ASPIRE Blog

What does Rare Disease Day mean for PANS/PANDAS?  In the PANS world, we say that PANS/PANDAS is not rare; it is just rarely diagnosed.  One of the problems of perpetuating […]

The Intersection of Mental Health and the Immune System – Exploring new avenues of diagnosis and treatment in mental health care. Psychology Today By: Sheilah M. Gauch   Sheilah hits […]

NWPPN is leading the efforts in Idaho. We will help provide updates and Call to Action items as needed. If you would like to join in the efforts, please contact […]

“Long Beach’s state assembly representative, Josh Lowenthal, earlier this month introduced AB 2105 [Editor Note: Corrected from AB 2015 in the print edition] in Sacramento. It would provide health insurance coverage for an inflammatory brain disorder that can become chronic or life-threatening conditions to children when left untreated – and which is typically misdiagnosed by doctors.”

Marazziti D, Massa L, Carbone MG, Palermo S, Arone A, D’Angelo G, Schulz Bizzozzero Crivelli N, Gurrieri R, Perrone P, Palagini L, Dell’Osso L. Silent Infections are not So Silent: […]

WSMV 4 By Lauren Lowrey Published: Jan. 24, 2024 at 6:37 PM EST|Updated: Jan. 24, 2024 at 7:44 PM EST   NASHVILLE, Tenn. (WSMV) – A little-understood disease could be […]

Loudoun parent is hopeful that new legislation will bring insurance coverage for PANS/PANDAS By KAREN GRAHAM kgraham@loudountimes.com Louden Times, Feb 7, 2024 “Virginia parents of children diagnosed with PANS/PANDAS, a […]

“The legislation from Del. Patrick Hope, D-Arlington, would have applied to both Medicaid and private insurance as a way to lower the treatment costs for PANS/PANDAS, a disease  scientists believe is caused by a child’s immune system attacking their brain. 

Suchitra Rao, MBBS, MSCS; Rachel S. Gross, MD, MS; Sindhu Mohandas, MD; Cheryl R. Stein, PhD; Abigail Case, MD; Benard Dreyer, MD; Nathan M. Pajor, MD; H. Timothy Bunnell, PhD; […]

  🌟 Calling all members of the PANS/PANDAS community! 🌟 Research Update – Clinical Neuroimmunology Group, Children’s Hospital at Westmead and University of Sydney  The Clinical Neuroimmunology Group, led by […]

Exciting Update from Stanford’s Immune Behavioral Health Research Program which is expanding understanding of PANS, uncovering links between infections, inflammation, and psychiatric symptoms. Their dedication is transforming lives, enabling groundbreaking research, and shaping the future of PANS care by redefining standards, advocating for change, and fostering the next generation of PANS researchers.

Wells L, O’Hara N, Frye RE, Hullavard N, Smith E. Folate Receptor Alpha Autoantibodies in the Pediatric Acute-Onset Neuropsychiatric Syndrome (PANS) and Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections […]