Bullying & PANS/PANDAS Bullying is a frequent concern within the PANS/PANDAS community. Bullying is never the child’s fault. When symptoms are misunderstood, children may be labeled as “different,” “disruptive,” or […]
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Supportive Oligonucleotide Therapy (SOT): Emerging Approaches in Lyme Disease Treatment An increasing number of patients in the community are exploring Supportive Oligonucleotide Therapy (SOT), with varied experiences and outcomes. This […]
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Zoom – Wed, January 8, 7:00 PM Central
Read moreBreitschwerdt EB, Maggi RG, Bush JC, Kingston E. Babesia and Bartonella Species DNA in Blood and Enrichment Blood Cultures from People with Chronic Fatigue and Concurrent Neurological Symptoms. Pathogens. 2026; […]
Read moreLaDeau, Shannon L., KellyOggenfuss, AlexanderSchmidt, SaravananThangamani, and Richard S.Ostfeld. 2025. “Ecological Dynamics of Blacklegged Ticks, Vertebrate Hosts, and Associated Zoonotic Pathogens in Northeastern Forests.” Ecosphere16(12): e70508. https://doi.org/10.1002/ecs2.70508 Researchers tested 2,000+ […]
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New Jersey Legislative Action is lead by Alissa Johnson. Please contact her directly to become involved in legislative advocacy in New Jersey. Alissa is Co-Founder and Advisor The Louisa […]
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WE HAVE A CALL TO ACTION for House Bill #488 that requires insurance coverage for PANDAS/PANS kids in OHIO!
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Lacy was an outgoing, fun nine-year-old. Then, one night, everything changed. She became a shell of herself.
Her mother, Crystal, 30, from Illinois, told Newsweek she can only describe last year as “hell.” Doctors said her first-born had anxiety and depression — but Crystal’s instincts told her something else was happening.
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College with PANS/PANDAS: Your Story Matters Starting college can be challenging for any young adult. For students living with PANS/PANDAS, the transition often comes with added layers—managing health, navigating accommodations, […]
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Starting college is an exciting milestone, but for students with PANS/PANDAS, the transition can feel especially overwhelming. Balancing academics, health needs, and independence requires careful planning and support. The good […]
Read moreDanieli, M.G.; Buti, E.; Longhi, E.; et al. Advancing Our Understanding of IVIg in Pediatric Acute-Onset Neuropsychiatric Syndrome. Journal of Mosaic of Autoimmunity 2025, 1 (2), 5. doi.org/10.53941/jmai.2025.100012 Reviews intravenous […]
Read moreMatera M, Biagioli V, Illiceto MT, Palazzi CM, Cavecchia I, Manzi A, Lugli S, Pennazzi L, Meocci M, Pedaci FA, Bertuccioli A. Pediatric acute-onset neuropsychiatric syndromes and the gut-oral-brain axis: […]
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