program.

Anxiety is a major symptom of PANS and PANDAS.    See more about the PANS PANDAS Diagnostic Criteria and Symptoms.   Generalized Anxiety, particularly Separation Anxiety, a hallmark symptom of […]

Share your PANS PANDAS story about how siblings are affected too!

Chances are if you have PANS PANDAS, you have experienced issues with sleeping. Learn about reasons why this symptom is part of the Diagnostic Criteria.  Come learn about why Sleep […]

Sleep disturbances are common in children with PANS and are part of the diagnostic criteria.  See more about the PANS PANDAS Diagnostic Criteria and Symptoms Some have trouble falling asleep […]