Massachusetts PANS PANDAS Updates For all updates and more information: Please follow the Massachusetts PANS/PANDAS Legislation Facebook page. How to talk to your state representative https://aspire.care/get-involved/pans-pandas-legislation Find your State […]
Read moreL Leonardi, G Lorenzetti, R Carsetti, E P Moratari, CA Guido, AM Zicari, E Forster-Waldl, L Loffredo, M Duse, A Spalice. Immunological Characterization of an Italian PANDAS Cohort. Front. Pediatr. […]
Read moreTona JT, Ash J, Brown E, Campagna C, Kostek K, Lawton E, Rieth A, Tomita M. Caregiver Burden, Stress, and Relationship Cohesion Among Self-Identified Caregivers of Children with Pediatric Acute-Onset […]
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Some kids have OCD symptoms due to an umbrella of issues under PANDAS/PANS. Research is showing that inflammation in the brain can impact mental health and cause neuropsychiatric symptoms, including […]
Read moreHardin H, Shao W, Bernstein JA. An updated review of pediatric autoimmune neuropsychiatric disorders associated with Streptococcus/pediatric acute-onset neuropsychiatric syndrome, also known as idiopathic autoimmune encephalitis: What the allergist should […]
Read moreDenise Calaprice-Whitty, Angela Tang, and Janice Tona.Factors Associated with Symptom Persistence in PANS: Part II—Presenting Features, Medical Comorbidities, and IVIG Treatment History.Journal of Child and Adolescent Psychopharmacology.Nov 2023.365-377.http://doi.org/10.1089/cap.2023.0023 Significant relationships […]
Read moreCalaprice-Whitty D, Tang A, Tona J. Factors Associated with Symptom Persistence in PANS: Part I-Access to Care. J Child Adolesc Psychopharmacol. 2023 Nov;33(9):356-364. doi: 10.1089/cap.2023.0022. Epub 2023 Oct 30. PMID: […]
Read moreLa Bella S, Scorrano G, Rinaldi M, Di Ludovico A, Mainieri F, Attanasi M, Spalice A, Chiarelli F, Breda L. Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections (PANDAS): Myth […]
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Presentation Details PANS/PANDAS Symptoms and Solutions in the School Setting: An Overview for the School Nurse Presenter: Gabriella True, ASPIRE President Addendum Topic: Massachusetts Legislative Update on PANS/PANDAS Presenter: […]
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We know about PANS/PANDAS. We need the rest of the world to catch up. Let’s talk about sharing our story and advocacy on PANS PANDAS Awareness Day I am not […]
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We wish nothing but healing wishes for Stori. Stori’s mom shared her story with us on the day of PANS PANDAS Awareness Action Week, when we shared many stories. […]
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Not feeling alone is sometimes one of the most important parts of our PANS/PANDAS journey. I am so glad this brave 11th grader shared her story. Others see she […]
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