ASPIRE Blog

Khimani, Kynza & Abadía-Barrero, César & LaRusso, Maria. (2024). Implementing dietary changes with children affected by PANS/PANDAS. Children’s Health Care. 1-19. 10.1080/02739615.2024.2338763. 64.7% of the 467 survey participants indicated that […]

Fidan T, Ceyhan S, Fidan V. Streptococcal Serology in Children With Stuttering. Ear, Nose & Throat Journal. 2024;104(8):513-515. April 19, 2024. doi:10.1177/01455613241244946 Read a deep dive on Stuttering and Post-Streptococcal […]

Such a victory!’ Insurance denied a ‘life-saving’ treatment for their son, so a TN family found another path to coverage
Cigna denied a treatment called IVIG that had been helping treat their son for PANDAS, a condition that can include a sudden and extreme change in personality, tics, abnormal movements and rage.

When Angela Tang’s teenage son came down with a baffling illness, few households could have been better equipped to deal with it. The family lives in a wealthy Los Angeles suburb. Both parents are doctors — Tang in internal medicine, her husband in infectious disease — and their son, a straight-A student well-liked at school, had been cared for by the family’s pediatrician since birth.

ASPIRE ChitChat – Birmingham, Alabama – Tuesday, May 14, 2024 – 6:30 PM CDT

ASPIRE ChitChat – Montgomery, Alabama – Monday, May 6, 2024 – 6:00 PM CDT

ASPIRE’S Professional Advisory Board publishes PANS/PANDAS Guidelines for Children with Autism PANS PANDAS & Autism Autism PANS Guidelines Children who have autism spectrum disorder (ASD or autism) are at risk […]

NASHVILLE, Tenn. (WSMV) – After three denials of insurance coverage of a misunderstood disease, a Mt. Juliet family just learned the good news: BlueCross BlueShield has agreed to three months of coverage of an expensive transfusion, one that the family had already paid $16,000 out-of-pocket to receive.

Kinderlehrer DA. Inflammation as the Common Pathophysiology Linking Stress, Mental Illness, Autoimmunity and Chronic Disease: Implications for Public Health Policy. J Biomed Res Environ Sci. 2024 Mar 28; 5(3): 242-255. […]

Poster: Enuresis as a presentation of Paediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcus (PANDAS) Author: Ying Xin Wong, Ubhi Tim Presented: The Royal College of Paediatrics and Child Health Annual […]

Family enters final fight for son’s ‘life-saving’ treatment WSMV4 by Amanda Hara. Published: Mar. 21, 2024 at 5:35 PM EDT Another story about the cruel bureaucracy of insurance. A child […]

GRAND ROUNDS – Register Today Children’s Minnesota will host a one-hour pediatric grand rounds presentation featuring Eyal Muscal, MD, MS. – Neuroinflammation in Children: Breaking Down Silos of Care? Date: […]