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  • What is PANS?
    • Definition
    • Causes
    • Syndrome vs Disorder
    • Who Gets PANS/PANDAS?
    • FAQs about PANS PANDAS
    • Team Approach Needed
    • Clinical Urgency of Diagnosing & Treating
    • Caregiver Experience
  • Symptoms & Diagnosis
    • PANS PANDAS Symptoms
    • PANS PANDAS Disease Course
    • PANS PANDAS Symptom Severity
    • Diagnosing PANS and PANDAS
    • Symptom Tracking Tools
    • PANS PANDAS Appointment Preparation
    • PANS PANDAS Information for Clinicians
    • Roadblocks to a PANS PANDAS Diagnosis
  • Treating PANS
    • Treating PANS and PANDAS
    • PANS and PANDAS at School
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ASPIRE Blog

New York PANS PANDAS Updates

New York PANS PANDAS Updates

Published: Jan 31, 2024   |   Author: Gabriella True   |   Category: Blog, Featured on Homepage, Legislative Resources   |   Tags: Legislation  |   No Comments

Are you in New York State? Help secure legislation mandating insurance coverage for PANS PANDAS in New York. No experience necessary.

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Sensory processing in children with Paediatric Acute-onset Neuropsychiatric Syndrome

Published: Jan 27, 2024   |   Author: Gabriella True   |   Category: Blog, Research   |   No Comments

Newby, M. J., Lane, S. J., Haracz, K., Tona, J., Palazzi, K., & Lambkin, D. (2024). Sensory processing in children with Paediatric Acute-onset Neuropsychiatric Syndrome. Australian Occupational Therapy Journal, 1–11. […]

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Preventing Symptom Exacerbation After Dental Work in PANS/PANDAS

Preventing Symptom Exacerbation After Dental Work in PANS/PANDAS

Published: Jan 25, 2024   |   Author: Gabriella True   |   Category: Additional Therapies, Blog, Clinicians   |   Tags: Dental  |   No Comments

Certain dental procedures can increase the risk of bacteremia (the presence of viable bacteria in the circulating blood).¹ Thus, the American Heart Association’s 2007 guidelines recommend antibiotic prophylaxis for patients […]

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Baseline characteristics of children in the International PANS Registry (IPR) Epidemiology Study

Published: Jan 24, 2024   |   Author: Gabriella True   |   Category: Blog, Research   |   No Comments

Masterson EE, Gavin JM. Baseline characteristics of children in the International PANS Registry (IPR) Epidemiology Study. BMJ Open. 2024 Jan 24;14(1):e072743. doi: 10.1136/bmjopen-2023-072743. PMID: 38267248; PMCID: PMC10824037. Participants & Household […]

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Crushing OCD Workbook for Kids: 50 Fun Activities to Overcome OCD With CBT and Exposures

Crushing OCD Workbook for Kids: 50 Fun Activities to Overcome OCD With CBT and Exposures

Published: Jan 14, 2024   |   Author: Gabriella True   |   Category: Blog, Books   |   Tags: Children's Book, OCD  |   No Comments

Using the exercises in this book, you’ll learn how to spot when OCD is stirring up trouble, and how to stop it in its tracks. All 50 activities are designed […]

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Case report: Diagnosis and intervention of a non-24-h sleep–wake disorder in a sighted child with a psychiatric disorder

Published: Jan 5, 2024   |   Author: Gabriella True   |   Category: Blog, Research   |   No Comments

Carla Estivill-Domènech, Carla Estivill-Domènech. Case report: Diagnosis and intervention of a non-24-h sleep–wake disorder in a sighted child with a psychiatric disorder. Front. Psychiatry, 05 January 2024. Sec. Sleep Disorders. […]

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Tafenoquine-Atovaquone Combination Achieves Radical Cure and Confers Sterile Immunity in Experimental Models of Human Babesiosis

Published: Jan 3, 2024   |   Author: Gabriella True   |   Category: Blog, Research   |   No Comments

Pratap Vydyam, Anasuya C Pal, Isaline Renard, Meenal Chand, Vandana Kumari, Joseph C Gennaro, Choukri Ben Mamoun, Tafenoquine-Atovaquone Combination Achieves Radical Cure and Confers Sterile Immunity in Experimental Models of […]

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School Based Awareness Projects and Fundraisers

School Based Awareness Projects and Fundraisers

Published: Jan 3, 2024   |   Author: Gabriella True   |   Category: Blog, Events/Projects, Family Resources, Schools & Educators   |   No Comments

  School Awareness Projects The key to a successful capstone project and/or awareness event is to be passionate and committed to the cause. Raising awareness about PANS and PANDAS can […]

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The Comprehensive Physicians’ Guide to the Management of PANS and PANDAS: An Evidence-Based Approach to Diagnosis, Testing, and Effective Treatment

The Comprehensive Physicians’ Guide to the Management of PANS and PANDAS: An Evidence-Based Approach to Diagnosis, Testing, and Effective Treatment

Published: Jan 2, 2024   |   Author: Gabriella True   |   Category: Blog, Books, Featured on Homepage   |   2 Comments

An evidence-based guide for doctors diagnosing, testing, and treating children with PANDAS (Pediatric Autoimmune Neuropsychiatric Disorder Associated with Strep infections).

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Autism-Like Presentation of Possible Autoimmune Encephalitis With Complete Recovery After Immunotherapy

Published: Jan 1, 2024   |   Author: Gabriella True   |   Category: Blog, Research   |   No Comments

Kim Y, Jang Y, Lee S, Chu K. Autism-Like Presentation of Possible Autoimmune Encephalitis With Complete Recovery After Immunotherapy. J Clin Neurol. 2024 Jan;20(1):97-99. doi: 10.3988/jcn.2023.0245. PMID: 38179638; PMCID: PMC10782083. […]

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Aspirations for a new year

Aspirations for a new year

Published: Dec 31, 2023   |   Author: Gabriella True   |   Category: Blog, Family Resources, Featured on Homepage   |   No Comments

  Ah, a new year.   When looking back on your 2023, remember that it is more than okay if your most remarkable accomplishment is that you survived! It is in […]

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Microbes and Mental Illness: Past, Present, and Future

Published: Dec 29, 2023   |   Author: Gabriella True   |   Category: Blog, Research   |   No Comments

Bransfield RC, Mao C, Greenberg R. Microbes and Mental Illness: Past, Present, and Future. Healthcare (Basel). 2023 Dec 29;12(1):83. doi: 10.3390/healthcare12010083. PMID: 38200989; PMCID: PMC10779437. The review highlights five infectious […]

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Recent Posts

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  • Millennium Carillon to light up in green for PANS PANDAS Awareness Day
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