Together, we can ignite hope and create a brighter future for those diagnosed with PANS/PANDAS. Help empower, educate, support, and advocate to shorten the time between the onset of symptoms […]
Read moreLa Bella S, Attanasi M, Di Ludovico A, Scorrano G, Mainieri F, Ciarelli F, Lauriola F, Silvestrini L, Girlando V, Chiarelli F, et al. Pediatric Autoimmune Neuropsychiatric Disorders Associated with […]
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It is a New Year and a new decade. Everyone is making resolutions. But you are still dealing with PANS/PANDAS.
So how do we make resolutions that empower us and don’t set us up to fail or forget to follow through mid-year? How do we do this when we want to pull our hair out and shout – help! I can’t handle any more! Throw me a lifeline!
Peralta-Fogle, Austin; Ramsey, Jeffrey; Fazel, Natasha; and Spilman, Ryan, “PANDAS Exacerbation Post-Tonsillectomy, Acute Response to Fentanyl & Dexamethasone” (2023). Continental, MidAmerica, & Mountain Divisions Research Day 2023. 45. https://scholarlycommons.hcahealthcare.com/continental-midamerica-mountain2023/45 Poster […]
Read moreRao, A.P., Patro, D. The Intricate Dance of Infections and Autoimmunity: An Interesting Paradox. Indian J Pediatr (2023). https://doi.org/10.1007/s12098-023-04928-8 Besides genetic susceptibility, infections due to viruses, bacteria and protozoa have […]
Read moreGolovchenko M, Opelka J, Vancova M, Sehadova H, Kralikova V, Dobias M, Raska M, Krupka M, Sloupenska K, Rudenko N. Concurrent Infection of the Human Brain with Multiple Borrelia Species. […]
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Massachusetts PANS PANDAS Updates For all updates and more information: Please follow the Massachusetts PANS/PANDAS Legislation Facebook page. How to talk to your state representative https://aspire.care/get-involved/pans-pandas-legislation Find your State […]
Read moreL Leonardi, G Lorenzetti, R Carsetti, E P Moratari, CA Guido, AM Zicari, E Forster-Waldl, L Loffredo, M Duse, A Spalice. Immunological Characterization of an Italian PANDAS Cohort. Front. Pediatr. […]
Read moreTona JT, Ash J, Brown E, Campagna C, Kostek K, Lawton E, Rieth A, Tomita M. Caregiver Burden, Stress, and Relationship Cohesion Among Self-Identified Caregivers of Children with Pediatric Acute-Onset […]
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Some kids have OCD symptoms due to an umbrella of issues under PANDAS/PANS. Research is showing that inflammation in the brain can impact mental health and cause neuropsychiatric symptoms, including […]
Read moreHardin H, Shao W, Bernstein JA. An updated review of pediatric autoimmune neuropsychiatric disorders associated with Streptococcus/pediatric acute-onset neuropsychiatric syndrome, also known as idiopathic autoimmune encephalitis: What the allergist should […]
Read moreDenise Calaprice-Whitty, Angela Tang, and Janice Tona.Factors Associated with Symptom Persistence in PANS: Part II—Presenting Features, Medical Comorbidities, and IVIG Treatment History.Journal of Child and Adolescent Psychopharmacology.Nov 2023.365-377.http://doi.org/10.1089/cap.2023.0023 Significant relationships […]
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