Share Your Triumphs: Celebrating Wins in the PANS/PANDAS Journey We all know that living with PANS/PANDAS is an uphill battle—sometimes a mountain climb. But as we approach the […]
Read moreHilario Blasco-Fontecilla, Victor del Rio-Peña, Ping Wang, Chao Li, Marina Martin-Moratinos, Marcos Bella-Fernández, Trastorno por tics y trastorno obsesivo compulsivo: Trastornos neuropsiquiátricos pediátricos autoinmunes asociados a infecciones por estreptococos (PANDAS) […]
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On November 13, 2020, The Texas Pediatric Acute-Onset Neuropsychiatric Syndrome Advisory Council met for the first time.
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Tuesday, December 17 – 7:00 PM Eastern
Read moreAbout 90% of the day, she’s bedridden,” he continued, wiping away a tear. “When she’s in a flare, she can’t speak, she can’t walk the majority of the day. She can’t eat or consume anything.
Read moreMenendez CM, Zuccolo J, Swedo SE, Reim S, Richmand B, Ben-Pazi H, Kovoor A, Cunningham MW. Dopamine receptor autoantibody signaling in infectious sequelae differentiates movement versus neuropsychiatric disorders. JCI Insight. […]
Read moreNewby MJ, Lane SJ, Haracz K, et al. Occupational performance patterns in children with paediatric acute-onset neuropsychiatric syndrome. Australian Occupational Therapy Journal. 2024;72:e12995. doi:10.1111/1440-1630.12995 Read more in a deeper dive […]
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🌟 Join IOCDF for a Special PANS PANDAS Town Hall! 🌟 As part of PANS PANDAS Awareness Week, the IOCDF is hosting an incredible Town Hall featuring three inspiring voices: […]
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In late November of 2023, we noticed that our daughter, Sammi, had a limp. She had fallen and said her knee hurt. The next week, she began acting very tired […]
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What is the cost of not treating PANS/ PANDAS promptly & appropriately? We recently sat down with Susan Swedo, MD, to discuss a critical topic: the cost of inaction when […]
Read moreMelamed, Isaac, et al.“IVIG Response in Pediatric Acute-onset Neuropsychiatric Syndrome Correlates with Reduction in Pro-inflammatory Monocytes and Neuropsychiatric Measures.”Frontiers in Immunology, vol. 15, 2024, p. 1383973, https://doi.org/10.3389/fimmu.2024.1383973. Accessed 3 Oct. […]
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California Legislative Action Please follow this page and ASPIRE’s social media for updates – Facebook and Instagram. Please contact CALPANS with questions regarding California legislative efforts and ways you can get involved today. […]
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